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Dupuytrens and Raynaud's
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11/05/20 07:26
stephenp 
11/05/20 07:26
stephenp 
Re: Dupuytrens and Raynaud's

I have DD in both hands which was developing rapidly. About 6 years ago it was successfully treated by radiation so has not progressed. I am 67. Over the last few years I had noticed that in winter, my fingers get numb in the cold more easily but this has easily been managed. A few days ago out camping, all fingers on both hands rapidly and uncontrollably turned blue, it was cool, maybe 20 degrees but very windy. I was very surprised. It took about 30 mins of very vigorous arm movement to recover normal blood flow.

My guess is that the collagen deposition restricts blood flow to fingers which gets worse in cool weather.

So like others, I suspect there is a link. There is probably an underlying susceptibility exacerbated by DD.

11/11/20 18:43
MaskedMan 
11/11/20 18:43
MaskedMan 
Re: Dupuytrens and Raynaud's

So my recent visit with a VA rheumatologist has him investigating if my Raynaud's-like bouts are instead attributable to Scleroderma. So blood was drawn, a urine sample was submitted and I am awaiting an appointment for a chest scan to see if there is any interstitial disease as I have a history of chemical, silicates, and asbestoes exposure which has already disabled me with a severe lung condition. It seems the medical society is still sorting out the relationships or comorbidities of auto-immune diseases and whether ones environment plays a role in exacerbating our conditions of health, or poor health.
Good luck to all!!!

05/17/22 09:18
Jamba90 
05/17/22 09:18
Jamba90 
Re: Dupuytrens and Raynaud's

stephenp:
I have DD in both hands which was developing rapidly. About 6 years ago it was successfully treated by radiation so has not progressed. I am 67. Over the last few years I had noticed that in winter, my fingers get numb in the cold more easily but this has easily been managed. A few days ago out camping, all fingers on both hands rapidly and uncontrollably turned blue, it was cool, maybe 20 degrees but very windy. I was very surprised. It took about 30 mins of very vigorous arm movement to recover normal blood flow.

My guess is that the collagen deposition restricts blood flow to fingers which gets worse in cool weather.

So like others, I suspect there is a link. There is probably an underlying susceptibility exacerbated by DD.

I have DD in my right hand (which was my bowling hand 25 years ago, hmmm...). I too had radiation, as i was getting small twinges/pains. the radiation stopped that about a year and 6 months ago. However, I noticed my nodule seeming to widen and another small one or two barely next to it. The Raynaud's started for me on a bike ride about 3-4 months ago, after the mild progression. It's only in the fingers above my nodules.

Interestingly, when I told my primary care I thought I had Raynaud's he asked if I'd pursued treatment with radiation. So I imagine blood flow was restricted by the collagen production....but it could have been the radiation too. I'll never know. But I definitely think its related.

Lastly, i was taking beta blockers for about 6 months or so a year before I came up with DD. I've read that those can cause Raynaud's and are attributed to hypoxia. Somewhere I also recall reading that they hypothesize hypoxia can cause Dupuytrens. I'm black, so not in the likely target group for DD. I imagine the microtrauma from bowling, weightlifting and the damn beta blockers triggered a genetic weakness and kicked off the whole shebang. Joy....

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