My first choice is surgery. Mine was 11 years ago and still perfect. It just depends on the person. I didn't think surgery was that bad - no pain with great results. Everyone is different.

Thanks, Callie. I kind of lean towards the surgery, too. But, when we did that so many years ago, there were no other options, and I hate the idea of using surgery as a first choice. So, I'm going to try Xiaflex. But, with four cords, it's starting to look like a real, literal pain. I'll do the multi cord trial next month, but they only do two cords at a time. I'll see how that works out. Then make a future decision....... leaning towards surgery...... I think..... ....

Dave, thanks for your reassurance. It really helps. Although my surgery was a resounding success, you're right about all the baggage. I had it all. Full steam ahead to Xiaflex.......
~ Diane

Randy,

I had the same experience as hammer: after my surgery I got six new and quickly growing nodules outside the operated area, 3 of them even on the not operated hand. This happened within two months after my surgery and it must be related to it. My guess is that the healing process is not just local but, at least in part, a body wide response.

Wolfgang

Randy_H:

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Hammer,

I had the same experience. I waited for over a year before the contraction on my left hand was enough for surgery. But then after I had it, my right began to form the disease within months. While the timing seemed connected to me I could see no rational for it. We know that trauma can trigger Dups growth......but on another part of the body? What possible sympathetic system in the body could account for that?

zinkadoodle, is NA not available to you? I might take an hour or so but a good NA guy can do the whole hand in one session.

I wonder how may of us there are who read this forum have had the same experience?

You would assume that the out of control scar tissue reaction due to hand trauma would be only local. But the body's complexity is still beyond our comprehension.

It could be argued that what we've experienced is just coincidence, that we were going to have bilateral disease any way, and at the same time. But I'm not buying that. But if not, are nerves involved, blood at callie suggested or something else?

Well, you know me. This post would be incomplete without me suggesting that the least invasive procedure that has a chance to work should always be tried first in any surgical decision.