Hi drewski,

welcome to our forum! You can find a lot of experience and support here and additional info on the web site. We have a special board for the foot disease which usually goes under the name of "Ledderhose disease". Maybe you will get the most responses if you post your questions there http://www.dupuytren-online.info/Forum_E...se/index-1.html. It might also be worth reading those posts.

Many people with Dupuytren's also suffer from Ledderhose but some people suffer from Ledderhose without any signs of Dupuytren's (well at least initially). You can find information on Ledderhose and its treatment on this web site: sin the above menu elect "Disease" and then "Ledderhose Disease". Surgery is an option but it might require long recovery and, worse, the disease might come back quickly.

Wolfgang

drewski:

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I read all these about dupuytren in the hands. i am a 56 year old female with it in both feet.The left foot is worse.I walk on my feet 12 hrs a day and it feels like I'm walking on marbles!! the back of my ankle burns.it has tripled in size in 3 mths! The dr. said he could do a partial fasciectomy.I have to work and I am scared!!! anyone havethis in your foot? Please reply! I would like to know if surgery is succesful,my toes are not yet involved. Thx!!!

I suggest Radiation Treatment. It worked for me and many others on the Forum to stop or slow the progression of Dupuytren's. Sounds like your Dupuytren's is active and you are at the right stage for RT to be effective - early, nodules, little or no contracture yet.

Read all about "Radiotherapy" in the Treatment drop down menu above. Clinics are listed. None Philly, but I remember recommendations in the Forum for U of VA in Richmond and one doc in Charlotte, NC. You can use "Search forum" in the menus on the left and put in something like RT or radiation treatment, RT clinics, or RT doctors.

You came to the right place. You'll find lots of information here. Feel free to post all of your questions. People will help.

From what I am hearing, people have been happy with the radiation therapy. I had two xyaflex injections, and here I am less than a year later with the pinky worse than it has ever been. I will be having the traditional surgery on my left hand in the fall. According to my doctor, I've no other options. I did try the reishi---and several bottles later, I have to concede that in my case it didn't help. I am not looking forward to the surgery. Can any of you out there who have had that fill me in a bit on what to expect? The doctor tells me that it's a 6-8 week recovery period (he's cleaning up three fingers---the thumb and pointer will be left alone). He also tells me that PT will be necessary, but that the results are good. My right hand has a very distinctive cord through the palm and ring finger, but the immediate concern in the left hand. I'm getting cramping in both hands---doc wanted me to have nerve tests---I refused---been there, done that, and don't want to go through it again.

Thanks.......
Marilyn

marigail:

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I will be having the traditional surgery on my left hand in the fall. According to my doctor, I've no other options.

Edited 06/26/12 00:59

Marilyn,

a surgery of three fingers will be a major surgery and it will probably cut open a major part of your palm. It might take a while until this will heal and you shouldn't expect your hand after surgery to be the same as when it was still healthy. The hand is a very delicate structure and the new tissue will be scar tissue, not the normal, flexible and sensitive connective tissue. Besides that there might be other side effects http://www.dupuytren-online.info/dupuytr...ideeffects.html .

Getting a second opinion would certainly make sense and if you have to have surgery it ought to be done by an expert who is doing several Dupuytren's surgery every week. Nearly every surgeon can operate Dupuytren's but the outcome, including side effects and recurrence, strongly depends on the expertise of the surgeon.

Just curious because I had Xiaflex in my pinkie myself: did you wear a night splint after the manipulation and if so for how long?

Wolfgang

marigail:

---

From what I am hearing, people have been happy with the radiation therapy. I had two xyaflex injections, and here I am less than a year later with the pinky worse than it has ever been. I will be having the traditional surgery on my left hand in the fall. According to my doctor, I've no other options. I did try the reishi---and several bottles later, I have to concede that in my case it didn't help. I am not looking forward to the surgery. Can any of you out there who have had that fill me in a bit on what to expect? The doctor tells me that it's a 6-8 week recovery period (he's cleaning up three fingers---the thumb and pointer will be left alone). He also tells me that PT will be necessary, but that the results are good. My right hand has a very distinctive cord through the palm and ring finger, but the immediate concern in the left hand. I'm getting cramping in both hands---doc wanted me to have nerve tests---I refused---been there, done that, and don't want to go through it again.

Thanks.......
Marilyn

Edited 06/26/12 08:48