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DATA FORM for FOLLOW-UP ASSESSMENT of DUPUYTREN DISEASE
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05/18/19 18:10
Prof.Seegenschmiedt 
05/18/19 18:10
Prof.Seegenschmiedt 

DATA FORM for FOLLOW-UP ASSESSMENT of DUPUYTREN DISEASE

The attached Follow-Up Form for Assessment of Dupuytren / Ledderhose Disease allows a regular communication and exchange of relevant clinical data between the patient and the radiation oncologist / therapist on a well-defined basis after completion of the radiation treatment. It addresses the following six items of Dupuytren / Ledderhose Disease:

(1) Development of skin retraction

(2) Nodules (change of size & number)

(3) Cords (change of length & number)

(4) Stretching loss (angle of extension deficit)

(5) Pain & other atypical signs & symptoms

(6) Daily function (s) related to hands (e.g. Table Top Test)
and feet (e.g. gait, walking barefoot on uneven surfaces etc.)

Moreover, the possible changes of the consistency of specific "key" nodules or cords may be classified
in 4 groups and compared with the consistency of every day objects like

"normal consistency" --> "tomato" --> "orange" --> "tennis ball" --> "golf ball / coconut"

It is also advisable to perform specific exercises / function tests to compare the "daily activities" or "special functions".

Moreover, additional standard photographs of the affected extremities at defined time intervals, e.g. pre-treatment / post-treatment / at 3 / 6 / 12 / 24 / 36 and 60 months post-treatment, may help to discover and compare different changes on a more objective way than rather any "free guessing".

In some instances it is useful to use a Numeric Rating Scale ranging from "0" (zero) to "10" (10) to follow the change of specific symptoms like pain, itching, pressure or tension feelings.

Finally, specific "patient related outome measures (PROMs)" are available as questionnaires or as specific scores & evaluation tools, such as the DASH Score (with 30 questions / items) or the Quick-DASH Score (with 11 questions / items).

I will present the useful scores and tests in a separate post later-

Edited 05/18/19 18:29

Attachment
Follow-Up_Dupuytren-Ledderhose_Basic_Documentation_05-2019.pdf Follow-Up_Dupuytren-Ledderhose_Basic_Documentation_05-2019.pdf (5x)

Mime-Type: application/pdf, 125 kB

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consistency   activities   extremities   Quick-DASH   well-defined   pre-treatment   ASSESSMENT   questions   FOLLOW-UP   questionnaires   specific   photographs   post-treatment   Development   evaluation   Ledderhose   DUPUYTREN   Stretching   additional   communication