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Radiotherapy (RT) in California
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03/28/2011 16:08
Issleib 
03/28/2011 16:08
Issleib 
Re: Radiotherapy (RT) in California

Larry:
I start to understand !

In Germany hospitals aund insuarance companies start to change the system similar to what you described ! And its driving good doctors out of hospitals to go into private practice to stay independent. That's - at least to my knowledge - the reason why Prof. Seegenschmiedt is now practicing in HAMBURG, while he initially worked in ESSEN at a hospital !
Working in a private practice means, however, to cover all the costs of machine etc. by yourself which can be quite expensive!

Overall I think the German system requires only 25% paying compared to the US standard prizes ! The differnce should be spend for vacation, as Germany is a pretty country ...


I know Germany is a beautiful country. I've been there although the last time was over 20 years ago. My Great Grandfather came from what was East Germany and it wasn't open the last time I was there. I would like to go back and see where he came from.

Here even in private practice we are burdened with government rules and restrictions and insurance company restrictions. For example it is illegal for me not to charge a patient that I know is having a hard time. When the government makes compassion illegal you're in trouble.

01/30/2013 06:08
Paddyman 
01/30/2013 06:08
Paddyman 
Re: Radiotherapy (RT) in California

I just discovered what I'm pretty sure is DD on my right hand. It looks and feels like a knot in the place where they're supposed to appear first, below the ring and pinky fingers, on the palm below the 'lines' that run across the hand for palm reading. It's quite small still, but hard and about the size of a peanut. There's no sign of any cording yet and no contraction of any fingers. I'm 51 years old and Irish, and my father had severe DD from his mid-fifties on wards By his mid-60's he couldn't lift a glass without using both hands as he had lost the use of two fingers on each hand. He had surgery on both hands and regretted it afterwards as it was so painful, took a long time to recover use of his hands and didn't improve matters much. My older brother is also showing signs of being in Stage N, so I'm pretty certain about my self-diagnosis and eager to nip this thing in the bud.

I live in the SF Bay Area, so would like to find treatment here, but from what I've read on these forums I'd like to get someone who follows Prof. Seegenschmiedt's procedure, not something they are experimenting with themselves because of insurance rules or their own beliefs, but based on the positive results he has achieved...because it seems like Prof. Seegenschmiedt gets the desired results after a couple of decades of practice.

Has anyone had any recent treatment from Dr. Chiang in Palo Alto or Dr. Gottshalk in UCSF?
What procedure did they follow?
What were the results you had?
Do you recommend them?

cheers,
Paddyman

01/30/2013 06:46
wach 

Administrator

01/30/2013 06:46
wach 

Administrator

Re: Radiotherapy (RT) in California

Hi Paddyman,

though you likely have DD you still should avoid self-diagnosing and consult a doctor before embarking on any kind of therapy. Nodules in the palm can have many reasons, see "First exclude other causes" on http://www.dupuytren-online.info/dupuytr..._therapies.html. Doctors familiar with DD are listed on http://www.dupuytren-online.info/NA_list_North_America.html, in your area e.g. Keith Denkler.

Wolfgang

Paddyman:
I just discovered what I'm pretty sure is DD on my right hand. It looks and feels like a knot in the place where they're supposed to appear first, below the ring and pinky fingers, on the palm below the 'lines' that run across the hand for palm reading. It's quite small still, but hard and about the size of a peanut. There's no sign of any cording yet and no contraction of any fingers. I'm 51 years old and Irish, and my father had severe DD from his mid-fifties on wards By his mid-60's he couldn't lift a glass without using both hands as he had lost the use of two fingers on each hand. He had surgery on both hands and regretted it afterwards as it was so painful, took a long time to recover use of his hands and didn't improve matters much. My older brother is also showing signs of being in Stage N, so I'm pretty certain about my self-diagnosis and eager to nip this thing in the bud.

I live in the SF Bay Area, so would like to find treatment here, but from what I've read on these forums I'd like to get someone who follows Prof. Seegenschmiedt's procedure, not something they are experimenting with themselves because of insurance rules or their own beliefs, but based on the positive results he has achieved...because it seems like Prof. Seegenschmiedt gets the desired results after a couple of decades of practice.

Has anyone had any recent treatment from Dr. Chiang in Palo Alto or Dr. Gottshalk in UCSF?
What procedure did they follow?
What were the results you had?
Do you recommend them?

cheers,
Paddyman

01/30/2013 07:11
Paddyman 
01/30/2013 07:11
Paddyman 
Re: Radiotherapy (RT) in California

I have an appointment scheduled with Dr Ching in Palo Alto for Feb 21 to diagnose. I will ask lots of questions about his treatment and then try to figure out whether to have him treat me or go to Germany.

Thanks for your concern

01/30/2013 08:22
spanishbuddha 

Administrator

01/30/2013 08:22
spanishbuddha 

Administrator

Re: Radiotherapy (RT) in California

Early treatment using RT is only appropriate or effective if the condition is active. Treatment is not done just because it is at an early stage or stage n.

Keep a diary for a couple of months recording nodule changes, with photos, aches, pain, tingling, stiffness. After that you will have objective evidence whether the conditions active, or not.

I posted in another thread how the doctors in Germany determine whether to treat or not. I had one hand treated, and the other not despite my disappointment at the time. It was the right decision as the untreated hand has not progressed. See http://www.dupuytren-online.info/Forum_E...t-0_1445.html#4

01/30/2013 18:55
Paddyman 
01/30/2013 18:55
Paddyman 
Re: Radiotherapy (RT) in California

Hi SpanishBuddha! Thanks for your advice. I read your trip reports and appreciate your sharing of information.

I was just talking to my brother and sister (both 5+ years older than me), and both of them have it on both hands but I don't know what stage or activity level. My sister also has an issue with her feet, but not sure if it's related.

It's convenient for me to go see the local doctor, Dr Chiang, in Palo Alto so I will just see what he says about the condition of my right hand. Yes, I've only just noticed the first nodule developing this past week and it's 'pea sized'. No sign of any cords yet. I'm gathering that there's a point at which RT becomes the right treatment, but I might not have reached it yet. However, I think my brother and sister might possibly be there already. I've encouraged them to pursue a thorough diagnosis from a specialist...perhaps even going to Hamburg. They live in Ireland so it's easier for them to do that.

Does anyone know of the level of experience of the Irish doctor listed below:
Prof. Frank Sullivan
Consultant Radiation Oncologist
Suite 8, Galway Clinic
Doughiska, Galway
Phone: 091 / 720044

If you have visited or had treatment from him, I would appreciate you sharing the experience and any recommendation you may have.

cheers,
Paddyman

01/30/2013 20:27
Lanod 
01/30/2013 20:27
Lanod 
Re: Radiotherapy (RT) in California

Paddyman:

Does anyone know of the level of experience of the Irish doctor listed below:
Prof. Frank Sullivan
Consultant Radiation Oncologist
Suite 8, Galway Clinic


Paddy,

i was treated by Prof. Sullivan and completed RT treatment in October last.

Prof. is a good caring doctor who has a strong interest in the Dupuytrens condition. However, he has treated very few patients to date - maybe just 4 or 5. Also - he would insist on a patient seeing a hand surgeon first so as to confirm diagnosis etc. However, a hand surgeon would advise against RT treatment. So there is no real joint doctor cooperation here.

Prof. Seegenschmidt, Hamburg, is probably the best in the world in this field and, based on what is reported on this forum, he will accept emailed photographs for assessment of a prospective patuient's condition - and advise by return.

Please do not hesitate to contact me over this forum or by PM if you so wish.

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