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04/29/2003 23:29
Jannot registered
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04/29/2003 23:29
Jannot registered
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nothing wrong with wanting NA
i have noticed that Gary/Sean never says anything good when someone posts a success story with NA. Keep in mind that he is not the moderator of this forum, just an NA basher. To question everyone's opinion about NA and to demand that they provide statistics is nuts.
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04/29/2003 23:15
Jose~sq~not registered
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04/29/2003 23:15
Jose~sq~not registered
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Proposal
Tom, Len, Jim, Jan, Jerry, etal.:
I would like to propose following solution for the dreaded "Dr. Evans Show".
It is a relatively simple task identifying posts by Gary/Sean, and other pseudonyms he/she might use. When we recognize one of his/her "loaded" messages, we ignore his/her calculated blather and re-focus on positive discussion. Over-reation to his/her slanted perspective will damage expected site intent. This forum shares very valuable knowledge, and must be dutifully maintained despite his/her continued attempts to further personal agenda.
My two cents worth!
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04/29/2003 23:24
JIMnot registered
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04/29/2003 23:24
JIMnot registered
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AMEN!
AMEN , Jose! As far as Gary/Sean goes: F*** Him and the horse he rode in on!
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04/29/2003 23:27
toMnot registered
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04/29/2003 23:27
toMnot registered
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Gary/Sean
My only concern, is that if he is unchallenged, is that new people to this forum could possibly be swayed towards a treatment without considering all options.
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04/29/2003 23:09
Jose~sq~not registered
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04/29/2003 23:09
Jose~sq~not registered
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Gary/Sean
Tom,
Understood, but make the extra effort to refrain from unnecessary confrontation. Re-state your position and move on.
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04/29/2003 23:38
Mary Beth & Richardnot registered
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04/29/2003 23:38
Mary Beth & Richardnot registered
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everyone~sq~s 2 cents worth
Tom, Jim, Jose, Jan, Nat, Len, Jerry, Ditto, ditto, ditto!! There are so many afflicted who have info to share. Most of those realize that everyone's "diathesis" varies. We are happy to hear any success stories, and everyone should feel free to express them with- out concern of being ridiculed, questioned, debated, or made to post proof. Len, you are definitely on the right track to wait and to avoid conventional surgery. Richard has had 3 fasciectomies in left hand, 1 in right. His hands are horrible. Sean has thrown out that he has a negative diathesis, no, he has a horrendous diathesis. We traveled 140 miles this weekend, took our child out of school and visited a different Ortho surgeon. My numerous emails to his Physicians Adminstrator, plus a few phone calls were as plaintive as is humanly possible. We want to discuss fasciotomy, guess what, he said it won't work. Then he went straight into discussing doing more fasciectomy, sooner not later. Not only that but he agreed with previous surgeon (Plastics) that he probably should just amputate the left pinkie. However, took my breath away when after looking at his right pinkie, bad but not nearly as much, said, "you may want to go ahead and amputate this one too, then you want have to worry about it and go through more surgery." I left totally depressed, thanks Jerry for the emails, but have now stood up and brushed off. Len, my father used to say sometimes you have to laugh so you won't cry. I have decided that this surgeon reminds me of the old John Belushi samarai segments on Saturday Night Live where he relished in brandishing his sword on virtually anything. Maybe instead of NA he advocates VA, voluntary amputation. A sure all cure that gets rid of it all the first time, GUARANTEED. Anyone who may have true info on the doc in Canada who studied NA under Dr Badois instruction please forward, as always good luck.
Mary Beth & Richard
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04/29/2003 23:38
Sean
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04/29/2003 23:38
Sean
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NA
To all of you( actually the same person or one big happy family),
I have never said anything against NA, in fact I considered it before surgery. I will consider it, among other procedures, when I do my other hand. I have never said anything against collagenase, which I hope gets developed.
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05/01/2003 23:19
JERRY
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05/01/2003 23:19
JERRY
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Mary Beth & Richard
Gary/Sean,
You are the only one in the forum with a DUAL PERSONALITY. I guess it takes one to think that all others are identical.
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05/01/2003 23:01
julinot registered
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05/01/2003 23:01
julinot registered
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Mary Beth & Richard
Mary Beth & Richard,
I don't know where you live, but I think you mentioned in one of your posts you lived on the east coast usa. If that is the case, I recommend you give Dr. Sowa a call, at First State Orthopedics in Wilmington DE, at the Christiana Hospital. I was very happy with the surgery he did on me. I say this yet I continue to try and avoid additional surgery since my case is so agressive that I would need it every 3-4 years and I am "only" 53 and already have had 2 surgeries. He probably won't do a fasiotomy, but he is a very fine surgeon, if you choose to have another fasiectomy. If you are close to New York, you may want to give Dr Hurst a call at stony brook university.
Regarding Dr. Spacek, her number is listed in other posts in the forum. You may want to giver her a call. No one to my knowledge has posted that they have talked to her.
If you are serious about NA, the doctors in france and switzerland respond quickly to any e-mail. I am currently in the process of arranging for NA in France.
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05/01/2003 23:12
Mike Bnot registered
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05/01/2003 23:12
Mike Bnot registered
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New to DC
I just started learning about my DC today, and now I have had a glimpse of what those bumps are going to bring me. I hope that all of you will continue to reveal what your stories are, and thus teach me how I can cope. I'm about to turn 55 and still can put my hands flat on the table, but your stories have me scared.
Do I discuss this with my Family Practioner and risk getting me blacklisted with a pre-existing condition if I change insurers?
Are there any other folks who have had successful results with NA bsides Jim?
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