| Lost password
40 users onlineYou are not loggend in.  Login
Women with Dupuytren's
 1 2 3 4 5 6 .. 11
 1 2 3 4 5 6 .. 11
11/13/10 22:52
flojo 
11/13/10 22:52
flojo 
Re: Women with Dupuytren's

Quote:
I'm thinking positively - this disease is a pain , but not life threatening. if you have to have something, this isn't so bad in the scheme of things :)
I agree. It is not life threatening, but there are those whose careers, livelihood have been threatened or ruined by pain and contracture. I haven't had that kind of impact, but I feel for those whose circumstances make this a seriously debilitating disease.

04/02/11 23:02
dgriffith

not registered

04/02/11 23:02
dgriffith

not registered

Re: Women with Dupuytren's

Wow - I just want to say how great it is to see a discussion on women and Dupuytren's. Everything you read is that it is so rare for women and I was getting concerned that maybe I am eating or drinking something that is contributing to this occurence.

04/02/11 23:53
cindy850 
04/02/11 23:53
cindy850 
Re: Women with Dupuytren's

Please register and be one of those women with this stupid and horrible disease. We need all the help we can get. After all it is a women's world now. Don't you think its about time? I'm sorry that you do have DD but this is a good place to find out a lot of stuff that you could be thinking about.

04/04/11 21:44
Stanzi 
04/04/11 21:44
Stanzi 
Re: Women with Dupuytren's

Hi. I'm 56 1/2 years old and newly diagnosed with Dupuytren's Contracture. I'm of Norwegian descent, but to my knowledge, no one else in my family has had DC. I'm at the "watch and see what it does" stage. It started several months ago as a small nodule almost in the center of my palm, under the ring finger. It is now spreading toward the middle finger. I have full use of my hand at this time. I just found this site about 20 minutes ago and am glad to see I am in good company.


Stanzi

04/04/11 22:39
Issleib 
04/04/11 22:39
Issleib 
Re: Women with Dupuytren's

Welcome Stanzie.

04/08/11 20:04
JoanneH 
04/08/11 20:04
JoanneH 
Re: Women with Dupuytren's

Next time you visit your M.D., you might want to have them check your level of Vitamin D too. There is a torrent of new research indicating that a variety of diseases are related to a lack of sunlight-generated Vitamin D. I wonder how many of you live in the northern latitudes where Vitamin D deficiency is ubiquitous (and/or spend much of your time indoors or covered in sunscreen.)

Below is a link to an article about Vitamin D3 therapy used on a woman with a large Desmoid tumor. Vitamin D3 was the only thing that worked on the tumor after repeated surgeries and radiation failed. The similarities between Dupuytrens and these tumors is pretty striking, including the fact that this tumor began after a trauma (on the site of a past surgery). It mentions that Vitamin D is responsible for controlling the rampant proliferation of collagen which is the basis for both Dupuytrens and these benign Desmoid growths. It also mentions the history of successful use of Vit D3 in treating various cancer growths. Here's the link:

http://jjco.oxfordjournals.org/content/34/8/472.full

For more info on the connection between Vitamin D and other disease (particularly auto-immune disease) including arthritis, heart disease, diabetes, MS, etc, read the forum post entitled: "lack of sunlight and auto immune disease". There are several links to other articles there.

To your health!

P.S. I know some of you have tried Vitamin D and so far have only experienced a lessening of pain - but stick with it - as per the article, it took 8 months of mega doses of D3 to shrink the tumor in half and then another 8 months before it was nearly gone. It appears the longer you are Vit D deficient, the longer it may take to reach optimal levels. Work with your M.D. if you are going to try mega-dosing though.

Edited 04/08/11 20:05

04/08/11 20:28
Pinetrees 
04/08/11 20:28
Pinetrees 
Re: Women with Dupuytren's

Laurie:
I'm very curious about the age of onset for women on this forum. Everything I've read says that men are affected way more often than women. I'm 55 and noticed my first nodule several years ago. The condition stayed the same for years until this year when it became very active. I don't know if it's coincidental that just as I hit menopause, it became active. I'm wondering if this could account for the disproportionate numbers of men that get it. Maybe there's a protective factor that estrogen levels provide younger women. What do you all think?

