Hi everyone, glad we have this forum. I am from So. California. I found a doctor qualified to do Xiaflex injections so I went with it. I have Medicare plan B. My condition was such that they needed two vials. My doctor's staff said the submitted the paperwork as a medical procedure but I ended up paying 33% under a tier 5 drug, approximately $2500. I.went in last thursday for the injections. They sprayed my sprayed my hand with cold spray, did the injections and sent me home. Next day it was a little swollen, a little bruised, but not bad. I went in today tuesday and had the manipulation. Not bad. I hope it works because I'm not rich. Oh the doctor was very good. His name was Dr. Abdolahi.
tk

Congrats on a successful proceedure. I Had the same proceedure on fingers last February 2015. I have Medicare b. I had zero balance due on the procedure. I have other med issues, so I made a effort to purchase extra insurance. Also the pharmacudical company can give you a coupon/discount if you qualify, all info. available online. I am surprised that two vials @ a cost of $3000 per vile was needed. I still can't get over the cost. It's a powder & mixed with a solution right before the injection. I had 6 injections from one vile. Perhaps there are different strengths.

I also had severe reaction. My hand & arm swelled severe pain in the elbow and lymph nodes, could hardly move. Also had a two week wait until manipulation. I would do it again in a heart beat. Pinky and 4th finger were both frozen to fist position due to surgery by hand surgeon 2013. Wrong treatment for first treatment of duypretrens, which I now know from this forum that surgery is the very last treatment. I tried NA after surgery no luck. Found Xiaflex from research online. The surgeon had left his patient cold with no referrals. This was a major teaching hospital in my area. All 4 fingers are a bit misshapen but strength and function is good. Cannot make a closed fist & do drop things sometimes.

My dr told me to wear a splint every night. Do u have a splint and therapy in addition to the injection? That is important part of recovery. Usually therapy is prescribed a couple weeks after the injection. Time for the fingers to heal as well as splits & if skin is blistered and torn from opening the skin in the fold of the contraction from manipulation.
I wear a Fixxglove easy to wear nightly and adjust for comfort. Splints were a hassle. U can order the FIXGLOVE ONLINE THEY ARE MADE IN CA.

So happy to hear your Xiaflex injection went so well. Isn't it great to have a straightened finger. No more accidents getting them caught on handles and wearing gloves again,cooking, & opening car doors. So many things we normally take for granted.
Happy Heeling!

Hi Econn . My thumbs click they were diagnosed with trigger finger. Surgery was recommended however not going there again, due to the faint chance surgery will cause more harm in this case.

Edited 03/09/16 07:11

Sounds great! I believe the key to a successful Xiaflex procedure is selecting a practitioner who has a good "track record" with it. A skilled doc will also know if you are a good candidate for it, it is not for everybody who has DC , sometimes NA or surgery is the only procedure that's going to work.

atedio,
My experience with Xiaflex was extreme. I had a reaction to it and knew that this could be the case ahead of time. My dr. was a clinical study dr for Xiaflex . Xiaflex also removed thick gross scaring from surgery on my fingers. It's also in other studies to remove scar tissue and for frozen shoulder.
As for the pain before injection cold spray was used & after injection I was given a prescription for pain. Also the nodes in my had enlarged & a cortizone injection helped shrink the node. He also referred me to a online company to purchase a hand held ultra sound to treat the cords and nodes as needed. It has kept them from becoming active when they do start to cause issues.
Happy heeling and wearing the Fixxglove is what gives reassurance that the hand & fingers will not relapse.
Therapy strengthing exercises helped a great deal. You will be surprised how amazing this drug is while giving back hand function as time passes.

Edited 03/10/16 23:58

Yes ur right ur hand is to swollen to wear the Fixxglove. The Fixxglove is intended to wear every night after the hand has recovered completely as measurements are from a heeled hand when ordering the glove.Wait a few more weeks and stick to a splint. Did ur dr prescribe hand therapy and exercises to increase movement & strength. Grip strength is important after heeling. See online for hand exercises at different levels of heeling or from ur hand therapist .
Ur not a baby the pain can be quite excruciating at times. In my case ot took about 6 months to regain total use of my hand, at the early stages be slow to start using ur hand again. It's vulnerable and painful give it time to heel.
Soon you will be back to your usual routine.

Edited 03/11/16 20:51