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DATA FORM for FOLLOW-UP ASSESSMENT of DUPUYTREN DISEASE
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05/18/19 18:10
Prof.Seegenschmiedt 
05/18/19 18:10
Prof.Seegenschmiedt 

DATA FORM for FOLLOW-UP ASSESSMENT of DUPUYTREN DISEASE

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The attached Follow-Up Form for Assessment of Dupuytren / Ledderhose Disease allows a regular communication and exchange of relevant clinical data between the patient and the radiation oncologist / therapist on a well-defined basis after completion of the radiation treatment. It addresses the following six items of Dupuytren / Ledderhose Disease, especially relevant when dealing with early stages of the disease (e.g. stage N or stage N/I with small functional changes)

(1) Development of Skin Changes /e.g. skin retraction causing dimples and pit holes etc.)

(2) Changes of Nodules (e.g. change of size & number)

(3) Change of Cords (e.g. change of length & number)

(4) Function or Stretching Loss (e.g. increasing angle of finger extension deficit)

(5) Change of Symptoms (e.g. pain & other atypical signs & symptoms like itching, burning sensation etc.)

(6) Daily Practical Function (s) related to the hand and finger usage (e.g. Table Top Test)
and feet (e.g. gait disorder, ability of walking barefoot on uneven surfaces etc.)

Moreover, the possible changes of the consistency of specific "key" nodules or cords may be classified
in 4 groups and compared with the consistency of every day objects like

"normal consistency" --> "tomato" --> "orange" --> "tennis ball" --> "golf ball / coconut"

It is also advisable to perform specific exercises / function tests to compare the "daily activities" or "special functions".

Moreover, additional standard photographs of the affected extremities at defined time intervals, e.g. pre-treatment / post-treatment / at 3 / 6 / 12 / 24 / 36 and 60 months post-treatment, may help to discover and compare different changes on a more objective way than rather any "free guessing".

In some instances it is useful to use a Numeric Rating Scale ranging from "0" (zero) to "10" (10) to follow the change of specific symptoms like pain, itching, pressure or tension feelings.

Finally, specific "patient related outome measures (PROMs)" are available as questionnaires or as specific scores & evaluation tools, such as the DASH Score (with 30 questions / items) or the Quick-DASH Score (with 11 questions / items).

I will present the useful scores and tests in a separate post later-

Edited 10/18/19 17:55

Attachment
Follow-Up_Dupuytren-Ledderhose_Basic_Documentation_05-2019.pdf Follow-Up_Dupuytren-Ledderhose_Basic_Documentation_05-2019.pdf (18x)

Mime-Type: application/pdf, 125 kB

Dupuytren-Ledderhose_Post-RT-After-Care_Form_10_2019_MHS.pdf Dupuytren-Ledderhose_Post-RT-After-Care_Form_10_2019_MHS.pdf (7x)

Mime-Type: application/pdf, 113 kB

10/04/19 11:18
Prof.Seegenschmiedt 
10/04/19 11:18
Prof.Seegenschmiedt 

FOLLOW-UP ASSESSMENT of DUPUYTREN & LEDDERHOSE DISEASE

Prof.Seegenschmiedt:
The attached Follow-Up Form for Assessment of Dupuytren / Ledderhose Disease allows a regular communication and exchange of relevant clinical data between the patient and the radiation oncologist / therapist on a well-defined basis after completion of the radiation treatment. It addresses the following six items of Dupuytren / Ledderhose Disease:

(1) Development of skin retraction

(2) Nodules (change of size & number)

(3) Cords (change of length & number)

(4) Stretching loss (angle of extension deficit)

(5) Pain & other atypical signs & symptoms

(6) Daily function (s) related to hands (e.g. Table Top Test)
and feet (e.g. gait, walking barefoot on uneven surfaces etc.)

Moreover, the possible changes of the consistency of specific "key" nodules or cords may be classified
in 4 groups and compared with the consistency of every day objects like

"normal consistency" --> "tomato" --> "orange" --> "tennis ball" --> "golf ball / coconut"

It is also advisable to perform specific exercises / function tests to compare the "daily activities" or "special functions".

Moreover, additional standard photographs of the affected extremities at defined time intervals, e.g. pre-treatment / post-treatment / at 3 / 6 / 12 / 24 / 36 and 60 months post-treatment, may help to discover and compare different changes on a more objective way than rather any "free guessing".

In some instances it is useful to use a Numeric Rating Scale ranging from "0" (zero) to "10" (10) to follow the change of specific symptoms like pain, itching, pressure or tension feelings.

Finally, specific "patient related outome measures (PROMs)" are available as questionnaires or as specific scores & evaluation tools, such as the DASH Score (with 30 questions / items) or the Quick-DASH Score (with 11 questions / items).

I will present the useful scores and tests in a separate post later-

I have updated the After-Care Form for Dupuytren and Ledderhose Disease now on a two-page-document which allows more space to TICK BOXES or include TEXT parts into the form.

The After-Care Assessment of a patient should be performed on a regular base after any therapeutic intervention (injections, minimal invasive and open surgical procedures or radiotherapy) for example at 3 months, 6 months, 1 year and thereafter annually up to 5 years.

The documentation can be made just for the personal use or in the context of an agreed exchange with a therapeutic center (surgery or radiotherapy) for long-term evaluation in clinical studies .

Photographic documentation is nowadays easy (e.g. by using smart phones) and should be regularly performed under standardized light conditions at similar time intervals as mentioned above for both hand palms and foot soles and special photos, if other sites are involved, e.g. knuckle pads or do document specific functional deficits etc.

Edited 10/04/19 11:28

Attachment
Dupuytren & Ledderhose_Post-RT-After-Care_Form_09_2019_MHS.pdf Dupuytren & Ledderhose_Post-RT-After-Care_Form_09_2019_MHS.pdf (7x)

Mime-Type: application/pdf, 113 kB

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post-treatment   questionnaires   well-defined   Ledderhose   changes   documentation   specific   photographs   two-page-document   Seegenschmiedt   communication   DUPUYTREN   ASSESSMENT   radiotherapy   DISEASE   pre-treatment   extremities   Development   FOLLOW-UP   consistency