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Introduction / Advice
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01/04/2012 18:24
tommyboy5997 
01/04/2012 18:24
tommyboy5997 
Introduction / Advice

My name's Tom. I'm 49 and have had DC for awhile. My left hand is completely normal. There's almost a 90 degree bend in my right pinkie and have very little flexibility (if any) in it. There's some stiffness in my ring finger and I can see in my palm that it is being effected. So far though there's still a fair amount of flexibility in my ring finger and others (other than pinky). It's amazing that I don't have any arthritic issues - my hands have lived a full life!

I'm ready to start looking at some options to repair my right hand. I'm becoming increasingly frustrated that things like throwing a football, shooting hoops, and doing push-ups are so darn difficult that I don't do them much as I'd like. Also, my occupation is, or can be, dangerous. Besides requiring strength in my hands, dexterity and quickly executing tasks with my hands is really important. Plus my kids are young - 14 and 11. They're both athletic and enjoy sports. I like playing with them and their friends, but it's becoming more challenging. The old jump shot isn't as lights out now that I tape my ring and pinky fingers together. I do throw a great change-up though now! And at 49, I don't need another excuse to staying in shape - that's challenging enough already.

My biggest concerns are simple: Which treatment option will return me to near normal use of my hand? And, what sort of down time from work am I looking at? I always say that pain is only temporary, no matter how long it lasts - so, that's not really a huge concern. My wife would probably roll her eyes at that as she thinks I'm a big sissy most of the time. What can I say? I've been known to want some TLC before. Anyway, I could deal with a little pain while my hand heals after treatment. I'd like to be able to return to strenuous or intense work reasonably quickly. I have FMLA benefits, but they'll pay significantly less than what I normally earn. Unfortunately I do not have AFLAC or similar type insurance. Basically, lost work is an issue and one of the excuses I've been using.

I have seen an orthopedist. He recommended surgery, but I'm not sure at all of his level of expertise with this disease. My impression was that he did not have a lot of experience with it. He called in another doctor and it seemed like they were sort of brainstorming out loud together as to how to perform the surgery. My impressions could be misguided and perhaps this clinic is as qualified as anyone. I'm currently searching for a source of another professional opinion. I live in Salem, Oregon. Recommendations of who is well qualified in treating this disease in my area would be greatly appreciated. I understand that there are a number of different types of treatment, including surgery, and hence there could be several good options of those to consult with.

This disease is really fascinating. I've been taken back by the broad spectrum of severity, as well as the types of treatment options and number of people that have had multiple types of treatment. My mindset has shifted a bit reading the posts here. Originally my thoughts were about "fixing" my hand. I now am thinking a bit more long term and recognizing that it's possible that this may not be a one and done type situation.

Thanks in advance for suggestions. I will certainly continue to post as I go through this process.

01/04/2012 19:27
callie 
01/04/2012 19:27
callie 
Re: Introduction / Advice

Your situation sounds almost identical to mine (10 years ago). I had surgery over 10 years ago on my little finger (contracted at 90 degrees). There was very little pain that was taken care of with Tylenol for a couple of days. My finger is as good as before Dupuytren's. You might look at the post "My Dupuytren's Journey" just posted by yours.

01/04/2012 21:38
spanishbuddha 

Administrator

01/04/2012 21:38
spanishbuddha 

Administrator

Re: Introduction / Advice

Don't take the advice of an orthopaedic surgeon. See a hand surgeon. Further see one who specialises in Dupuytren's. (There are lots of other hand conditions requiring surgery). Only (s)he will advise you correctly on the various treatments, recovery, outcomes, for your situation: Xiaflex, Needle Aponeurotomy, various types of surgery.

01/04/2012 21:54
CherieR 
01/04/2012 21:54
CherieR 
Re: Introduction / Advice

If you opt for surgery be 100% sure that you fully understand the recovery process. I had my surgery 5 1/2 weeks ago and am not too happy. My finger is still swollen, red and stiff and I do not have full extension. I asked for input in an earlier post. Hopefully someone will respond. This is NOT an easy surgery especially if you are right handed.

