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NA and physical therapy
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05/14/2007 23:24
bstenman 
05/14/2007 23:24
bstenman 
NA and physical therapy

I would appreciate any information on anyone's experience in having NA performed and then getting physical therapy from a licensed hand therapist.

Did it help extend the range and flexibility or simply lessen the contracture reforming in the hand?

At what point did you start the physical therapy, how often did you receive therapy, and for how long did you continue the physical therapy.

Thanks,

Bruce

05/15/2007 00:14
Mark_D 
05/15/2007 00:14
Mark_D 
Re: NA and physical therapy

Bruce:

Drs. Denkler & Benhaim both suggested hand therapy for me after my 8/13/2006 N.A. procedure.

I stared the therapy about 5 or 6 days after the procedure, and I continued until my insurance ran out (about 4 months later).

I generally went twice per week, sometimes three times per week.

I definitely think that the therapy helped maintain the good results of the N.A. that Dr. Denkler performed - both in terms of range of motion & degree of contracture.

But, man, is hand therapy ever expensive!

The street price at Mission Hospital in Southern California was approximately $200 per session. Yikes.

Fortunately by the time I needed the therapy I was at 100% coverage with my health insurance company for the rest of 2006.

Mark

05/15/2007 17:43
Mike S

not registered

05/15/2007 17:43
Mike S

not registered

Re: NA and physical therapy

More or less simlar experience. Had NA on Friday and 1st PT session on Monday. Averaged 2-3x/week for about 4-6 weeks. The PT facilitated the "healing" from NA, range of motion, etc. Paid $15 co-pay/session - ~ $200+ all told. Insurance picked up the rest. WELL worth it.

05/15/2007 19:11
Randy_H 
05/15/2007 19:11
Randy_H 

Re: NA and physical therapy

Over two years ago I had a 35 degree pinkie PIP contracture straightened by Eaton to about 5 degrees. I was given splint to wear at night for a few months. No physical therapy of any kind except to slowly open and close the hand a few times after removing the splint in the morning. It was stiff.

If you are going to try NA it is best to do so ASAP, especially where a PIP is concerned. Once they get bent for a long time the muscles and ligaments are no longer capable of coming back and keeping it fully straight again. I should have had it done at 20 degrees or so. No therapy should be required if you catch it early.

05/17/2007 15:57
lps guy

not registered

05/17/2007 15:57
lps guy

not registered

Re: NA and physical therapy

Had the NA procedure done 4/26/07. Started therapy 5 days later. Been going twice a week since and have been told I'll be done after a total of 4-5 weeks.

It definitely helps. I had 90 degree bend in my little finger. The NA took it to 25 (amazing enough in its own right) but therapy coaxed another 10 degress out of it. I have to do daily exercises and wear a splint but I'm ecstatic.

Make sure you get a certified therapist who has Dups experience. My treatments were covered by my insurance but I have a $15 copay each time.

As a side note, I had the surgery in one state and the therapy back home in another where no one does NA. The therapists called it 'a miracle' and said in 20 years they hadn't seen a result like mine.

05/17/2007 16:16
Randy_H 
05/17/2007 16:16
Randy_H 

Re: NA and physical therapy

Quote:




As a side note, I had the surgery in one state and the therapy back home in another where no one does NA. The therapists called it 'a miracle' and said in 20 years they hadn't seen a result like mine.



One can only assume that your therapists had never worked on an NA patient in the last 20 years.

I'm getting the feeling that fingers with the larger NA corrections are the ones that need therapy. Mine was only 35 d.

05/18/2007 01:58
Mark_D 
05/18/2007 01:58
Mark_D 
Re: NA and physical therapy

LPS Guy:

My hand therapist (in California) had a similar reaction when he saw me last Fall.

Richard has done hand therapy for several hundred Dups. patients over the last decade - all of whom, until me, had open surgery.

