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years of discomfort
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05/27/2007 15:59
wonkeyfingers 
05/27/2007 15:59
wonkeyfingers 
years of discomfort

My partner has suffered from dupuytrens contacture for about 10 years. He has had surgery on both hands here in the UK. After this surgery no follow-up physiotherapy was given and one hand is now very bad. The fourth finger being at about 45% and closing.

We are new to this site so please, please can anyone out there help. My partner is reluctant to consider further surgery as he was very ill last time. We have heard of less invasive, but nevertheless effective techniques being offered in Europe. Can anyone give further info on these techniques?

05/27/2007 17:27
Randy_H 
05/27/2007 17:27
Randy_H 

The Fix for years of discomfort

Sure can. See:

http://www.handcenter.org/newfile16.htm

Eaton is an American from Florida, but NA was pioneered by the French. If you can afford a trip to France, this is currently the only way to avoid Open Surgery once you have a contracture. The procedure in France is relatively inexpensive.

Previous surgery can hamper the effectiveness of NA, but you should at least look into this.

05/27/2007 17:38
andyd 
05/27/2007 17:38
andyd 
Re: years of discomfort

AA4500:
The Company announced results of a pivotal randomized, placebo- controlled, double-blind study of AA4500 that showed that a local injection of AA4500 was highly effective (91% success in primary endpoint) in the treatment of Dupuytren's contracture.
Auxilium Pharmaceuticals see their website.

05/27/2007 18:30
craggy 
05/27/2007 18:30
craggy 
Re: years of discomfort



We are new to this site so please, please can anyone out there help. My partner is reluctant to consider further surgery as he was very ill last time. We have heard of less invasive, but nevertheless effective techniques being offered in Europe. Can anyone give further info on these techniques?





Hi Monkeyfingers. The information is well set out within this site. The alternatives are there, and, as Randy says NA is available in Paris. I have been and seen it done (to me). It doesn't last, of course, and as I've already written on these forums (do a bit of a trawl) I've now had surgery on one hand (it's holding up well so far) I have an appointment on tuesday in Derby where they now offer NA on the National Health (the only place in the UK, I understand). Well, it's more convenient than Paris, if not so romantic!

Goog luck

Richard

05/28/2007 07:11
TrevB 
05/28/2007 07:11
TrevB 

Re: years of discomfort

as per the above

NA is also available in the UK although only at one known location. Check out this thread

http://www.dupuytren-online.info/Forum_E...oard=0&thema=20

which is deeper in the forum.

and http://www.pulvertafthandcentre.org.uk/

Where did you have your surgery done Craggy and why did you not choose NA again? The view on this forum seems to be have NA as many times required and avoid open surgery.

Edited at 05/28/07 10:22

05/28/2007 10:52
craggy 
05/28/2007 10:52
craggy 
Re: years of discomfort

Quote:



Where did you have your surgery done Craggy and why did you not choose NA again? The view on this forum seems to be have NA as many times required and avoid open surgery.



Hi Trev

I had surgery at my local (Macclesfield) hospital carried out by Mr L A Sanz (a good man, who had previously worked on my shoulder (an ACJ dislocation) to good effect, but who is now Consultant for hands, and probably other bits too). I had surgery because the NA (Paris 2004) had not been effective, and I wasn't able to do everything I wanted to with that hand (the little finger being locked rigid at 110deg) So far I'm very pleased with the result (just back from 10 days hard climbing in Greece - no problems), but am under no illusions, and await DC's return, hopefully not so badly, where NA can again be a viable option.

Thanks to you, actually, I contacted Chris Bainbridge, and see him tomorrow to assess my other little finger which is bent, but not so drastically. This was also treated in Paris, and responded better, but is now getting in the way again.

The view of the forum may be what you say it is, but that doesn't mean its the only view. As you have found out, it is difficult to get information from GPs etc as to alternatives to OS in the UK. On the other hand (so to speak) large numbers of people have OS for DC, and are perhaps happy enough with their outcomes, and don't seek out DC websites (or like my sister, they put up with their lot, suffer, and have more surgery - not nice). As I've mentioned before, it's strange that no-one seems to ask for information on Paris/NA anymore. Surely people from the UK aren't flying out to Florida for treatment, are they?!

Cheers

Richard

05/28/2007 12:47
TrevB 
05/28/2007 12:47
TrevB 

Re: years of discomfort

Quote:



On the other hand (so to speak) large numbers of people have OS for DC, and are perhaps happy enough with their outcomes, and don't seek out DC websites (or like my sister, they put up with their lot, suffer, and have more surgery - not nice). As I've mentioned before, it's strange that no-one seems to ask for information on Paris/NA anymore. Surely people from the UK aren't flying out to Florida for treatment, are they?!

Cheers

Richard



Hi Richard

It would be great if people who had had successful relatively troublesome surgery posted more but of course they're just thankful and get on with their life. It's generally the unhappy ones who visit and OS (rightly or wrongly) only gets bad press as patients look for other options? I think that any UK punters who visit would look to Paris first (although there is a UK option) and not fly to the States. Most of the forum members are from the US I think which is why that part of the world is so prominent. They seem to be getting most of their NA done in-house now and only coming across for radiotherapy.

Hope you get a good outcome tomorrow.

Regards




Edited at 05/28/07 16:02

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