| Lost password
425 users onlineYou are not loggend in.  Login
Question of authenticity of biopsy and Intro
 1 2 3 4
 1 2 3 4
01/31/2013 20:42
Danch 
01/31/2013 20:42
Danch 
Re: Question of authenticity of biopsy and Intro

Randy_H:
Danch,

Treatment is typically confined to the reduction of contractions of the fingers that can in time render the hand more and more useless. So essentially other than “releasing” a cord that is causing a finger to bend inward toward the palm, there is no “treatment” that I know of other than easing pain with Cortisone. I have found that to be effective.

The bottom line here is that Dups can be debilitating to the hand. Short of that it must be looked at as a sometimes painful inconvince by comparison. If your fingers are not contracting count yourself blessed and don’t even give it another thought…..except for possible RT.

Some Tips: Be kind to your hands. As an example, lets say I’ve just been to the best concert I’ve ever seen and now the performer(s) are being called up for a third standing ovation and I’m going nuts. I want to express my exuberance. But….I stopped clapping after the first standing ovation. Not worth it. Scream, yell, jump all around. Don’t make your hands hurt. Don’t make them ache. Just Don’t. You do so at the risk of triggering more growth of Dups tissue. Really.

Next: Don’t have surgery. Leave it the heck alone. What did you gain?

I know some here might think that extreme. But, I know exactly how I got this party started and I’m about to invite any more guests.

Thanks again, Randy.

Indeed, I do believe their to be some correlation between my frozen shoulder and my Dup. I wish I could be more kind to my hands. Unfortunately... I type A LOT for work and school (web development and design)... and I do like to play the guitar, piano and other instruments. So.... I guess I am currently lucky no contraction has happened. But I would like to avoid the potential debilitation.

I wondered if surgery would have "ticked" off the buggers, so they started growing. At least thats a theory. Just seems so perfectly timed, a month after the operation... they start appearing. And my hands hurt nearly all the time now. It may be more than just Dup... sigh.

Soooo... how did you "get the party started"? Out of curiosity.

Thanks for your insight, Randy. It does help.

02/01/2013 07:09
Randy_H 
02/01/2013 07:09
Randy_H 

Re: Question of authenticity of biopsy and Intro

Danch,

Surgery is trauma. Trauma can aggravate Dups. Your theory is reasonable. When the old BioS From had a lot of people talking abut their current surgerys (we don't hear abut people's current surgery too much any more, do we.) Many felt that the surgery itself triggered more disease. That was their feeling. However, I know of no study that links the two so that was controversial. But during most Dups OS the surgeon will open the hand looking to remove all the disease tissue he can find. "Clean it out" my surgeon said. Why do they do that? Any one correct me if I'm wrong, but I believe the idea is that if they leave any diseased tissue behind they know the trauma from the surgery itself could trigger it, whereas before it was just slow growing.

I am a semi-pro drummer. I was asked at one point to switch to congas to have another drummer play 50% of the time. I had no training on congas and I hit them way too hard to the point that the nails on my fingers caused beading on other fingers. Some conga players actually tape their fingers. I would come away with my hands hurting and I did wonder if I could hurt them doing this. I believe I got my answer months late.

I don't play congas any more.

I'm not saying to baby our hands. I will play a small hand drum from time to time but lightly and not for too long. Not so they hurt at all. Not close to clapping like an idiot for 3 encores and your hands do hurt. Buy hey, we need to go about our lives. Just don't do anything that makes them hurt. Pain is there for a reason. If you have Dups you need to listen to you hands.

02/01/2013 14:50
callie 
02/01/2013 14:50
callie 
Re: Question of authenticity of biopsy and Intro

You said, "Any one correct me if I'm wrong, but I believe the idea is that if they leave any diseased tissue behind they know the trauma from the surgery itself could trigger it, whereas before it was just slow growing."