Richard said that the results of my N.A. were awesome. As compared with 99% of his prior patients, he said I had less pain, less swelling, was able to start therapy sooner, etc.

Richard said that based on what he saw with me, he thought N.A. would be the "wave of the future."

Before I finished my own therapy, a second N.A. patient arrived for Richard.

That new patient also had a terrific N.A. job done by none other than Dr. Keith Denkler (who did my own N.A.).

So, maybe Richard was correct about N.A. being the wave of the future.

Separately, how long does your therapist want you to continue wearing the night splint? Will it be for a set period of time, or indefinite?

Mark

05/18/2007 14:50
Mike S

not registered

05/18/2007 14:50
Mike S

not registered

Re: NA and physical therapy

90-95 degree (depending upon who did the measuring) litttle finger PIP was NA'd by Dr. Denkler on 11-3-06. Yes, PT may be unnecessary with smaller contractures but in my case I was told in no uncetain terms to just do it and do it with a certified hand therapist. Had PT ~4-6 weeks. End result is contracture of about 15-25 degrees (what a difference)! My PT had seen some Dup's folks before. One of the PT's (not my primary person) had been involved with some collagenese testing/worked some with Dr. Benahim at UCLA and had some NA awareness. Both PT's thought the results were great. Before visiting, Dr. Denkler, I had a consult with a well-regarded traditional CHS who thought OS was the only way to go although he did allow as "I was free to explore NA if I wanted to". He had heard of it. On the other hand, my GP, when told I was considering NA, and after listening to me talk about my research of same, said in essence - "go for it." He has since seen the results and said it looks great - tells his other Dups patients (just a few) to look into it. Was told to wear a night splint for 2-3 months but still doing it by choice as well as cetain exercises.

05/18/2007 17:20
bstenman 
05/18/2007 17:20
bstenman 
Re: NA and physical therapy

This information is very interesting and confirms my feelings as I have noticed a loss of range post-NA which was performed March 12, 2007 by Dr. Denkler. He made no mention of physical therapy though his wife, also a doctor showed me how to stretch my fingers and palm with the other hand.

It seems from the information provided that there would be no harm and possibly a lot of benefit for all NA patients to receive physical therapy from a certified hand therapist for some period of time following the operation.

I continue to be amazed at how much information I have gleaned from this website and others that was not disclosed for whatever reason by the four doctors I have seen with regard to Dupuytren's. Some provided bad information and others provided either incomplete or no information.

Overall the doctors who have shown the most commitment to their patients have been Dr. Denkler and Dr. Seegenschmiedt. I have never been overly trusting of the medical community as a whole and my experiences in getting treatment for Dupuytren's has only made me more skeptical.

There is a clear and critical need for patient forums such as this to provide information and share experiences. It is great but also wrong that Wolfgang is having to fund this site for our benefit entirely out of his own pocket.

05/18/2007 19:27
Randy_H 
05/18/2007 19:27
Randy_H 

"The Phone Lines Are Open"

Physical therapists are probably in the best unbiased position to evaluate the relative results of OS Vs NA. I am not surprised at the PT reactions that are beginning to surface now that limited PT is being suggested after NA. I wonder if my final 15d on my 2 year old PIP NA would have been 5-10 with PT. It's of little consequence however, as 15d is no bid deal.

Here *is* a big deal though:

"It is .....wrong that Wolfgang is having to fund this site for our benefit entirely out of his own pocket."

Amen Bstenman!

I've spent time with Wolfgang in Germany and I can tell you we are all quite fortunate to have a guy like this step up and do this. I believe that it is a moral imperative that those who have benefited from this site should in turn help *others* by contributing to it's future. We aren't saving lives here or creating World Peace, but lives are being benefited by this effort. Wolfegang is a man of modest means and his display of unselfish giving to this community should not be rewarded with *indifference*. The Dupretrens Society needs your help.

<Sorry for the proceeding shameless but necessary plug :) >

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