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Side-effects of radiation
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06/05/2012 06:59
spanishbuddha 

Administrator

06/05/2012 06:59
spanishbuddha 

Administrator

Re: Side-effects of radiation

switcombe:
So far, my skin doesn't seem to be significantly drier, but it does seem to be thinner and more fragile, like there's not as much subcutaneous fat. My palm appears to be more cupped. Maybe it's just my imagination, but it does cause me to be somewhat fearful of my second course of radiation.
I photograph my hands monthly. I recommend you do this.

After I had RT I was certain there was a reduction in nodules and cords, but the photographic record showed it was just wishful thinking.

06/05/2012 08:54
Cyclist 
06/05/2012 08:54
Cyclist 

Re: Side-effects of radiation

Hi SB
Do you think maybe your hands felt better and that's why you had the wishful thinking? I know my feet (though still not 'normal') feel a lot better now, despite no significant shrinkage.
Cheers
Di

spanishbuddha:
switcombe:
So far, my skin doesn't seem to be significantly drier, but it does seem to be thinner and more fragile, like there's not as much subcutaneous fat. My palm appears to be more cupped. Maybe it's just my imagination, but it does cause me to be somewhat fearful of my second course of radiation.
I photograph my hands monthly. I recommend you do this.

After I had RT I was certain there was a reduction in nodules and cords, but the photographic record showed it was just wishful thinking.

06/05/2012 11:29
spanishbuddha 

Administrator

06/05/2012 11:29
spanishbuddha 

Administrator

Re: Side-effects of radiation

Cyclist:
Hi SB
Do you think maybe your hands felt better and that's why you had the wishful thinking? I know my feet (though still not 'normal') feel a lot better now, despite no significant shrinkage.
Cheers
Di

spanishbuddha:
switcombe:
So far, my skin doesn't seem to be significantly drier, but it does seem to be thinner and more fragile, like there's not as much subcutaneous fat. My palm appears to be more cupped. Maybe it's just my imagination, but it does cause me to be somewhat fearful of my second course of radiation.
I photograph my hands monthly. I recommend you do this.

After I had RT I was certain there was a reduction in nodules and cords, but the photographic record showed it was just wishful thinking.

Yes, for a while the symptoms I had been experiencing, tingles, aches, cramps were reduced and I would seek for a physical reduction.

Take today for example. I'm sure the nodules. cords feel softer. Maybe they do. My hand also has no funny sensations. But on another day my hand will be sore and perhaps I'll be thinking the worse again about the nodules and cords.

It is one year this week since my RT, so it's difficult to say if it has been successful. My objective was to delay contracture, if it would occur, and since I have no contracture I'm glad that I had the treatment. Was it the RT though? Who knows and I do still have occasional pain, cramps, aches, tingles etc.

06/05/2012 12:31
switcombe 
06/05/2012 12:31
switcombe 
Re: Side-effects of radiation

spanishbuddha:
It is one year this week since my RT, so it's difficult to say if it has been successful. My objective was to delay contracture, if it would occur, and since I have no contracture I'm glad that I had the treatment. Was it the RT though? Who knows and I do still have occasional pain, cramps, aches, tingles etc.
Do you find that the pain is related your activity level? How many minutes a day do you play the keyboard? I find that the cords in my thumb web swell in relation to my hand usage. I play the piano approximately 30-60 minutes a day.

06/05/2012 13:08
Cyclist 
06/05/2012 13:08
Cyclist 

Re: Side-effects of radiation

Hi again SB
I understand.. today my foot nodules are really soft and other days they're raised and swollen again and sometimes I dread the worst too. I actually dreamt that I looked at my feet and there were nodules right down the length of both feet, which was horrible and so real that I woke up really disappointed!! Several factors seem to contribute to the swelling including stress, lack of sleep or too much time standing or walking (or when I'm reckless enough to run on them, which happens sometimes after too many 'good' days). Have you noticed any patterns with your good or your bad days?
Overall, I'm satisfied that the condition has stabilised.
All the best
Di

spanishbuddha:
Cyclist:
Hi SB
Do you think maybe your hands felt better and that's why you had the wishful thinking? I know my feet (though still not 'normal') feel a lot better now, despite no significant shrinkage.
Cheers
Di

spanishbuddha:
switcombe:
So far, my skin doesn't seem to be significantly drier, but it does seem to be thinner and more fragile, like there's not as much subcutaneous fat. My palm appears to be more cupped. Maybe it's just my imagination, but it does cause me to be somewhat fearful of my second course of radiation.
I photograph my hands monthly. I recommend you do this.

