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Dupuytren~sq~s treatments
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05/30/2002 23:21
Jay Crussell

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05/30/2002 23:21
Jay Crussell

not registered

Operations

I had an operation in December on my palm to remove a lump under my ring finger - the begining of this disease. 6 months later I have a lump under my middle finger and am again getting pains in my hand. Do I have another operation now or wait till i get the contracture and operate then?
I am a 57 year old female who spends a lot of time on the computer keyboard and mouse -I work in IT training - my hands are important to me. Any suggestion?

05/30/2002 23:40
Eddie 
05/30/2002 23:40
Eddie 
Operations

Jay, assuming that you were diagnosed as dp ...
Personally I wonder what kind of a knife-happy doctor/surgeon would decide for surgery to remove a lump !
The general concensus (read the messages in this forum) is that surgery should be performed only when the patient really has practical problems using the hand(s).
In some cases dp comes back with a vengeance after surgery.
Surgery is not a real cure!!! It just removes some of the symptoms of the disease.
So, my lay advice would be not to go for another surgery, at least not as long as you can use your hands in a rather normal way, and the pain is not too bad.

08/02/2002 23:18
Dorothy

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08/02/2002 23:18
Dorothy

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Surgery for just lumps?

Jay, I am interested in what you said about having surgery for lump removal, and then the lumps came back. I first noticed one lump in May, saw the doctor (plastic surgeon, ha!) last month with several lumps and painful, I am already scheduled for surgery Aug 13th. I feel like I am being swept along so fast. This forum has helped me see that I would be better off with a hand surgeon (why did my doctor send me to a plastic surgeon?) and now after reading your message, I am wondering why I am having this surgery now for only lumps? Should I wait until the fingers start to bend????
Same as you, my hands are very important to me as my job is as sign language interpreter for the deaf. Without my hands I can't do this....
I am trying so hard to rapidly learn as much as I can about this disease.....

12/22/2002 23:42
Murray Atkinson

not registered

12/22/2002 23:42
Murray Atkinson

not registered

DC came back

Hi there. Just noticed a lot of the posts on his site are a couple years old. Has anyone haad luck with their respective methods of treatment? I had a DC removed by surgery from my left hand 1 year ago, and noticed 6 months ago that its back. Im only 30 years old and do not wish to have surgery every year or two for the rest of my life. Anyone have luck with any alternative therapies?
Any suggestions, sane or completely wacko, are more than welcome.
Thanx

01/27/2003 23:54
Hannah murphy

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01/27/2003 23:54
Hannah murphy

not registered

Can you help?

Hello, I am a 2nd medical student in London and am doing a project on Dupuytrens Contracture. If any of you would be kind enough to tell me about your experiences and the therapies you have undergone, I would be very grateful. Hope to hear from you soon, Hannah

02/01/2003 23:25
Alex Allen

not registered

02/01/2003 23:25
Alex Allen

not registered

Treatment experiences

Hi, Hannah. Just a quick overview:I'm 55 and just had my 2nd surgery on Jan.6( so my typing is still a bit slow). Both of my surgeries were done by a hand surgeon - an orthopedic surgeon with special training in hands. Here in Raleigh, the Hand Clinic has 3 surgeons and 3 therapists, and they have a thriving practice. After surgery, you get therapy about once a week, including heat and ultrasound. We also get a routine of exercises to keep the scar tissue stretched out. This includes working with a ball of putty-like material and sleeping with a splint. If you have any specific questions, send them to my email address.

02/05/2003 23:15
Fran

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02/05/2003 23:15
Fran

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Dupuytren Cause

Hi - I am a 6 yr old female. I worked at a job that I used my hands to handle a lot of paper. In 1997 I started having pain in my left hand. It turned out to be two ganglia cyst on the bone. It took Doctors 18 months to diagnose this. I had the ganglia cyst removed surgically. About 1998 I started developing Dupuytren in both of my hands. The lumps were very profound and I started getting the line that looks like my fingers will be drawing. I went for a manicure in about 2000 and the girl massaged my hands - the lumps decreased some. I still have some lumps in both my hands and still have the pulling lines in my fingers but to this date they have not caused me any problem. I do have a problem with my elbow that started along the same time as the cyst and the Dupuytren. I have to have surgery to have it repaired. It is my belief that this is all caused by repetitive trauma. I did a lot of collating and counting sheets of paper.

02/07/2003 23:23
Brian

not registered

02/07/2003 23:23
Brian

not registered

Collagenase injection/treatment

While attending a seminar I met a hand surgeon and showed
him my stage 1 DC. He concurred and suggested that I wait
for the acceptance of the colaagenase treatment. He said thet he is the reviewer for the reports submitted for
publication and that in his opinion, the treatment looks
very promising especially for localized conytractures. It
was a brief encounter. I asked about Neuroapiectomy, and
he said that local fasciectomy and complete fasciectomy were
the standard of care in US (yadda-yadda.) But, he said that the collagenase (Clostridium toxin) was worth waiting for.
I have no other information and am just passing along this
anecdote. This forum is a great site. Thanks.

02/07/2003 23:33
Sean 
02/07/2003 23:33
Sean 
Treatments

Brian,
You are right. It would be worth waiting for if a person has time. Unfortunately, many people won't be able to wait the expected 7 to 8 years before it is available. A person really needs to look for some form of treatment by the time a finger reaches 40 or 50 degrees. At that time a choice needs to be considered. Some people prefer no treatment, but that is a gamble.

02/08/2003 23:29
Margaret Gowdie

not registered

02/08/2003 23:29
Margaret Gowdie

not registered

Severe Duputren~sq~s

Hannah.
I am a 65yr old female from England, living in States for 50 yrs. Had disease since my late 30's. Have had 6 surgeries and expecting to have another one in April.I even had skin grafting on little fingers. One hand surgeon wanted to take it off.My Lt. hand is the worse, that's my writing hand. Have had 4 surgeries, with physical therapy,splints, heat etc etc. Nothing has stopped the progression. Sometimes 5 yrs will go by without any changes then in a yr. boom. I have both hands bad now.My doctor in Michigan measures them every 6 mnths. and when they get too bad suggest surgery.My father had this disase and lost 2 fingers. My grandma also had this I think, but in the years back people thought it was just arthritis. Hope this has been a help to somebody.

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