Joe, not long ago Colleen (posting as Issleib) succeeded and found a clinic close to where she lives. She looked for clinics that had radiotherapy or oncology departments and that were research oriented. University clinics are good candidates. They ought to be research oriented because its still not a standard treatment.

Radiating (growing) nodules after NA? Might make sense. Radiating cords after NA? Don't know, maybe not.

Wolfgang

Edited at 01.03.08 09:41

Joe, good luck to you! Keep going. Maybe some triamcinolon injections in your feet might help if you have pain there?

Wolfgang
PS: I started with Dupy when I with 30 - 35 and now I am 60 (time is fleeting ...) but still type and walk along.

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Wolfgang,

Thanks so much, I did some researching and found 4 oncology Dr's in my remote area. However, I have no idea if they would be willing to try radiotherapy with Dup's nodules. Within the next few weeks I'm going to try to contact them and see what they have to say. Wolfgang, I really appreciate your responses as I feel that I'm not taken serious about my conditions versus my age. I'm going to be 40 in Oct. I have three afflicted fingers on my right hand and two on my left. Not to mention, three lumps on my right foot and one on my left. I had two Aux AA4500 injections that I would consider to be a failure, especially on my pinky PIP. There is a lot more that I can go on about but I think I'll leave it at that for now.

Thanks,

Joe

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Hi  I was a guest on this   forum a while back.. since then, I have nodules on both palms, and cords on both..My right hand is bending and my fingers, not just the joints hurt.  I can't lift anything and have a hard time doing most anythin that involves right hand...All this started during treatment for a lung desease, maybe 10 months ago.  I have been to 3 drs and not one of them even care.  the only treatment is 3 times a week physical Therapy, which I can't afford.. I can do the same thing at home..  Where do people find a Dr that even cares?  My eye Dr told me more then my rhumotologist did.  I say my HANDS HURT to him and he says thats impossible, Dups doesn't hurt.  Any suggestions would be appreciated Thanks athln

Cathln, Very sorry to hear about your condition worsening at such a fast pace. From what I understand, stress or injury can cause the disease to progress at a more rapid rate.

The most important information I can give you is to have it treated as soon as possible. The longer you wait, the worse it gets and the less likely to get a 100% recovery. By 100 % I don't mean that it will be completely gone, but it does mean that you will have more mobility in the fingers.

My husband and I found Dr. David Kline. His clinic is the Dupuytrens Center in Boise. After checking out his web site, what convinced us to have him do the procedure is the fact that he himself has Dupuytren's. He had his NA done in Paris and was so happy with the result, that he went back to be trained to do the procedure himself. Here is his web site. http://www.dupuytrenscenter.com

He has been so understanding and helpful. When you meet with him, he makes you feel as if you are his only patient. I had to drag my husband to see him (my hubby has a thing about doctors) but after the procedure my husband has been so happy, that he says that he will gladly go back if or when he needs the procedure again.

You are very blessed that you found this forum. My husband's primary care doctor, referred him to a hand surgeon. The surgeon said that my husband should have the surgery immediately. He never even mentioned NA or the study that is being done.

Please try to connect with a NA doctor as soon as possible. Dr. Kline had me e-mail pictures of my husband's hand to determine if NA would be successful. That alone saved us traveling 1000 miles. We booked the procedure, flew in the evening before, had the procedure done at 10:00 am and flew back to Denver to be home the same evening.

Please don't hesitate to ask any question you have. No one here has a personal agenda, only personal experiences.

I pray that you find the right answer for you soon. Sandie