| Lost password
118 users onlineYou are not loggend in.  Login
Dupuytrens both hands
 1
 1
10/23/2007 18:02
Sam 
10/23/2007 18:02
Sam 
Dupuytrens both hands

Hello,
My name is Sam, I’m 51 years old, originally from Long Beach, CA. now living in Phoenix, AZ. I have been a maintenance mechanic all my career. In the mid ‘90s I noticed nodules in my left palm and my little finger was contracting. I was diagnosed with Dupuytrens and told not to worry about it unless it got worse. In Nov. of ’99 my right elbow was crushed, and I had reconstructive surgery over a 6 month period using tendon from my wrist to repair the elbow. During the following 6 months of PT for my elbow, I developed Dupuytrens quickly in my right hand, to the point all my fingers were contracted (which leads me to believe trauma and/or the healing process from it does progress it). In July of ’03 it had progressed to the point of having difficulty doing simple things and my job. I found a surgeon in Long Beach who specialized in Dupuytrens and had the open palm surgery. During the following 3 months of PT, pain, discomfort and pain pills, my left hand began to progress effecting all 4 fingers and the thumb. I let it go until July ’06, found a specialist in Phoenix and had the open palm surgery. Due to the length of surgery (appox 8 hrs) and lose of blood flow to the little finger, the surgeon was only able to open the first joint of the little finger. After another 3 months of PT, pain and frustration ( I’m left handed) I had to go back to work due to financial problems.
Now for the side effects:
My right hand operated on in’03 there is an area in the palm the size of a 50 cent piece that is numb with needle & pin feeling around it. The little & index finger is contracting again (the little finger is about 80 degrees now). I am awakened several times a night with a burning and stinging sensation in both hands. My left hand operated on in ‘06 is numb from the first joint of the index finger to the base of the thumb with needle & pin feeling around it. The tips of the index & middle finger are numb. The ring finger is already starting to contract again.
With this disease and the post problems with my elbow, I’m now seriously considering apply for SSD and would like to here from others about there outcome. If anyone would like anymore info please reply.
Thanks for listening

10/23/2007 19:06
jim_h 
10/23/2007 19:06
jim_h 
Re: Dupuytrens both hands

Hi Sam, I'm 56 and have had surgery on both hands. While my problems currently aren't as severe as yours, I can definitely relate to the discomfort, tedium and frustration (I won't quite say "misery") that follow surgery. If you're reading this board you probably already know about the new alternatives of NA (available now) and Xiaflex/AA4500 (hopefully in a year or 2). The new treatments may very well make our problems more manageable in the future and maybe we can avoid more surgery.

Ther's not doubt that surgery takes a toll. I lost feeling in the side of one finger when a nerve was cut. The surgeon rejoined the ends and eventually at least half the feeling returned. This takes years so you may yet recover additional sensation. In other respects the surgery was only partially successfull; one little (5th) finger is pretty much a loss, and I might be better off without it.




10/23/2007 20:38
Sam 
10/23/2007 20:38
Sam 
Re: Dupuytrens both hands

Jim,
Thanks for replying. I can relate to your little finger. After surgery I was told my little finger couldn’t be completely fixed and it wasn’t until the bandages came off the first time that I relized it was more in the way than before. It also interfered with PT for the other fingers. The first thought I had was why didn’t he just remove it, but now I’m glad he didn’t. I will be looking into those other alternatives if I need to do this again.
Thanks again and good luck with yours.

10/25/2007 09:30
TrevB 
10/25/2007 09:30
TrevB 

Re: Dupuytrens both hands

Quote:



I am awakened several times a night with a burning and stinging sensation



I find that interesting because I have dupuytren in my right hand only without contracture as yet.

7 weeks ago I badly broke a collar bone and some ribs on my left side. The worst thing at the moment is the aching and burning I get in my little & ring finger and on that side of the hand generally. I have trouble sleeping and am on pain killers. I hope that this is due to nerve activity around my displaced collar bone break, but I worry that it is linked to dupuytren


Edited at 25.10.07 16:49

10/25/2007 19:56
doc1

not registered

10/25/2007 19:56
doc1

not registered

Re: Dupuytrens both hands

HOWS THIS CONDITION REMEDIED -PLEASE HELP -TOO YOUNG FOR THIS DEBILITATING DISEASE!

10/25/2007 20:26
TrevB 
10/25/2007 20:26
TrevB 

Re: Dupuytrens both hands

Sadly doc1 there is no cure just varying levels of severity and different types of management when it appears, as it progresses and if it re-appears (quite likely) after radiotherapy, NA or open surgery. All the information is on the site somewhere and personal experiences and advice from sufferers can be read on the forum

11/07/2007 22:00
ccromer25 
11/07/2007 22:00
ccromer25 

Re: Dupuytrens both hands

Well I have read several things in the forum, I am 42 and have had 5 suregeries total on both hands with very limited results for sure. everything looks good for awhile and then the contractures return. I am currently looking into N/A and the possibilities I have working through scar tissue. I live in the DFW area and I cant find any doctors in Texas that do that; Closest I have found is in Florida.
I still have the tingling and sensations you all speak of at night or sometimes during the day~ it can be pretty intense for sure.. My 1st surgery was when I was 31, all the doctors say I have a rapidly progressing disease. I would have N/A done yearly as opposed to Open every 3 or 4 years.. the down time with Open is terrible. and the amazing pain after surgery is worse than any surgery I have ever had... (3 knee opertations)
So if anyone has a doctor they can recommend who is closer to Dallas/Ft Worth than Florida please let me know.
Chas

 1
 1
successfull   possibilities   frustration   surgery   contractures   considering   specialized   opertations   experiences   Dupuytrens   problems   alternatives   sensation   contracting   radiotherapy   reconstructive   information   maintenance   DEBILITATING   discomfort