Same with me..onset of menopause. I was diagnosed 6 years ago. No contractures, just nodules and pulling, rt. hand. LD on both feet also. Only risk factor....Northern European decent.

04/09/11 00:49
LubaM. 
04/09/11 00:49
LubaM. 
Re: Women with Dupuytren's

Pinetrees:

Same with me..onset of menopause. I was diagnosed 6 years ago. No contractures, just nodules and pulling, rt. hand. LD on both feet also. Only risk factor....Northern European decent.
If you have no contractures, just nodules and pulling...you are a perfect candidate for radiation therapy. Its very effective for early stages of Dupuytrens and LD. I had radiation in Nov. 09 for left hand nodules and LD on left foot. It stopped the progression of the disease in the radiated areas... Read all you can on this forum and consider treating early before contractures occur.

04/09/11 12:59
Cyclist 
04/09/11 12:59
Cyclist 

Re: Women with Dupuytren's

Note also that Vit D deficiency is not just related to lack of sunshine - here in Australia where it's always sunny, people can develop an inability to absorb Vit D and are forced to take supplements

JoanneH:
Next time you visit your M.D., you might want to have them check your level of Vitamin D too. There is a torrent of new research indicating that a variety of diseases are related to a lack of sunlight-generated Vitamin D. I wonder how many of you live in the northern latitudes where Vitamin D deficiency is ubiquitous (and/or spend much of your time indoors or covered in sunscreen.)

Below is a link to an article about Vitamin D3 therapy used on a woman with a large Desmoid tumor. Vitamin D3 was the only thing that worked on the tumor after repeated surgeries and radiation failed. The similarities between Dupuytrens and these tumors is pretty striking, including the fact that this tumor began after a trauma (on the site of a past surgery). It mentions that Vitamin D is responsible for controlling the rampant proliferation of collagen which is the basis for both Dupuytrens and these benign Desmoid growths. It also mentions the history of successful use of Vit D3 in treating various cancer growths. Here's the link:

http://jjco.oxfordjournals.org/content/34/8/472.full

For more info on the connection between Vitamin D and other disease (particularly auto-immune disease) including arthritis, heart disease, diabetes, MS, etc, read the forum post entitled: "lack of sunlight and auto immune disease". There are several links to other articles there.

To your health!

P.S. I know some of you have tried Vitamin D and so far have only experienced a lessening of pain - but stick with it - as per the article, it took 8 months of mega doses of D3 to shrink the tumor in half and then another 8 months before it was nearly gone. It appears the longer you are Vit D deficient, the longer it may take to reach optimal levels. Work with your M.D. if you are going to try mega-dosing though.

04/09/11 13:02
Pinetrees 
04/09/11 13:02
Pinetrees 
Re: Women with Dupuytren's

LubaM.:
Pinetrees:

Same with me..onset of menopause. I was diagnosed 6 years ago. No contractures, just nodules and pulling, rt. hand. LD on both feet also. Only risk factor....Northern European decent.
If you have no contractures, just nodules and pulling...you are a perfect candidate for radiation therapy. Its very effective for early stages of Dupuytrens and LD. I had radiation in Nov. 09 for left hand nodules and LD on left foot. It stopped the progression of the disease in the radiated areas... Read all you can on this forum and consider treating early before contractures occur.

Thanks! In the early days of my diagnosis, I was so driven to GET THIS FIXED...went to all the specialists, only to be told..to early for intervention! This site, along with the Dupuytrens Foundation website has been so helpful! Thanks again for sharing your experience. Btw...which Dr. did you see for radiation treatment?

 1 2 3 4 5 6 .. 11
 1 2 3 4 5 6 .. 11
nodules   experience   disease   contracture   Vitamin   menopause   treatment   radiation   treatments   Dupuytrens   noticed   started   because   contractures   estrogen   dupuytren-online   progression   Dupuytren   diagnosed   surgery