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Radiotherapy in Germany
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08/10/2011 23:31
Larry 
08/10/2011 23:31
Larry 
Re: Radiotherapy in Germany

Radiation Vacation in Germany - Sounds Great To Me !

Thank you, dear fitfeet, for your wonderful story and good health with your broken leg ...

Being a doctor from Germany myself I am very pleased to hear that "we" are considered friendly and equipped with good infrastructure (streets, traffic, hotels, etc.) and apparently well suited with good doctors ! I personally chose Prof. Seegenschmiedt in Hamburg for his excellent scientific reputation, but he is not only a good scientist but also has a very warm personality, good humor and is also quite alert to many details of life. He would be a good teacher to many of us physicians and lay people to bring alertness to the community about clinical signs and symptoms in the early stage ...

It would be great if this knowledge could spread more easily around this globe ! Larry

08/24/2011 14:02
sheygetz 
08/24/2011 14:02
sheygetz 
Re: Radiotherapy in Germany

@Wolfgang

wach:
If you consider going to Seegenschmiedt you might take a picture of your foot, mail it to him upfront ...

Would one use the general email-addy of the clinic (info@szhh.info) or do you know of a personal address for him?

Hendrik

08/24/2011 14:14
wach 

Administrator

08/24/2011 14:14
wach 

Administrator

Re: Radiotherapy in Germany

This ought to be OK. I would not like to publish personal email addresses on the Internet but if you don't get a response from the clinic address you might contact me via email or personal messaging.

Wolfgang

sheygetz:
... Would one use the general email-addy of the clinic (info@szhh.info) or do you know of a personal address for him?

Hendrik

09/30/2011 08:19
fitfeet 
09/30/2011 08:19
fitfeet 
Re: Radiotherapy in Germany

I am starting to turn my attention to what I am going to be doing next.

I really want to take on another renovation in France. However I am concerned having now had the two periods of treatment of RT in Hamburg I am putting myself at risk of inflaming and undoing the good works that RT has done.

However there has to be a balance, between caution/ambition/risk.

Has anyone else who has completed their treatment returned to doing an activity which is physically demanded? And if you have, have you any observations that you could pass on?

I do appreciate that by considering undertaking another renovation I may be elevating the risk of occurrence, however what is a sensible balance?

Thanks in advance.

09/30/2011 20:24
Larry 
09/30/2011 20:24
Larry 
Re: Radiotherapy in Germany

fitfeet:
I am starting to turn my attention to what I am going to be doing next.

I really want to take on another renovation in France ....


What do you mean by RENOVATION ? Doing more physical work ?

I did running and walking got Ledderhose and problems --> then got radiotherapy --> improved and do walking again and enjoy my renovated life ! Is this what YOU mrean ??

09/30/2011 21:21
spanishbuddha 

Administrator

09/30/2011 21:21
spanishbuddha 

Administrator

Re: Radiotherapy in Germany

Fitfeet can answer for himself but I read it to mean a building renovation project. Possibly of something like an old farmhouse or similar.

I thought the Professor said no physical activity with the hand for one year after treatment? Maybe I don't recollect this correctly though.

I have to say in my case, having finished the second round in June my hand is still quite sore, more than before the treatment, and I would not consider doing any physical work such as plumbing, carpentry, engineering, etc with the hand, mainly because it would hurt.

10/01/2011 10:08
fitfeet 
10/01/2011 10:08
fitfeet 
Re: Radiotherapy in Germany

Yes it would be another old French farm kind of thing.
I really enjoy the work, get great pleasure out creating something rather special from a wreck. But your advice SB is common sense, although I do hate to admit it. I was told to wear gel protected gloves if I undertook rough work, but I really wanted to get some feedback on what others thought and the time scale involved.
I had my second round of treatments in July, and like you at times my hand does hurt a little.
If I were to purchase a wreck it would take 3 months to go through the system here, before I became the owner. So I suppose I should consider such a purchase early in the new year. (By then my leg will have started to improve too!)
I think in light of your reply to my question, I will spend some more time looking around the regions of La France....to find a great location, which is a good excuse to travel.
Thanks

Edited 10/01/11 13:12

10/01/2011 14:53
txmike 
10/01/2011 14:53
txmike 
Re: Radiotherapy in Germany

Hi all! I have been reading these fourms for weeks now & have learned so much. Thank you all for your posts. I have four nodules on my left hand, but no contracture. My first nodule showed up about two years ago, but the Dupuytren's has been very active for the past few months. I have contacted Prof. Seegenschmiedt and plan to have RT in the spring. My question to all of you is should I wait that long? The Prof. assured me there was no rush and spring would be fine. I would go ahead and do it now except for the fact that I HATE the cold. So for those of you that have been through it, do you think I shoud wait or back my ears and do it now? I just today learned that I will not be able to do any heavy work for a year, so any other advice will also be well recieved.

10/01/2011 16:33
fitfeet 
10/01/2011 16:33
fitfeet 
Re: Radiotherapy in Germany

Hi TxMike,
my recommendation would be to go as soon is practicable for you.
If you have made up your mind to get the treatment done then why wait for spring?
Remember after the initial treatment you will need to have a second treatment after 3 months, so if you wait until spring, lets say April next year, then treatment would not be completed until around late summer 2012, whereas if you went now, all treatment would be completed by late spring/early summer.

The significance being that you can start to plan your life and move on. Until you have had the treatment you will have this hanging over you.

Just a note of caution, I wasn't too sure after the initial treatment, I didn't notice a huge difference, except the tingling and aching feeling has reduced significantly. But now I have noticed a huge difference. The growth has stopped completely, I do get pain if I bang the two nodules I have left. One nodule on my small finger has vanished. The remaining two nodules have reduced in size and I have significantly less puckering of the skin in my palm. This is after just 2 months of the second treatment, still a long way to go, but initial thoughts are - I made a really good decision and I received my treatment in the best place possible.

Good luck with whatever you decide.

10/03/2011 12:42
txmike 
10/03/2011 12:42
txmike 
Re: Radiotherapy in Germany

Thanks for the reply Fitfeet. The only reason that I want to wait is so the weather will be better and we can enjoy Hamburg more. I don't deal well with the cold and since we will be there for a week each time I'd rather not spend it holed up in a hotel room. However, you do make some good points and you are right about having this looming over me. Thank you for the advice and encourging words. I will probably have it done sooner and get it over with.

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