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Women with Dupuytren's
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11/01/10 13:48
elsa 
11/01/10 13:48
elsa 
Re: Women with Dupuytren's

thank you flora, I definitely will!

11/01/10 19:43
Larry 
11/01/10 19:43
Larry 
Re: Women with Dupuytren's

elsa:
hi,
I just turned 23 and first noticed the bump in my hand three months ago. Am lucky to have a family friend who's an excellent orthopedic surgeon so asked him to take a look and he said it's dupuytren's (easier to write than to say..). my dad has it too but only the past few years. I'm swedish so i'm amused to see it being called viking disease. from what I read it's not too common for a woman my age, and I'm guessing it's a bad sign with such an early onset but I'll just have to wait and see.


If you are interested in a good consultation contact Professor Seegenschmiedt in Hamburg who is an expert in his
field not only for Dupuytren but also for Morbus Ledderhose - he has about 20 years of erxperience to treat early
stage disease with radiation therapy to prevent further progression ...+contact: info@szhh.info

11/03/10 21:53
BeckaBear

not registered

11/03/10 21:53
BeckaBear

not registered

Re: Women with Dupuytren's

I'm 29 and first noticed a callous 5 years ago just under the middle finger that was totally unexplainable.. then, about two years ago, I noticed a nodule. This year it has pulled into a chord running to my ring finger that periodically aches intensely. My father and maternal grandmother each had DD with contracture.. and it seems that I will be headed that way shortly. I have yet to go to the doctor for it.. I have to admit I'm a little terrified. I have gathered that an aggressive onset this early is usually not a good thing. I have read that it can be tied to autoimmune disorders.. has anyone had any experience with their DD being related to something like Hashimoto's? (which runs in my family as well, unfortunately)

11/04/10 08:53
wach 

Administrator

11/04/10 08:53
wach 

Administrator

Re: Women with Dupuytren's

My Dupuytren's started when I was about 35. Now I am over 60 and still doing OK. When you are young it is strange to find out that you have a disease that will never go away and will eventually get worse but Dupuytren's is still a benign disease. The worst thing it can do is making you worry. Just don't allow that and enjoy your life. This forum has many knowledgable members ready to help you and you can find lots of info on the web site (left menu).

Wolfgang

@BeckaBear:
I'm 29 and first noticed a callous 5 years ago just under the middle finger that was totally unexplainable.. then, about two years ago, I noticed a nodule. This year it has pulled into a chord running to my ring finger that periodically aches intensely. My father and maternal grandmother each had DD with contracture.. and it seems that I will be headed that way shortly. I have yet to go to the doctor for it.. I have to admit I'm a little terrified. I have gathered that an aggressive onset this early is usually not a good thing. I have read that it can be tied to autoimmune disorders.. has anyone had any experience with their DD being related to something like Hashimoto's? (which runs in my family as well, unfortunately)

11/04/10 16:33
Diana 
11/04/10 16:33
Diana 
Re: Women with Dupuytren's

I was diagnosed with Hashimoto's about 4 years ago (although in looking at my past blood results, I'd had it for a few years before diagnosis) and noticed a nodule/cord in my hand almost 2 years ago. I'm a 53 year old woman.

Both my parents have Dupuytren's, my dad has had surgery in both hands, my mom just has nodules with no contraction. They are 85.

This disease seems so complicated - e.g. that there could be a variety of reasons why people get it including hereditary, injury, strenuous activity, auto immune issues, a combination of the former, and other reasons. . . . Too bad there isn't one definitive cause for the scientists to work on and fix.

Diana

11/04/10 17:43
cindy850 
11/04/10 17:43
cindy850 
Re: Women with Dupuytren's

As far as i know and what i have read and been told it is only hereditary and it runs in either side of family or both generations back. I'm 57 and there is no one living on either side of family that has this and when you start checking into back generations that also is hard to find out anything. So i just have to live with the fact that it come from someone in my family. I don't believe its caused from anything else because if that was true more of us would have the problem. Yes? Should i thank them now or later for giving me this crazy disease? LOL

11/07/10 04:21
loonsong 
11/07/10 04:21
loonsong 

Re: Women with Dupuytren's

BeckaBear,
I don't have Hashimoto's but I do have Hypothyroidism and it has been very unstable, my son thought I had Hashimoto's and wanted me to ask the Dr about it, he said the treatment was the same so there was no sense testing. Now that you mention this I might ask my new Dr what she thinks.
loonsong

Edited 11/07/10 04:22

11/09/10 13:22
Laurie 
11/09/10 13:22
Laurie 
Re: Women with Dupuytren's

Seems like a lot of people on this forum have thyroid issues. I was hyperthyroid, then had radioiodine treatment which destroyed thyroid function so now I'm hypothyroid. I also had frozen shoulder which I understand is linked to Dupuytren's. This disease is certainly complicated.

11/09/10 19:54
Mike S

not registered

11/09/10 19:54
Mike S

not registered

Re: Women with Dupuytren's

I also had frozen shoulder beginning around Jan 2010. With PT, and now home exercises, it's much better but far from 100%.

11/12/10 19:56
ellenpao 
11/12/10 19:56
ellenpao 
Re: Women with Dupuytren's

Onset at about 50 - severe in both hands, aggressive cords/pip involvemnet/boutinerre's finger - and Ledderhose also. Both parents had Dups, so I guess my DNA was doomed! Have had 6 NAs, soon to have my first Xiaflex injection. BTW - also had frozen shoulder which is more painful than the Dups.

I had a hysterectomy at 45, took estrogen for 10 years after, and see little correlation to this disease with estrogen. Just really think that genetics is the key.

I'm thinking positively - this disease is a pain , but not life threatening. if you have to have something, this isn't so bad in the scheme of things :)

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