A different perspective is "why would any surgeon leave diseased tissue"? It doesn't matter if it is surgery or any other affliction. Does a doctor leave some bacteria in an infection, or do they try to eliminate the bacteria causing the infection? Do you pull out a whole sliver, or do you break it in half and call it good? It just makes common sense to remove as much of the diseased tissue as possible. With the micro surgery techniques now in use this is a better possibility than in previous generations of Dupuytren's surgery.

My surgeon attempted to remove all diseased tissue. Eleven years later I have zero negative effects from having had Dupuytren's in that hand.

I do completely agree that misuse of a person's hands can stimulate Dupuytren's activity.

Edited 02/01/13 16:51

02/01/2013 17:56
Randy_H 
02/01/2013 17:56
Randy_H 

Re: Question of authenticity of biopsy and Intro

My contraction was of the little finger only. There were no other problems and no lumps or bumps on my palm. However, I woke up from OS to discover that my hand had been opened up from the right side at the pinkie all the way to my first finger on the left. So my palm was completely opened up so he could look all through it for diseased tissue though none was discernable before surgery.

I asked him about my chance of recurrence and that's when he sad that he had "cleaned me out pretty good" so I should be OK.. So with OS, if you are going to go in there you have to go all the way and look everywhere for problems. With NA you just deal with the contraction and them leave well enough alone.

Shortly after surgery I developed a slight web contraction from my thumb that had not been there before. I was not upset that he had not opened up my palm at the base of my thumb. That would have only made my flair reaction to the OS worse.

I've had no recurrence after NA. And should that happen I'll know what to do. After I showed the correction Eaton had done on my other hand 2 years later he was amazed there wasn't nerve damage and that the correction was as good as it was. (He had strictly warned me against doing NA previously) He then recommended that I avoid OS at all costs and just do NA.

Funny, I was thinking the same thing.

I guess he knew a bad case when he saw one. Yes, I took the OS bullet and the Doc knew NA was my only way forward. No more trauma from surgery.

02/02/2013 03:09
callie 
02/02/2013 03:09
callie 
Re: Question of authenticity of biopsy and Intro

That is amazing. I have never heard of what you described. You said your surgeon was "pretty good", now I wonder? That is not normal. No wonder you had problems.

You said, "My contraction was of the little finger only. There were no other problems and no lumps or bumps on my palm. However, I woke up from OS to discover that my hand had been opened up from the right side at the pinkie all the way to my first finger on the left. So my palm was completely opened up so he could look all through it for diseased tissue though none was discernable before surgery. "

You said, "So with OS, if you are going to go in there you have to go all the way and look everywhere for problems."

That is simply not normal. There must have been more to the story, or your super credentialed surgeon was doing his first surgery for Dupuytren's.

I had over 90 degrees contracture in only my little finger with a cord down my palm. I had the standard (textbook) zig-zag limited fasciectomy with 29 stitches from the DIP joint to the base of my palm. Nothing going across the palm like you mentioned.

02/02/2013 05:59
Danch 
02/02/2013 05:59
Danch 
Re: Question of authenticity of biopsy and Intro

Randy_H:
Danch,

Surgery is trauma. Trauma can aggravate Dups. Your theory is reasonable. When the old BioS From had a lot of people talking abut their current surgerys (we don't hear abut people's current surgery too much any more, do we.) Many felt that the surgery itself triggered more disease. That was their feeling. However, I know of no study that links the two so that was controversial. But during most Dups OS the surgeon will open the hand looking to remove all the disease tissue he can find. "Clean it out" my surgeon said. Why do they do that? Any one correct me if I'm wrong, but I believe the idea is that if they leave any diseased tissue behind they know the trauma from the surgery itself could trigger it, whereas before it was just slow growing.

I am a semi-pro drummer. I was asked at one point to switch to congas to have another drummer play 50% of the time. I had no training on congas and I hit them way too hard to the point that the nails on my fingers caused beading on other fingers. Some conga players actually tape their fingers. I would come away with my hands hurting and I did wonder if I could hurt them doing this. I believe I got my answer months late.

