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Personal experience
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12/13/2011 20:14
moondanc 
12/13/2011 20:14
moondanc 
Re: Personal experience

wach:
I am currently wearing the splint that is shown at the bottom of http://www.dupuytren-online.info/dupuytr...techniques.html. It's comfortable to wear as night splint but during the day it would be more convenient if it supported only my little and my ring finger. [snip]Generaly I would think that any specifically recommended period for wearing a splint after NA or enzyme injection is probably just a recommendation, not more. The best advice might be to put on the splint for a while whenever you feel the contracture is returning. A German member of our Society has been doing that for the last 5 years (after NA) and his finger is still straight.

Wolfgang

Thanks for posting this-- it's hard to tell from the pictures whether there is a stiffener all the way up the fingers--is there? I'd imagine there'd have to be. I think it's a worthwhile consideration to consider wearing a split indefinitely. I've been sick the last several weeks and haven't been wearing my split. I put it on last night and can noticed the difference immediately and that my fingers had contracted. I had been just about ready to go back to my PT and get the splint adjusted for a little more resistance because it had gotten loose between my fingers and the palm restraint and after not wearing it for several weeks--I'm right back to where I started right after NA.

When I get a chance I'll take a picture of my splint and post it just in case it helps anyone.
Diane

    12/14/2011 07:41
    wach 

    Administrator

    12/14/2011 07:41
    wach 

    Administrator

    Re: Personal experience

    Hi Diane, in the glove the white metal plate extends from pretty much the wrist to the finger ends of the glove. The plate is partially covered to hold it in place. The metal can be bent if you don't want a straight splint because you still have some residual contracture. I am finding that splint comfortable to wear at night. When I wear it during the day it is a annoying (specifically when using a mouse) that the middle finger is splinted although only my pinkie needs splinting. I am considering to saw and cut off the splint of the middle finger. But I am anyway reducing the daytime use gradually.

    Wolfgang

    moondanc:
    -- it's hard to tell from the pictures whether there is a stiffener all the way up the fingers--is there? I'd imagine there'd have to be. ... Diane

      12/14/2011 15:25
      LubaM. 
      12/14/2011 15:25
      LubaM. 
      Re: Personal experience

      Diane and Wolfgang,


      Thanks for your recent post on the splint. Wolfgang, the splint you are wearing and the picture posted looks more comfortable than the custom splint (made of molded material, and hard like a rock) made for me back in 2006 when I had hand therapy after my first NA.. Back then, I only used it for a few months, my contracture returned, I had a second NA in 2010 and I wore the same splint for a few months. I guess my mistake was not wearing it indefinitely... or maybe I am just prone to recurrences and its just me !! It is also possible that I stopped wearing it because it was so stiff, and the minute the contracture re-started the bent joint was hitting the hard material and made it impossible to wear, yours looks soft and perhaps easier to wear for a long time.

      I believe now that splints should be worn forever ! If I ever have another NA, or Xiaflex on that finger I will definitely look into the splint you posted.

        12/15/2011 04:11
        flojo 
        12/15/2011 04:11
        flojo 
        Re: Personal experience

        Luba,

        My splint is of molded material (plastic?), too. I went back for an adjustment twice. Need to go back for another one. He heated the plastic and bent it to adjust. It is hard and flat but it works. Maybe you could get yours adjusted.

        Still gonna get pic of mine posted before 2012.

          12/15/2011 16:03
          LubaM. 
          12/15/2011 16:03
          LubaM. 
          Re: Personal experience

          flojo:
          Luba,

          My splint is of molded material (plastic?), too. I went back for an adjustment twice. Need to go back for another one. He heated the plastic and bent it to adjust. It is hard and flat but it works. Maybe you could get yours adjusted.

          Still gonna get pic of mine posted before 2012.
          Flora,
          I should have thought of adjusting the splint when my contracture was just returning on the finger...now my splint is "beyond" adjustment, because my PIP is back to close to 90 degree contracture (like before NA), also complicated with a boutonniere contracture of the DIP joint. The lucky thing for me, is that the small finger has been exactly the same for the last last year... the finger is "not a pretty sight" but the rest of the hand is flat and totally functional...so I am leaving it alone... for now !

          Definitely something to consider in the future...thanks.

          LubaM.

            12/15/2011 17:41
            wach 

            Administrator

            12/15/2011 17:41
            wach 

            Administrator

            Re: Personal experience

            May I chime in? After my enzyme injection my hand was so swollen that there was no way to fit it into my glove splint. I tried a plastic splint that I had from previous times but that was far too tight, too. As it was made of thermoplastic I held it into hot water and then opened it until my thick hand fitted into it. I then cooled it under cold water and that splint worked fine for the first week, until my hand was normal again and I started to wear the glove.

            Wolfgang

              12/16/2011 02:09
              hammer 
              12/16/2011 02:09
              hammer 
              Re: Personal experience

              Wolfgang,the glove looks pretty cool.Did u measure ur hand and if so how close was the fit?Thanks Dave

                12/16/2011 07:56
                wach 

                Administrator

                12/16/2011 07:56
                wach 

                Administrator

                Re: Personal experience

                That glove comes in, I believe, six sizes. What you do is you measure the circumference of your hand, just below the MCP joints, and my doctor selected the right size.

                Wolfgang

                hammer:
                Wolfgang,the glove looks pretty cool.Did u measure ur hand and if so how close was the fit?Thanks Dave

                  12/23/2011 12:48
                  IanHawkridge 
                  12/23/2011 12:48
                  IanHawkridge 
                  Re: Personal experience

                  Update on my Reishi mushroom extract experience: The minimum recommended daily dose (which I had been taking for several weeks) seemed to maintain the condition of my Dupuytren`s (and Garrod`s) rather than improve it. I have reverted to taking the maximum dose, and significant progress appears to have been resumed.
                  Wishing you a joyful Christmas, and a healthy and happy New Year.

                    03/11/2012 22:49
                    drewski 
                    03/11/2012 22:49
                    drewski 
                    Re: Personal experience

                    I read all these about dupuytren in the hands. i am a 56 year old female with it in both feet.The left foot is worse.I walk on my feet 12 hrs a day and it feels like I'm walking on marbles!! the back of my ankle burns.it has tripled in size in 3 mths! The dr. said he could do a partial fasciectomy.I have to work and I am scared!!! anyone havethis in your foot? Please reply! I would like to know if surgery is succesful,my toes are not yet involved. Thx!!!

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