Collagenase |
|
1 .. 5 6 7 8 9
|
1 .. 5 6 7 8 9
|
04/17/2004 23:43
Randy Harrisnot registered
|
04/17/2004 23:43
Randy Harrisnot registered
|
Proactive spread of NA!!
As well informed as many of us have become regarding NA through this Forum, we remain an incredibly small minority. It takes some searching to find this site, as well as Walt's or Dr. Eaton's. FACT: This site was instrumental in bringing NA to the US for the first time. Shall we all sit back and let things take their course, or take more proactive measures to stoke the NA fires? How? Quite simply, inasmuch as the Internet got us this far, lets use it to it's full potential.
I propose the creation of a single well designed page with links to all three major sites that will come up #1 or #2 on most search engines. Then, if you search on Dupuytren's, ***you will know about NA***
As we all know, the creation of the page is easy. It costs $$$$$ to have it correctly placed. However, we don't have much competition, so it shouldn't be too expensive. It could be titled: "Revolutionary European non-surgical treatment for Dups now available in the US" (or something better)
Eddie seems unable (or unwilling) to taker our $100 donations. So, how many of us would pony up to move this treatment along? Information is power. Lets be about impowering more people and push harder against what Eaton calls a "Strong Surgical Tradition" in the US.
Can we afford not to have a backup of this site goes dark?
What say you all?
|
|
|
04/29/2004 23:08
Georgenot registered
|
04/29/2004 23:08
Georgenot registered
|
collagenase availibility?
I'm a pianist with Dupuytren.s and want to avoid surgery if I can. Does anyone have any info on when or if the FDA will approve Clostridial Collagenase injections for Dupuytren's? Last I heard they were finished with Phase 3 trials and are monitoring long term effects. I can't seem to get any current information. Thanks in advance.
George
|
|
|
04/29/2004 23:08
E. Wixnot registered
|
04/29/2004 23:08
E. Wixnot registered
|
Cordase
George,
From available information it appears that Cordase Injections for Dupuytren' Contracture is two to four years away. Testing is still going on, and will until it receives FDA approval. This want be anytime soon but hopefully it will be effective treatment for DC when all the testing trials are completed and FDA approval gives the go-ahead.
E. Wix
|
|
|
04/30/2004 23:39
Randy H. not registered
|
04/30/2004 23:39
Randy H. not registered
|
collagenase trials
George,
Wix is "Right On" This highly technical treatment option may well prove to be a very significant arsenal in the fight against our bazaar disease. Meanwhile "NA" remains the only option to the knife. NA does "mechanically" what the injections do biochemically. NA has some limitations that the injections may overcome. Only time will tell which is preferable for individual cases. Right now, NA is your best bet and *Eaton* is your man. Check the threads.
|
|
|
05/17/2004 23:09
gail trocchionot registered
|
05/17/2004 23:09
gail trocchionot registered
|
collagenase trials
To all who inquired: Although we can understand the frustrations of Dupuytren's patients nationwide, the collagenase trials are subject to FDA regulatory guidelines and are a MASSIVE undertaking for the doctors involved (costing millions of $$). In past trials, this therapy has proven both safe and highly effective. The doctors involved with the trials are DEDICATED to seeing this useful therapy be approved by the FDA and are making EVERY EFFORT in that regard. When patient enrollment opens, I will post it on this board. We are making every effort to see that it is sooner, rather than later.
|
|
|
05/26/2004 23:46
Michael Lusknot registered
|
05/26/2004 23:46
Michael Lusknot registered
|
Are Phase III Trials completed or underway?
Hi All - so have the Collegenase Phase III trials been completed or even started? Ms. Trochio's message implies that they haven't.
|
|
|
05/26/2004 23:06
mark
|
05/26/2004 23:06
mark
|
trials
They have been enrolled already and are being done, but have not been completed. This is what takes time.
|
|
|
05/26/2004 23:00
Murray
|
05/26/2004 23:00
Murray
|
The Bright Side
If you all had any sense you would forget about Collagenase and stick with NA............
|
|
|
05/26/2004 23:48
Randy H. not registered
|
05/26/2004 23:48
Randy H. not registered
|
The Bright Side
Phase III design requires trials at three or four different clinical sites around the country. They must *all* be completed. Not all of them have even been started, though at least one has. It's not the time. It's about the money. If BioS had a spare 5-10 million three years ago, this treatment would be available soon if not today.
On the bright side, this delay will allow for a window of time where NA can spread, as it is the only valid option to surgery. If Collagen were here now, NA would have a harder time gaining acceptance (bad enough as it is). With any luck we will eventually have 3 options.
|
|
|
11/04/2004 23:36
mortnot registered
|
11/04/2004 23:36
mortnot registered
|
COLLAGENASE
I haven't heard much about this lately. Is it still in the works? Would you rather have NA or collangase if you had a choice? My NA went so well I believe I would stick with NA.
|
|
|
|
1 .. 5 6 7 8 9
|
1 .. 5 6 7 8 9
|