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Forum for Dupuytren's and Ledderhose 
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  • Saw Dr. Eaton July 2nd
    • Saw Dr. Eaton July 2nd
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    08/04/2004 23:59
    Steve

    not registered
    08/04/2004 23:59
    Steve

    not registered

    		 ~dq~young~dq~

    wow...that is a difference...hope it works. I guess we are examples that NA can work for some but not all...are you also young like myself as that is often the fate of those who get it early. Even the french papers suggest NA is not going to work as well for younger patients given quick recurrance.
    08/10/2004 23:28
    Kristen L. Metzger

    not registered
    08/10/2004 23:28
    Kristen L. Metzger

    not registered

    		 ~dq~young~dq~

    Yeah, Steve - in my book I'm "young" - at least too young to have this - I'm 52 - got knuckle pads at 35, then lumps and curled fingers at 48. I'm trying to envision my hands 30 years from now - it's not a pretty sight. Kristen
    08/10/2004 23:26
    Sunshine

    not registered
    08/10/2004 23:26
    Sunshine

    not registered

    		 another successfull

    Kristen... Please keep us posted on Allopurinol...

    08/15/2004 23:43
    Pete

    not registered
    08/15/2004 23:43
    Pete

    not registered

    		 NA on each hand 3 days apart

    Has anyone had NA on left hand one day, then NA on right hand 3 days later. The left will require much treatment as 3 fingers and thunb are involved. The right only two fingers and thumb. Going next week for treatment. Thanks, Pete
    08/17/2004 23:38
    Peggy

    not registered
    08/17/2004 23:38
    Peggy

    not registered

    		 Needle Aponeurotomy

    I was diagnosed with Dupuytren's Disease in my left hand for the past 2-3 years. It has gotten to the point that I need some sort of "fixin'" of it. I am very interested in the NA approach. I am in California, and I have done a little research and cannot find anyone here who does this procedure. I am almost willing to fly to Florida to have it done there. Does anyone know of anyone here in California who is doing it now?

    08/17/2004 23:57
    Randy H.

    not registered
    08/17/2004 23:57
    Randy H.

    not registered

    		 Good Exercise

    Peggy,

    NA is still too new to the US (less than 1 year). Eaton is your guy.

    "Almost Willing"? I'm CA as well. Personally, I'd be willing to hitch hick if necessary. Actualy, *walking* would be preferable to hand therapy:)

    08/17/2004 23:10
    Peggy

    not registered
    08/17/2004 23:10
    Peggy

    not registered

    		 Very Willing. . .

    Thanks for the post. I will rephrase my sentence, I would be willing to fly across the continent to have this done. The more I read about the surgery, I want to run the other way. Shall we get a pool together? Maybe we can get a group rate on the plane fare!

    08/18/2004 23:14
    Peter van der Linden

    not registered
    08/18/2004 23:14
    Peter van der Linden

    not registered

    		 Dupuytren~sq~s diagnosis

    After reading the articles in this forum, I have without a doubt seen the light. On Tuesday 17th August I was diagnosed with Dupuytren's disease. I do not have any contractions yet, but visited a surgeon here in South Africa when I saw that two "bumps" in my hand had increased in size within 2 months (thought they were callouses). Needless to say the shock of his diagnosis was heartbreaking - especially when he told me that there was no way to prevent the spread or outcome of the disease. Is this true.... I was basically told to come back when my ring & index fingers started to curl?
    Help??? I am a pilot and electronics engineer and really my livelyhood depends on my hands.
    I read the article by Prof. Marie A. Badalamente and Dr. Lawrence C. Hurst, who were looking for volenteers.... is this offer still open... if not I will fly to wherever nescessary and pay whatever cost to try and halt the disease.Can anyone please advise?
    08/18/2004 23:14
    Terry

    not registered
    08/18/2004 23:14
    Terry

    not registered

    		 HANDS

    Hi,

    There is lots of info about dupuytrens on this website. Well explained and consice info about 'NA' which many of us discuss is available at www.handcenter.org I personally saw Dr. Rappoport in Switerland, he was amazing, friendly and the outcome left me grateful.

    Good luck
    Terry

    08/18/2004 23:39
    Eddie 
    08/18/2004 23:39
    Eddie      		HANDS

    Peter,

    Rule number one : DON'T PANIC !
    It is not because you are diagnosed with DP that you will end up with 'real' problems. Meaning, DP can stay dormant for many years, before ( if ever ) leading to contractions.
    ( some people have less luck of course ).

    I was first diagnosed over 20 years ago, and had first contractions about 15 years later.

    So, cross that bridge when ( and if ) you get there.
    In the meanwhile, you can of course read the thousands of posts about DP on the internet.

    Eddie
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