01/04/2012 22:01
callie 
01/04/2012 22:01
callie 
Re: Introduction / Advice

What do you mean, "This is NOT an easy surgery especially if you are right handed". Is it easier if you are left handed? What type of a surgeon did your surgery? What type of surgery did you have? What degree of contracture did you have?

The recovery process is different for everyone. Have you been doing your exercises and keeping the wound moist 24/7 with lotion?

Edited 01/05/12 00:06

01/05/2012 01:55
LubaM. 
01/05/2012 01:55
LubaM. 
Re: Introduction / Advice

Tom,
You are correct in saying My mindset has shifted a bit reading the posts here. Originally my thoughts were about "fixing" my hand. I now am thinking a bit more long term and recognizing that it's possible that this may not be a one and done type situation.
Dupuytren's is a very complex and unpredictable disease. Results vary from person to person and even vary from left hand to right hand in the same individual. Before exploring surgery, read all you can on this Forum about the other possible treatments, such as Needle Aponeurotomy (NA) and Xiaflex. With a 90 degrees contracture Radiation Therapy would not be one of your choices, since it has to be done in early stages of the disease. Dr. Kline (information listed below, with a clinic in Portland) has received many positive posts on this Forum.

On a personal note.... I am familiar with Dr. Keith Denkler, but he is in Larkspur, CA (near San Francisco) and one of the most experienced doctors in Needle Aponeurotomy and he also uses Xiaflex alot... After reading all you can here, come back with more questions and then you can decide if any of the less invasive treatments are for you, before deciding on surgery.


Dr. David Kline
Dupuytren's Clinic
750 Warm Springs Ave, Suite A
Boise, ID (Idaho) 83712
Phone: (208) 344-5628
additional clinic:
527 SE Cesar E. Chavez Blvd.
Portland, Oregon 97214
Phone: (503) 233.8805

www.dupuytrenscenter.com


Edited 01/05/12 03:56

01/05/2012 02:21
altoclef 
01/05/2012 02:21
altoclef 
Re: Introduction / Advice

Tom, what kind of work do you do? You might not have to take too much time off. I had a fasciectomy this spring on a Tuesday and went back to work pretty much full time on Thursday. Writing was awkward, I had to move the computer mouse to the left side, and I did have to beg off on a few things for awhile. I am fairly ambidextrous, which helps a lot. If you do heavy work with your hands and don't have any kind of sick leave available, could they put you on light duty for awhile? My doctor tried a not-too-successful needle aponeurotomy on me a couple of weeks ago. The area he worked on was awfully sore the first day, but tolerable after that.

You might want to try one of the less invasive procedures first. You can always have surgery later, but if you don't have to, even better. As others have said, find a doctor who specializes in hands. You want someone who does this all day every day, been there, done that, seen all the complications.

01/05/2012 04:55
flojo 
01/05/2012 04:55
flojo 
Re: Introduction / Advice

Tom,

I can recommend Dr. Denkler, too. He did NA on my hand twice. He has a great interest in Dupuytren's and much experience. He is a hand surgeon, has done many NA procedures, and has done well over Xiaflex treatments. Send Dr. Denkler pics of your hand by email with your questions. He'll email you back what options would work for you.

It sounds to me like you are a candidate for NA. It is possible that you could grab an early morning Southwest flight down to Oakland (my preference) or San Francisco, rent a car, drive to Larkspur (about 45 min), get NA if that is the option, drive back to the airport, fly back to Portland, go to work the next day. It would be a long day but conceivable to do it.

Any questions?

Flora

01/05/2012 05:21
wach 

Administrator

01/05/2012 05:21
wach 

Administrator

Re: Introduction / Advice

Tom,

before deciding on which route to go you might read some of the pages of this web site. You find an overview of options on

http://www.dupuytren-online.info/dupuytr..._therapies.html

The most important therapies are described in more detail, including side-effects and recovery, on



These pages are great to get an overview. And if you have questions, this forum is a great place to get answers.

Wolfgang

04/10/2013 18:41
stevebass 
04/10/2013 18:41
stevebass 
Re: Introduction / Advice

tommyboy5997:
My name's Tom. I'm 49 and have had DC for awhile.

Thanks in advance for suggestions. I will certainly continue to post as I go through this process.

Tom: I'm trying to decide which way to go and your input and experience will be helpful in making my decision.

Thanks for responding.

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