I don't play congas any more.

I'm not saying to baby our hands. I will play a small hand drum from time to time but lightly and not for too long. Not so they hurt at all. Not close to clapping like an idiot for 3 encores and your hands do hurt. Buy hey, we need to go about our lives. Just don't do anything that makes them hurt. Pain is there for a reason. If you have Dups you need to listen to you hands.

Randy,

Your input has made me feel better, despite later comments from others (of which I do appreciate as well). Being a musician all my life, hearing that I had Dups nearly devastated me for days, weeks.. well.. now years. Yes, of course, I could have worse diseases

Since all of this is basically hypothesis, no one really knows the exact cause (or has that changed???), from my understanding, er have many theories of why it happens and how to "cure" it. It seems the medical community knows certain things enough. But I dont hold faith in the ever escalating profit machine. Maybe this is beyond the scope of this forum... to question our ever beholden "gods" of supposed medical knowledge. In fact, I have had nothing but problems with Doctors. And now surgeons. TO which I have come to think there are plausible explanations of why one has this problem with no cure, but profit hold back truth. Eh.. I hope not to be banned from this site for saying such of the medical community. I believe there are true heats in the field, but it seems so oft not. Maybe I am just angsty because the way I was indeed treated. "We dont know about it enough, so go away", is the message I was sent. And that is bad practice. I dont care if its "just dupuytrens". I will not settle for that.

I digress. I believe, hypothetically speaking, that this operation (after I signed the release of liability contract - sheesh, have we really come to that?) may have caused a domino effect for whatever disease it may be. It could be that my immune system kicked in, and therefore, certain chemicals where shot to my hands to circumvent the "attack".. which may be triggered by inherent genes.

I dont know. Its fascinating to me, yet very disturbing. How this has all been handled (Gosh, no pun intended!) in my case. I seem to live in an area where the medical community is banking on only certain ailments, and not the whole picture.

And Randy, I have played congas too. And other hand drums, like the darbuka, djembe, etc. YEAH... those ARE hard on ones hands. Now... I could not imagine playing them, without "normal" pain. But crying through playing my guitar, both because of the pain, and now knowing my problems, is bitter-sweet.

Anyhow. I dont know what else to say. To some it may not be so devastating a thought. TO me, in this moment, its pretty damn disturbing. :(

02/02/2013 06:14
Danch 
02/02/2013 06:14
Danch 
Re: Question of authenticity of biopsy and Intro


    OMG.... the influx of recent information has me near tears.

    Am I just sensitive?

    I .. I wil have to respond tomorrow or soon there after. To all three respondents. Thank you.

    I have much info digestion to take up....

    I.. I had no idea it could be that bad. my god. I dont want surgery. Id much assume go to be buried in the ground by a desert healer shaman, who then stomps on my hands and than heals me. Oh for frackin' sake.

    But... oh .... no.

    I dont know.

    :cry:

02/02/2013 07:42
Randy_H 
02/02/2013 07:42
Randy_H 

Re: Question of authenticity of biopsy and Intro

Danch, my man. Dial it down a bit.......You will be ok.

Look, you don't need surgery. Not now, and in all probability never. An in the very small chance you ever did, don't read my case as normal. I'm the outlier. 99% of people doing OS for the first time do better than I. That's not to say I'd ever advise OS unless NA and/or Xiaflex were not effective (almost never).

So, no Shamans, all right? (though some thought Eaton was one for a while :)

I saw a video of Dave Matthews' drummer wearing golf gloves while playing. Went out an bought a lefty and now the Dups surgery has no effect on my playing at all. Look, I freaked out too, OK? It's normal because you don't know what might happen.

If you want to do something, look into RT. Otherwise, don't fret and just hang out with us.

