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Newly diagnosed - seems overly aggressive HELP!
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06/18/2007 22:40
Robbi

not registered

06/18/2007 22:40
Robbi

not registered

Newly diagnosed - seems overly aggressive HELP!

4 weeks ago I noticed a small lump in the palm of my right hand. I knew immediately what is was as DC runs in my family tree - though I am the youngest/earliest onset. I went a well know local hand specialist and he confirmed it's DC. Now one month later I have gone from no contracture with one small node to 20 degree contracture and 3 nodes (1 larger.) Is it normally this aggressive? I asked my grandmother, who has DC, and hers took several years to get to the point I'm at.

I've read a lot about injections and I really believe that's the best for me - given my age (40). So how do I know when it's time? Where do I go? I'm in Texas but will travel anywhere I need to.

Also, is this in anyway autoimmune related?

TIA,

Robbi

History - Female, 40, with MS and Lupus

06/19/2007 15:49
CMurzda 
06/19/2007 15:49
CMurzda 
Re: Newly diagnosed - seems overly aggressive HELP!

Robbi,

There are a few options which you may take. If the disease has not progressed much you may try finding a doctor who will consider radiotherapy and admittedly in the U.S, it can be difficult but not impossible. Since you have contracture you may want to consider NA as a treatment. Since your nodules and cords are growing very quickly, surgery may be the best solution although I would suggest that you make this your last resort.

The web site below provides information on some doctors you can contact. There have been mixed results with injections and some on this forum have reported that they have had positive results.

http://www.dupuytren-online.info/needle_aponeurotomy.html

Hope this helps.

Chris

06/19/2007 17:08
rcross

not registered

06/19/2007 17:08
rcross

not registered

Re: Newly diagnosed - seems overly aggressive HELP!

Thanks for you reply Chris.

I'll look at radiation as an option. Will clinics in Canada treat me if I go there?

Robbi

06/20/2007 17:05
CMurzda 
06/20/2007 17:05
CMurzda 
Re: Newly diagnosed - seems overly aggressive HELP!

You will need to contact them as I have never personally been to a hospital in Canada. One thing to consider is that insurance might be a problem. You can also contact one of the Mayo Clinics in the US and they might consider the radiotherapy treatment. They do take most insurance policies.

I am in the process of tyring to find a local oncologist but may have to broaden my search area.

Hope this helps.

Chris

06/24/2007 01:38
mr.smithster 
06/24/2007 01:38
mr.smithster 
Re: Newly diagnosed - seems overly aggressive HELP!

hi, i just had the NA procedure, day 2 left hand, day 3 right hand(and typing with both). very successful. i had dr. kline in ontario, OR do mine. i believe he mentioned a lady dr. doing the radiation thing in boise, idaho. i am only 47, had reg surgery at 35, big mistake as i agressive type also. dup was back within 1 month after operation! mine seems to go in spurts. i went from 15 degrees to 90 in less then 6 months on one of my fingers, other cords/fingers took years. dup seems to be very unpredictable in its growth. from what i understand, your dup might be too advanced for radiation treatment, but you might want to email dr. kline some pics and see. when i had the NA done, some of the cords he did where in very early stages(0-10 degrees) and they seem to be almost gone! my major contractions went from up to 90 degrees to 0-10! the results are amazing. i coudnt be more happy. only took about 1 hour each hand, done on consecutive days. kline also does a steriod shot that can arrest/soften nodules which i also had done in some areas, although it takes 2-3 months to see results. good luck with what ever you decide.

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