Hi Christl
So good to hear your news! I've been thinking about you and hoping things work out for you. It's great that you feel okay about the treatment and are feeling positive. My feet were uncomfortable and hurt a bit after the treatment in the beginning, but they are improving a lot now. Will post an update with the details soon.
What luck to find some others in the waiting room to swap Dups stories and see Hamburg
All the best
Di

Christl:

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Hello all,
I just had my first round of RT in September in Germany with Prof. Seegenschmied on both hands. He realy knows what he is doing, no guess work. I feel very confident with him. My second round will be in December. Both hands now have some stinging feeling, which I did not have before RT. I read from other people here from this forum, when they have RT on their feet, afterwards it might hurt. The more it hurts the better. I assume the same goes for hands. Something is happening. So far I have not seen any reduction of my nodules, but I assume, that will come with the second round. I also have LD, but so far no problems and Prof. Seegenschmied did not want to do RT on them.
By the way, I met three other nice ladies from this forum at the waiting room in Hamburg. We had fun together with our husbands and explored Hamburg. The city is very beautiful. We will all meet again in December, how cool is that.

Thank you Wolfgang for bringing this site to us and giving us an option other than surgery, to combat this disease.

Christl

Thank you Di and Michael!

Di, I have been thinking about you as well and wondered how you are doing. Seems all is going according to Plan. Good.
Hamburg is a cool city, unfortunately the weather is not so good right now. People seem not to mind over there, life goes on. They walk, ride their bikes and all seem to be in good shape. Of course their public transportation system is fantastic, that is realy lacking here in the states. Maybe it's ok in the cities, but in the burbs we have to take cars to get from point A to B.
My husband and I will be back in December. We went warm cloth shopping the other day. Down Jackets, warm socks, all one needs for the cold weather, we are from California and just not used to the cold weather. I did grow up in Germany, so all this is not new to me, but one forgets about how cold "cold" realy is.

Michael good luck in Germany. You will get medical treatment and have a vacation as well. I call it "Radiation Vacation". Hamburg is a cool city, good food. Maybe you will meet people from this forum in the waiting room. We explored the city by day, by night we played cards with hot tea. We also could talk to each other about the disease and we all understood. Can't beat that.

Christl

Little update on my first round of RT in Germany 2 month ago:

My left hand seems to have more cords. Wonder if the second round of RT can take care of them. Seems I read on some posts, that RT does nothing for cords only nodules. Great! Both hands are infested with cords.
I now can put my right hand flat on the table, that is an improvment. I could not do that before. The cord in my thumb is getting more pronounced. My hands are a bit dry, but I use lots of hand cream for that. My nodule in my right hand seems a bit softer. I seem to lose my strengh in my hands a bit. Have a hard time opening things.
I will report back after my second round.

Christl

Hello Di,

Thanks for your kind encouragement. I appreciate your support. I will give it time and should maybe more rigorously exercise my hands. I have the spiky balls and roll them on my hands, etc. How are your feet coming along? Seems you are so much better. Wonderful.

Take care,
Christl

Cristl,
How did your second round of RT go? I am leaving in three weeks for my second round. Any different from the first round? Any side effects? I am not looking forward to the Hamburg weather in January, I expect we will be spending a lot of time in the hotel room!!

Edited 01/03/12 16:56