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Dupuytren Pain
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01/31/2013 13:25
zinkadoodle 
01/31/2013 13:25
zinkadoodle 
Dupuytren Pain

FYI I thought this was interesting. I didn't read the entire article, but just the synopsis on this page. Maybe this is why some of us experience more pain than others; why an injection of Xiaflex, or even lidocaine can cause so much pain in one person, and next to nothing in another. Also, everything else I've read stated that the cords themselves don't have nerve tissue, which is why only shallow lidocaine injections prior to NA is required. And, from what I've read, even in NA people experience the pain differently.

http://www.ncbi.nlm.nih.gov/pubmed/22560560/

~Diane

01/31/2013 22:19
Westie 
01/31/2013 22:19
Westie 
Re: Dupuytren Pain

zinkadoodle:
FYI I thought this was interesting. I didn't read the entire article, but just the synopsis on this page. Maybe this is why some of us experience more pain than others; why an injection of Xiaflex, or even lidocaine can cause so much pain in one person, and next to nothing in another. Also, everything else I've read stated that the cords themselves don't have nerve tissue, which is why only shallow lidocaine injections prior to NA is required. And, from what I've read, even in NA people experience the pain differently.

http://www.ncbi.nlm.nih.gov/pubmed/22560560/

~Diane
Thank you for the post. I have pain in my nodules and sometimes numbness in my ring and little finger and over to my thumb. It is heartening to know they are researching the pain that sometimes occurs with DD.

Westie

02/01/2013 00:50
zinkadoodle 
02/01/2013 00:50
zinkadoodle 
Re: Dupuytren Pain

You're welcome, Westie. I just think that docs tend to dismiss the pain that we feel, be it during the development of these nodules and cords or the injections of them. Fact is, these things suck. Not always. Usually not. They itch, but they usually don't hurt.

Unless..... like last night I was in bed, and went to pull the covers up. Without thinking I reached my hand towards straightness as the blanket caught my hand, and of course it doesn't get straight. Mon, that hurt. That really hurt. Damn.... It subsided rather quickly, but it did take me by surprise. Those who say that DC is painless just don't have DC. ~Diane

02/01/2013 01:51
Tusk 
02/01/2013 01:51
Tusk 
Re: Dupuytren Pain

Excellent find. Thanks for sharing. My nodules have always been tender and can be somewhat painful although on the lower end of the scale. I mostly ignore the discomfort. When it gets annoying I run very warm water on my hands for 5 minutes and that really helps.

I would have to be in severe pain before I let anyone cut on me, absent any functional impairment as the abstract indicates.

We, therefore, suggest that the indication for surgery in Dupuytren disease be extended to painful nodules for more than 1 year, even in the early stages of the disease in the absence of functional deficits, with assessment of tissue samples for histological changes in nerves.

02/01/2013 15:22
lori 
02/01/2013 15:22
lori 
Re: Dupuytren Pain

Thanks for finding the article, it certainly could explain why my DD was so painful.

I know my DD was extremely painful prior to RT. I believe I would rather try RT as a first step since it is non-invasive. It would have to be really painful for me to go the surgery route.

Lori

02/08/2013 17:16
Mary 
02/08/2013 17:16
Mary 
Re: Dupuytren Pain

The pain in my left hand stopped a few weeks after RT treatment, that was about 3 years ago, unfortunately it has started again. Does this mean the condition is progressing again?

02/08/2013 17:45
spanishbuddha 

Administrator

02/08/2013 17:45
spanishbuddha 

Administrator

Re: Dupuytren Pain

Mary:
The pain in my left hand stopped a few weeks after RT treatment, that was about 3 years ago, unfortunately it has started again. Does this mean the condition is progressing again?
I would get re-familiar with the feeling of your hand: hardness, softness, lumps, blanching, start keeping photos. Maybe it is something else? The pain and soreness in my RT treated hand never really went away, and although I have signs of a new nodule, and skin changes (micro-dots), the existing nodules have not progressed further.

02/09/2013 04:30
leighs 
02/09/2013 04:30
leighs 
Re: Dupuytren Pain

I have suffered with DD for nearly 20 years but only last February did I first have a needle fasciotomy on my left hand rind finger, followed a few weeks later by a full operation.

Since the operation I have suffered far more pain than before and the DD has become very aggressive in both hands.

My consultant said that DD raley causes pain but despite trying all the drugs prescribed, I have not been pain free for over a year. The pain seems to get far worse at night causing me to stay up all night long.

Fortunately the pain seem less when I am working and as I am self employed and work from home, I just stay up and work all night.

I am getting in a bad state, my consultant wanted to discharge me, my physio said that they cant do anything until the pain is under control but both GP and Consultant are arguing as to who should refer me, I feel that I have been left on the shelf.

If anyone knows of any treatment that may not have been suggested I would love to hear from you.

02/09/2013 05:04
callie 
02/09/2013 05:04
callie 
Re: Dupuytren Pain

That is something that I have not heard before. You had NA and then had surgery a "few weeks later". What was the reason for that? What happened with the NA that you would need to have surgery?

02/09/2013 11:37
zinkadoodle 
02/09/2013 11:37
zinkadoodle 
Re: Dupuytren Pain

Leighs,

It sounds to me like you may have a condition called Complex Regional Pain Syndrome. I had it after my OS, or before, or something. I don't know. My hand was just a miserable mess before and after surgery. My neurologist suspected that I had it, mostly because the skin on my hand, particularly around my knuckles was an incredible shade of purple, along with the severe pain. Ohhhh, the pain. Back then, it was called Reflex Sympathetic Dystrophy. I was in therapy for months and months, but it eventually subsided, and my hand is absolutely fine now. In fact, it's like I never had DC in my left hand, except for the telltale scar on my palm. Anyway, the doc wasn't sure if it was the condition itself, the associated tenosynovitis that I also had, or what that caused the CRPS, or if I even had it before the surgery. My hand was a mess even prior to the surgery. In fact, I do believe that the surgery actually made it all better, when all was said and done, but the pain did persist for months.

Anyway, check out this site, http://www.rsds.org/2/what_is_rsd_crps/index.html , do some more google searching, and see what you come up with. If you do have CRPS, know that it will resolve eventually, that physical therapy is critically important for you, and find a doc who can maybe diagnose you. I am not a doctor. Just a person who when through it.

Hope this helps,

Diane

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