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Treatment for Early Dupuytren's
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07/12/2010 10:46
Pardalote

not registered

07/12/2010 10:46
Pardalote

not registered

Treatment for Early Dupuytren's

About two months ago I discovered three small lumps in my left palm. My GP said they should be treated because they could grow larger and prevent closure of the hand and referred me to a surgeon. He recommended surgery to remove them. I agreed because, although he said they might return, it seemed to make sense to remove them before they grew larger when, obviously, surgery would have to be more extensive. At that time I just thought they were some sort of benign tumour. Since then I have done some research and it looks as if the surgery might be more extensive than I had thought. I also found that surgery isn't necessarily the end of it but, although Dupuytren's Contracture was never mentioned, I was told that the disorder was probably hereditary (Celtic genes) and, putting 2 and 2 together I see that these lumps are signs of a disorder (Dupuytren's) that can or generally does worsen over time. I'll get back to my GP / surgeon with some more questions of course. In the mean time I wonder if anyone on this site might have some advice for me. Does anyone know what, precisely, is the benefit in removing the nodules? Does that prevent or slow development of these cords that posters speak about? Does anyone know how extensive surgery is likely to be for just three small lumps (they ar about1/4 inch in diameter). I'm thinking too that perhaps it would be better to have radiotherapy instead. I saw the listing for clinics in Australia and will contact them. But it looks as if they are private clinics (hence expensive). Does anyone know whether radiotherapy is available for Dupuytren's in public hospitals? I am so glad I found this site. It was a shock to find that I had the prospect of this disorder worsening but, having found this site, I feel better already about my prospects of dealing with it. Many thanks to the creators of the site, and users for sharing information and support.

07/12/2010 11:57
wach 

Administrator

07/12/2010 11:57
wach 

Administrator

Re: Treatment for Early Dupuytren's

If you are having Dupuytren's disease it's actually quite uncommon to remove nodule surgically before any conntracture. Chances are that Dupuytren's comes back more aggressively after surgery. That's not always the case but it can be, depending on the specific patient, not so much on the surgeon.

Wolfgang

07/12/2010 13:08
flojo 
07/12/2010 13:08
flojo 
Re: Treatment for Early Dupuytren's

I suggest you research the benefits for you and pursue all possibilities of getting radiotherapy.

Just having nodules, it sounds like you are at the beginning stages. That's when RT most likely will stop the progression whereas surgery may trigger it to progress more rapidly.
Is is active - still developing more nodules or nodules getting larger, other symptoms of it being active like weird sensations in your palm, tightness developing, etc.??
They want to do RT when Dupuytren's is active.

07/18/2010 05:07
LubaM. 
07/18/2010 05:07
LubaM. 
Re: Treatment for Early Dupuytren's

Look for signs of active disease, i.e...tightness across your palm, itching and burning on your palm or in the area where the nodules are, look for a cord that might be forming in your palm extending to the base of the finger/fingers...be watchful of any finger beginning to contract

I agree with Flojo...these are all signs of early stage Dupuytrens and its the best time to do radiation therapy to stop the progression of the disease. Read all you can on this Forum about RT. Post your questions, many will respond. Surgery should be the last choice.

Edited 07/18/10 08:09

07/18/2010 17:37
lori 
07/18/2010 17:37
lori 
Re: Treatment for Early Dupuytren's

I agree with Luba and Flora. RT has worked so far for me. It is about 1 year from my last RT and all is still well and no new nodules or cords. I would definitly lean towards RT if you have nodules or the beginning of DD. I am glad I did RT and have no regrets.

Lori

07/22/2010 16:14
bstenman 
07/22/2010 16:14
bstenman 
Re: Treatment for Early Dupuytren's

Open hand surgery is high risk as a tourniquet is used and it cuts off the blood supply to your lower arm and hand for 90 minutes on average. Side effects include nerve damage that may be permanent. Physical therapy can take another month after the operation and sometimes the full use of the hand after surgery can take months as well.

X-ray treatment completely arrested the progression of the disease in both hands and stabilized the nodule and contraction development. I only wish I had not listened to my GP but had learned earlier about the use of XRT for Dupuytren's. The sooner you can get the treatment the better off you will be in the long run.

All the other treatments are temporary and deal with the effects of the disease but do not appear to have any long term impact on halting the progression based on current information.

With X-ray treatment there is no rehabilitation involved and as the radiation is directed only at the sub-dermis level of just your hands and no organs of the body it is on par with having your teeth X-rayed at the dentist.

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