After I had RT I was certain there was a reduction in nodules and cords, but the photographic record showed it was just wishful thinking.

Yes, for a while the symptoms I had been experiencing, tingles, aches, cramps were reduced and I would seek for a physical reduction.

Take today for example. I'm sure the nodules. cords feel softer. Maybe they do. My hand also has no funny sensations. But on another day my hand will be sore and perhaps I'll be thinking the worse again about the nodules and cords.

It is one year this week since my RT, so it's difficult to say if it has been successful. My objective was to delay contracture, if it would occur, and since I have no contracture I'm glad that I had the treatment. Was it the RT though? Who knows and I do still have occasional pain, cramps, aches, tingles etc.


Edited 06/05/12 16:11

06/05/2012 13:50
lori 
06/05/2012 13:50
lori 
Re: Side-effects of radiation

I know that direct usage affects my hand. After cleaning the gutters my hand ached and still does. Last night I used a pain cream for the first time in about a year. I don't think the DD has returned, I just think I over did my hand (not that it hasn't crossed my mind several times). When I over use my hand the cord is more prominent, it aches and I can not crasp things easily. The skin is dry today. I believe what did it was lifting the ladder, gripping the ladder and having the weight of the ladder pulling on that hand. Other than this no side affects from RT other than a little dry skin.

Lori

06/05/2012 14:10
spanishbuddha 

Administrator

06/05/2012 14:10
spanishbuddha 

Administrator

Re: Side-effects of radiation

switcombe:
spanishbuddha:
It is one year this week since my RT, so it's difficult to say if it has been successful. My objective was to delay contracture, if it would occur, and since I have no contracture I'm glad that I had the treatment. Was it the RT though? Who knows and I do still have occasional pain, cramps, aches, tingles etc.
Do you find that the pain is related your activity level? How many minutes a day do you play the keyboard? I find that the cords in my thumb web swell in relation to my hand usage. I play the piano approximately 30-60 minutes a day.
If I get the chance I will practice piano 1-2 hours per day. I don't really think that makes my DD sore (I have it in the palm across MCP joint), just finger joints sometimes. But, you are right, other use of the hand such as plumbing (nightmare) or even gardening can make the hand very sore. As a dad to four (grown up) girls I'm close to telling them to call a plumber for help in future.

To contradict this: I also play tennis, but stopped at the end of last year for 3 months, and a nodule sprang up in my good non-DD racquet holding hand. It was immediately apparent when I resumed tennis, was obtrusive rubbing on the handle, and sore. But now nearly six months later, after playing tennis 2-3 times a week, the nodule has nearly gone - 'massaged' away by the racquet it seems.

Edited 06/05/12 17:12

06/05/2012 14:35
switcombe 
06/05/2012 14:35
switcombe 
Re: Side-effects of radiation

spanishbuddha:
To contradict this: I also play tennis, but stopped at the end of last year for 3 months, and a nodule sprang up in my good non-DD racquet holding hand. It was immediately apparent when I resumed tennis, was obtrusive rubbing on the handle, and sore. But now nearly six months later, after playing tennis 2-3 times a week, the nodule has nearly gone - 'massaged' away by the racquet it seems.
Very interesting, maybe I should take up table tennis again.

06/05/2012 18:30
lori 
06/05/2012 18:30
lori 
Re: Side-effects of radiation

I understand about the plumbing. I had to replace 2 faucets. Gripping the wrench about made me want to permanently shut off the sink. It was that motion of gripping combined with the tightening of my hand that about did me in. I might not call a plumber in the future but I am pretty certain the gutters will be cleaned by someone else next year. 2 hours of work cleaning the gutters is not worth 4 days of pain.

Lori

06/05/2012 18:55
flojo 
06/05/2012 18:55
flojo 
Re: Side-effects of radiation

Maddie,
My hand cupped, too, and that was basically what my contracture was - not in the fingers but cupping in and across my palm from thumb to pinky. RT slowed that down. The cords cause the cupping/contracture and RT doesn't make the cords go away. RT stopped the nodules from forming and cords often form from nodules.

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