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Needle Aponeurotomy and Cortisone (Kenalog) Injections in Family Practice Journal July 1st 2007
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08/09/2007 19:13
Sandie1141 
08/09/2007 19:13
Sandie1141 
Re: Needle Aponeurotomy and Cortisone (Kenalog) Injections in Family Practice Journal July 1st 2007

CONTINUED

Dr. Kline gave him two splints (at no extra charge) to start wearing after a couple of weeks, stating that the curves left in his fingers were not from the cords pulling them in, but just the fact that the finger joints and knuckles were not used to being in a straight position, so he will have to train them to go back. Since starting the splints we have seen a huge improvement. My husband has only one regret and that is that he waited so long. The sooner the NA treatment the better the results. My husband now has use back to his hand and all the lumps in his palm are gone.

Compared to what he would have gone through with surgery, this was a piece of cake. Our insurance didn't cover the procedure because it was "out of network", actually, they would cover it, but our deductable is $2000.00 and the procedure costs us $1400.00, so it was cheaper to not go through insurance.

Dr. Kline has Dupuytren's himself and did go to France to have his NA performed. He then went back to train with the doctors who perform his procedure. He works as an emergency room physician, but does this work "on the side" just to help others who suffer with it. He has been a wonderful man to work with. He really does understand what we are going through. He even worked out a hotel room rate at the local Holiday Inn of $50.00 per night for his patients. We flew in Weds afternoon, had the procedure done Thursday morning and flew back home at 4:00 in the afternoon.

We truly feel that if radiation or NA doesn't work, you can always have the surgery, but after the surgery it is very difficult if not impossible to have the NA.

08/09/2007 19:54
wach 

Administrator

08/09/2007 19:54
wach 

Administrator

NA story

Sandie, thank you for sharing this story with us! I am glad it, finally, worked out well for your husband. Educating the medical community takes time, furtunately we have the Internet and we patients can contribute and teach ourselves to some extent.

Your story reminded me that we have had on our German a picture of a hand with damaged skin due to severe contracture. We always wanted to include it on this web site as well and I have done that now. Maybe it looks familiar to you: http://www.dupuytren-online.info/morbus_dupuytren.html

Wolfgang

08/09/2007 20:31
Sandie1141 
08/09/2007 20:31
Sandie1141 
Re: Needle Aponeurotomy and Cortisone (Kenalog) Injections in Family Practice Journal July 1st 2007

Hi Wolfgang,

Yes, it does look familiar. In fact, my husband had to wait to use the splints until after the skin had healed. We had no idea the area was even infected.

I'm sorry that I have "dropped out" of the forum. We have been so happy with the outcome of the NA that we have moved on to other areas that we had put on hold. I do plan on being here on a regular basis in order to share my husband's experience and answer any questions we can.

Thank you so much for all the dedication and work you all do to keep the forum alive and strong. I hope I can be of help. Sandie

08/10/2007 20:29
Donald 
08/10/2007 20:29
Donald 
Re: Needle Aponeurotomy and Cortisone (Kenalog) Injections in Family Practice Journal July 1st 2007

Thank you Wolfgang for your reply of 08/06 giving website addresses for info on Kenalog. and thanks to those of you describing your personal experiences with injections. If you go on the websites dedicated to Kenalog side effects, it can get quite scary, particularly comments from users. The good news, however, is that I was unable to locate a user who had injections for Dupuytren.

The paper by Ketchum and Donahue (listed on the Dupuytren Society website) was quite informative and much more positive. It describes the results of injections on 63 patients. Here is the website to access the paper abstract (cost is $30 for a full copy)
http://www.ncbi.nlm.nih.gov/sites/entrez...pt=AbstractPlus
In that study, only 2 patients had major problems (flexor tendon rupture). In both cases, "the protocol was not followed by a 6-month respite after a series of 3 injections 6 weeks apart." So, the two problems might not have occurred if the correct protocol had been followed.

Nobody in this forum described an experience with a series of injections. I wonder if any of you have had such a treatment. Also, all the references I have read refer to treatment of nodules on the palm. What about a bump on one of the fingers, which I have (diagnosed as Dupuytren)?. I assume it is also a nodule but I am a little puzzled as I am not quite sure how it would develop into a chord (unless a chord can be generated in a finger without a chord in the palm).
Donald

08/11/2007 05:26
wach 

Administrator

08/11/2007 05:26
wach 

Administrator

Finding Kenalog posts

Donald, have you ever tried searching this forum for Kenalog posts? It's easy to do but the feature is somewhat hidden in this forum. That's how it goes:


  • Click on Search in the in the tool bar at the top of this page.
  • Enter Kenalog in the text box
  • Select "search in topics and answers" (comment: this label should rather read "search in titles and text")
  • Start the search


This will search the whole forum, inclucing the archive, and will bring about 60 results.

We ought to write a little user guide for this forum.

Wolfgang

Edited at 08/11/07 08:29

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procedure   triamcinolone   Dupuytren   dupuytren-online   Journal   specialist   acknowledging   Cortisone   misinformation   pt=AbstractPlus   husband   complications   Practice   Wolfgang   Kenalog   surgery   Aponeurotomy   investigating   treatment   Injections