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Side-effects of radiation
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06/05/2012 19:47
flojo 
06/05/2012 19:47
flojo 
Re: Side-effects of radiation

I THINK I noticed that my hand ached when I went for over a week without my night splint. It even ached up into my wrist and arm. I hadn't noticed it before and it hasn't ached again. I'm now alert to watching for patterns, but I'm not going to deliberately not wear my night splint to see if my hand will start aching. Anything like this that we can see patterns, maybe it will help us to develop treatment plans or ways to beat back DD.

I am positive that RT stopped progression of my DD and that was my goal. No new nodules have formed in the irradiated area, cords continue to tighten across my palm but it took about 2 years for it to tighten/contract after RT the same amount as it did the 4 months before RT. I'll take that. What drove me nuts was the crawly sensations just about all of the time. After RT, no more of that.

I can open most plastic water bottles now and I couldn't before RT. (Note: I almost use plastic water bottles because of the pollution it causes.) While my grip has improved, I'm sure it will never be as strong as it was before DD. Just like my hand will never be without the little puckers and bumps.

My only pain has been the slight aches and each time a new nodule forms, the first thing I noticed is a little soreness. Now I am able to think, "Oh, a new nodule is introducing itself." It stops being sore within about a week.

06/05/2012 21:50
Maddie 
06/05/2012 21:50
Maddie 
Re: Side-effects of radiation

mharrel:
Maddie--
I don't know where you are, but where did you get your night splint? I live in the US but am in France for a while and would like to try the splint.




I got a prescription for a custom night splint from my hand surgeon, who is Dr. Eaton in Florida. He said I cou ld take the prescription to any certified hand therapist to fit and make the splint. I live in the Washington DC area, so I found a local hand therapist to do it.

To my surprise, they were able to make it right in the office and I left with it that day. Very easy, and covered by insrance.

I really love the splint - it's not the most glamorous bedtime attire, but it is very comfortable, and actuaaly seems to have reduced my contracture a bit. The hand therapist measured it at 35 degrees, and now it is down to 20-30 degrees depending on the time of day. (It is best in the morning after I've worn the splint all night, and gets worse as the day goes on.) Before I started wearing the splint, my contracture had been gradually worsening.

Also, as others have mentioned, I had intermittent pain and cramping in the hand before wearing the splint. With the splint, that is gone.

Maddie

06/05/2012 22:56
callie 
06/05/2012 22:56
callie 
Re: Side-effects of radiation

The splint will not stop contraction.

06/06/2012 00:18
GaryBall 
06/06/2012 00:18
GaryBall 
Re: Side-effects of radiation

Also, as others have mentioned, I had intermittent pain and cramping in the hand before wearing the splint. With the splint, that is gone.

Maddie

That's great maddie.......it would seem logical to me that a night splint could help stop progression of contracture.......after all.....if most ledderhose patients do nt have contracture because the digits spend a significant time in shoes thus keeping them straight.....why should nt the same apply to dups using a night splint.......

Good luck

Gazza

06/06/2012 03:37
flojo 
06/06/2012 03:37
flojo 
Re: Side-effects of radiation

After NA last July, I got a prescription for a night splint from Dr. Denkler. It was custom made by a local prosthetic office. He was excellent. Medicare paid for it and the prostheticist said it was because it prevents contracture.

My experience was that by the time I got it, my hand was getting tighter and it really stretched my hand quite tightly at first. After I wore it a couple of weeks, I realized that it wasn't tight on my hand anymore. I went back twice to have it adjusted. One time to tweak the way it felt on my little finger. The second time was to get it bent backwards rather than flat to stretch my naturally hyperextended fingers. The flat splint would be fine for most people. He was more than happy to make the adjustments.

I recently realized that my hyperextension is an advantage with DD. I also have to make sure that when they measure the degree of contracture, they need to calculate the 5-10 degrees of hyperextension, because if my fingers lie flat, there is contracture.

I now have pictures of my splint on my computer and in an email. I'm getting closer to getting them posted on this site.

06/06/2012 06:13
wach 

Administrator

06/06/2012 06:13
wach 

Administrator

Re: Side-effects of radiation

But it might delay it. It's a little speculative because extensive studies of the effect of splinting after NA or Xiaflex are still missing but most patients (including me) have the impression that the splint helps. It looks like though that you have to wear it quite a while (6-12 months?).

Wolfgang

callie:
The splint will not stop contraction.

06/06/2012 13:45
callie 
06/06/2012 13:45
callie 
Re: Side-effects of radiation

It is my understanding that the splint is influential for the support formations (muscles, tendons and scar tissue) to maintain proper position. The contracture from Dupuytren's might be delayed somewhat (by a splint), but it is not sustainable for preventing the cell structure causing contracture.

If I had worn a splint on my right hand for the last fifteen years I might have been convinced that the splint prevented contracture. But, I didn't wear a splint and the fingers stayed straight for fifteen years without a splint, even though dermal pits/nodules were present.

Edited 06/06/12 17:06

06/06/2012 13:57
wach 

Administrator

06/06/2012 13:57
wach 

Administrator

Re: Side-effects of radiation

Good point, callie, and hard to argue as long as we have no long term studies. Still, I am currently wearing a splint myself after Xiaflex, and have the impression that it helps. My feeling is that the body eventually adjusts to the stretched position. But I agree, I may be wrong.

Wolfgang

Edited 06/06/12 16:58

06/06/2012 14:17
callie 
06/06/2012 14:17
callie 
Re: Side-effects of radiation

Wolfgang,
I agree that using a splint after a procedure might be very helpful. The helpful part (I believe) is that the splint helps retrain/maintain the adjacent tissues/structures that have been influenced by the previous long term contracture. The quick release of the contracture is probably a mild shock to adjacent structures. But, that advantage of the splint is totally different than the use of a splint to prevent contracture (again, just my opinion).

Then there is the recent study that you cited that shows no material positive effects from using a splint following a procedure. My point would be that if an individual would like to use a splint, go for it. But, I don't think the splint should be presented as a cure/remedy for stopping contracture.

06/06/2012 14:30
Maddie 
06/06/2012 14:30
Maddie 
Re: Side-effects of radiation

The finger I am splinting has not yet had any treatment other then RT more then a year ago. Since the cord was already on that finger the RT didn't seem to do much there (though it helped greatly with other parts of the hand). Dr. Eaton prescribed the splint in the hope that it would slow down the progression of the contracture and hence delay the need for NA.

I am quite certain the splint is helping because, as I said earlier, the contracture had been steadily increasing and now it has decreased somwhat. Also, the splinting has eliminated the intermittent pain and cramping in the hand.

It's certainly possibly that the contracture will begin increasing again despite the splint, in which case I will move forward with the NA. For now I 'm happy to buy some time.

Maddie

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