02/05/2013 00:49
Randy_H 
02/05/2013 00:49
Randy_H 

Re: Question of authenticity of biopsy and Intro

callie:

You really don't become president of the American Society for Surgery of the Hand for nothing. My surgeon was considered the best on the West Coast and, by many, nationally. He was all that.

ASSH: http://www.assh.org/Public/Pages/default.aspx

And what really amazed me was the apparent awe and reverence the other CHS I've met had for him. That included Eaton and his fellow practitioner. What can you see in a scar, really? "Sure, have a look."

Now, let me say this. I said "though none was discernible before surgery." The more precise statement would be "though none was discernible to a non-professional before surgery." It’s possible that he detected something under the skin I and others were unaware of. I'll never know. The problem was the “Open Palm” or McCahs where you don’t stitch the patient up but let the wound heal naturally. This increase the possibility of a “flair reaction” in some. I was one. As I’ve said, he stopped doing that after number of his patients had bad recoveries.

Knowing the audience and respect this man had in the CHS community I took the opportunity to try and "Turn" him, i.e.: get him to buy into NA. Before I went to Eaton I made an unnecessary appointment just to show him the new PIP contracture on my other hand. When I told him my plan I got the usual misinformation about NA. In those days they were all misinformed so that’s no rap on him. After the NA I once again paid for an audience to show him the Before and After. He eventually went to observe Eaton but never practiced NA himself.

He actually headed up one of the test sites for Xiaflex. I would have participated in it. He wanted to recruit me. Unfortunately the negations with Auxillium over money held up the deal for a few years so I had OS not knowing about NA. (But would I have flown to Paris?) In the end he helped get Xiaflex approved.

I happened to venture on to the ASSH site and saw something that made my jaw drop, and it will for everyone one who was around the old Bios Forum:

"What are the treatment options for Dupuytren’s disease?
In mild cases, especially if hand function is not affected, only observation is needed. For more severe cases, various treatment options are available in order to straighten the finger(s). These options may include collagenase injection, needle aponeurotomy or open surgery."

'Bout fell off my chair. Did they just say NA? Hats off to Eaton who in my mind was the point-man for every scrap of legitimacy NA now has. 8 years ago the idea that I could post that line was laughable.
Really callie, This guy was “The Man”. Kind’a still is. Been there, did that.

02/05/2013 03:58
callie 
02/05/2013 03:58
callie 
Re: Question of authenticity of biopsy and Intro

Randy,

You said (I believe) that you had a 45 degree contracture of only the little finger. Everything I have read pointedly states that the McCash method should primarily be considered for multiple contractures and severe cases. Your situation as you described is not considered generally for using the McCash method. There are about 10 pages describing the McCash method in Tubiana's book.

This is what is surprising to me, almost every textbook concerning surgery for Dupuytren's agrees with Tubiana, "The author(Tubiana) agrees with Schneider(1991) who, after performing many open palm operations, has restricted its indications to multiple and severe contractures of the MP joints that, when released, would leave a deficit in palmer skin for closure."(Dupuytren's Disease, Tubiana, pps. 184-185)

"This technique should therefore not be regarded as the standard procedure for Dupuytren's disease. It is certainly not suited for uncooperative patients, who would not be able to cope with the postoperative regimen."

"It is not best indicated in single ray lesions, where closed techniques will lead to a faster result."

Also, from Eaton:

"This study of the McCash open palm technique confirms that the rates of complications (21%) and recurrence (33% at 2 1/2 years) remain issues even the hands of experienced surgeons:" http://www.dupuytrenfoundation.org/DupPDFs/1994_Cools.pdf
POSTED BY EATON.MD AT 4:23 AM

 1 2 3 4
 1 2 3 4
something   surgeon   “treatment”   dupuytrens   dupuytrenfoundation   surgery   possible   However   microscope…”   Question   Don’t   shoulder   authenticity   non-professional   diseased   contraction   believe   fingers   Dupuytren   disease