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New Cord
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03/05/2013 01:19
callie 
03/05/2013 01:19
callie 
Re: New Cord

I really think it is transferred in the blood and that would not make it inconsistent with injuries. It might be a response reaction that goes to the entire body. I would be interested in more information. I haven't seen it mentioned in any literature.

It would also be interesting to understand why certain parts of the body are receptors for Dupuytren's.

Edited 03/05/13 03:20

03/05/2013 09:01
wach 

Administrator

03/05/2013 09:01
wach 

Administrator

Re: New Cord

That's a misunderstanding, callie, at least if you are referring to my previous post. I wrote that the healing process might be in part a body wide reaction. The healing process includes scar building and pushes collagen production. This might trigger int growth previously dormant and invisible/not palpable Dupuytren's sites elsewhere. I don't believe that Dupuytren's is caused by some sort of infection transmitted through the blood circulation.

Wolfgang

callie:
So, is there any information that Dupuytren's is a disease that is transmitted through the circulation of the blood?

03/05/2013 10:44
zinkadoodle 
03/05/2013 10:44
zinkadoodle 
Re: New Cord

Hey all, sorry I haven't weighed in for a while, but I was busy. The good news - MY TAXES ARE DONE!! As for DC, not so much.

Interestingly enough, I opted not to go to the surgeon who did my left hand surgery over ten years ago, because, well, he's a surgeon, and I didn't want surgery, given that there are now other options. So, I opted to go to the Stony Brook Hand Clinic. Given that they are the "inventors" of Xiaflex, and are involved in a multi-location clinical trial for multi-cord Xiaflex use, I opted for the Xiaflex. And, that's the road I'm taking right now. I have since found out that my old surgeon actually does NA now, but I'm going to continue on this route. Next week I go for the study intake stuff, the baseline information they want, similar to any pre-surgery testing, then within two weeks, the Xiaflex injections. I just want this to be over with.

As for some of this other conversation here, as I've already posted, I had very successful surgery over ten years ago. It never kicked in any kind of other hand response or development of new cords. Life was good until about two years ago, when I started developing nodules on my right hand. Didn't think much of it, because there was no pain. And, I knew nothing about radiation therapy. I just kind of ignored them, until my fingers began to contract, about one year ago. My rheumatologist (I also have psoriatic arthritis, except without the psoriasis) kept trying to convince me to take care of what is now my contractures, but I just kept saying, "I'm not ready yet." Now that I have pronounced contractures and discernable hard cords, I am more than ready. What triggered it? Who the hell knows.

Interestingly, I also had a SEVERE case of adhesive capsulitis, frozen shoulder, in the late 1990s. That took months and months of severe pain and physical therapy, and eventually a trip to the operating room to resolve it. Pure misery. But, I'm now just learning that there is a connection between the two conditions. I now know both are considered to be hyperproliferative disorders. I guess it's all in my genes, although not necessarily in my blood. And how one condition may trigger another condition is a discussion that goes way over my brain, and for which books have been written. And, interestingly enough, as I mentioned above, I also have psoriatic arthritis, for which I take Enbrel injections twice a week. Without them, I'd likely be in a wheel chair about now. But, the reason I raise this is that I just recently learned that psoriasis, which I don't have, is also considered to be a hyperproliferative disorder. What that means to me is that arthritis is also considered to be an autoimmune disorder. So, is then DC also the result of an autoimmune response? Connection here? I just don't know, obviously.

03/10/2013 03:28
pia2some 
03/10/2013 03:28
pia2some 
Re: New Cord

I have SLE (lupus) and thyroid disease. Both of those are autoimmune diseases. I also have type 2 diabetes. There is now news saying that type 2 may be reclassified as an autoimmune disease. So you do have to wonder what the connection to all of it is.

~ dawn

03/10/2013 03:30
pia2some 
03/10/2013 03:30
pia2some 
Re: New Cord

I also found a new cord the other day. Mine seem to be popping up at an alarming rate. Cords and nodules. But this one is on the inner side of my right middle finger. My middle finger has been pulling sideways and now is almost on top of the ring finger. If I spread my fingers out, the middle finger and the ring finger have no space between them. It's because that cord running up the side of my middle finger is pulling it tightly toward the ring finger. Weird.

~ dawn

03/13/2013 18:55
zinkadoodle 
03/13/2013 18:55
zinkadoodle 
Re: New Cord

Well, amazingly enough, I just found another new one. This one is on the ring finger side of my middle finger, and it's actually more prominent than the one I just found on the ring finger side of my pinky. I think I also have one that runs up from the center of my palm to my index finger, but I'm not sure, although there doesn't seem to be a similar structure in my left hand. I dunno..... And to make matters worse, emotionally anyway, my doc just rescheduled my appointment again, this time to March 25. So, I think I am getting my Xiaflex injections the first week of April. I am having so much anxiety over this.

I am so hating this disease.

03/14/2013 13:37
hammer 
03/14/2013 13:37
hammer 
Re: New Cord

Fix one hand,it shows up in the other one,fix that one then it might show up in your feet.Im about do for a frozen shoulder or two!!!I might as well,be something different !!

03/14/2013 15:54
zinkadoodle 
03/14/2013 15:54
zinkadoodle 
Re: New Cord

hammer:
Fix one hand,it shows up in the other one,fix that one then it might show up in your feet.Im about do for a frozen shoulder or two!!!I might as well,be something different !!
You don't want frozen shoulder. Trust me. That's adhesions and PAIN. Excruciating, unrelenting pain. You can't move, drive, sleep, anything. Physical therapy is torture. I used to break out in a sweat on my way to PT, just thinking about the pain I subjected myself to 3X/week.

But, DC sucks big time, too, albeit without that severe pain, thank the good goddess..... ~Diane

03/14/2013 16:10
Randy_H 
03/14/2013 16:10
Randy_H 

Re: New Cord

The time to get treatment for frozen shoulder is ASAR. As Soon As you Realize you have it. It only get's worse and harder to treat. Lying on the bench having Hilga work me over, I would have gladly told her where the Weapons of Mass Destruction were to get her to stop. Unfortunately Saddam didn't tell me. Since it's not considered actual "torture" they should be using this instead of water boarding

Be sure to not skimp on your home workouts. Now my should is fine.

03/14/2013 17:32
callie 
03/14/2013 17:32
callie 
Re: New Cord

I have had frozen shoulder in each shoulder during the last three years. I couldn't raise my arm. Usually I found myself sleeping with my arm hanging over the side of the bed. Shoulder felt ok as long as it was hanging. They hurt real badly when I would forget for a split second and reach for something. I didn't go to therapy either time and at about nine months the shoulders got better and are now fine.

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Xiaflex   anti-inflammatory   therapy   rheumatologist   shoulder   manipulation   considered   Interestingly   treatment   information   Unfortunately   disease   multi-location   injections   hyperproliferative   autoimmune   self-administer   circulation   surgery   misunderstanding