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Dr. Seegenschmiedt- Update Requested for 7 day treatment verses 5 day, wait 3 months, then 5 day
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11/24/19 17:39
Rachel8 
11/24/19 17:39
Rachel8 
Dr. Seegenschmiedt- Update Requested for 7 day treatment verses 5 day, wait 3 months, then 5 day

Hello Dr. Seegenschmiedt, I have met with 2 radiation oncologists in Dallas, TX. One recommends treating my Dupuytren's with the traditional 5 day treatment, wait 10-12 weeks, then another 5 day treatment. The other doctor prefers 7 day treatment without any break. He said it's basically as effective and exposes me to only 21Gy of radiation verses 30Gy. I reviewed your 2015 presentation which is on the internet, and at that time, you said the best course of treatment was the 5 day treatment, wait 12 weeks, followed with another 5 day treatment. Do you still prefer the 10 day treatment?

Also, you recommend Excipial Lipo Lotion for hand care. I have not seen this in the US. Doctors here recommend Radiaplex Gel, aloe vera gel, Aquaphor, or Miaderm? Texas Oncology like Radiplex Gel. Do you have any preference among the above?

I wash my hands frequently as I have a pet, as well as before meals, after bathroom, etc. Do I need to apply it after every hand wash?

Thanks, Rachel

11/24/19 22:29
spanishbuddha 

Administrator

11/24/19 22:29
spanishbuddha 

Administrator

Re: Dr. Seegenschmiedt- Update Requested for 7 day treatment verses 5 day, wait 3 months, then 5 day

Hi Rachel,

ProfS is an occasional but irregular visitor to our forum. Until then the following might be helpful:

First two para’s including links to clinical studies, address the 21v30Gy discussion https://www.dupuytren-online.info/Forum_...571409384.html

General hand care advice following RT https://www.dupuytren-online.info/Forum_...1571427244.html

Best wishes SB

12/01/19 10:36
newman 
12/01/19 10:36
newman 

Re: Dr. Seegenschmiedt- Update Requested for 7 day treatment verses 5 day, wait 3 months, then 5 day

Hi I had RT administered in 2017 in Essen by Prof Seegenschmeid . Because I came from Australia we decided to have the second 15Gy some 12 week later as time is not that important. The advantage is one you can judge how good the initial R t treatment was and should any new nodules be found the area can be treated.
In my case the right hand had the initial 5day 15Gy and when I returned I did not receive any further RT to my right hand . I also had Rt for Leederhose to both feet and on my return the area on one foot was increased to cover the extra nodules.

Your choice. Nearly forgot use a creme containing 10% Urea as this retains moisture which the Prof recommended.

12/15/19 20:58
Stefan_K. 
12/15/19 20:58
Stefan_K. 

Re: Dr. Seegenschmiedt- Update Requested for 7 day treatment verses 5 day, wait 3 months, then 5 day

Hi Rachel. I have had a total of three treatments of 2 x 5 days each on various parts of both hands, all of them stopping progression and one even making small nodules go away. In my view the 7-day method can work just as well, but as mentioned you don't bet the chance to catch any new developments not covered by the first 5 days. More important than 10 x 3 gy or 7 x 3 gy is in my view is to palpate and treat the nodules early enough.

As for the Urea cream, I really only used it after the first treatment of my right hand, and for a couple of weeks during the summer after that, and haven't needed any for three years. I found a brand that penetrates better as I found the one you mentioned too fatty. Finding one you are happy with shouldn't be a problem.

Good luck,

Stef

[57, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]

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