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Visit and treatment by Dr.Eaton Jupiter Florida
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08/02/2005 23:46
carol 
08/02/2005 23:46
carol 
response to ~dq~observer~dq~

i have no idea what you are talking about--i never copied 230 messages anywhere.
i have never met Dr. Eaton, never had NA and never been to that part of Fla.
i just had surgery and was looking for info on recuperation and other options for future issues.

08/02/2005 23:29
Tolucca

not registered

08/02/2005 23:29
Tolucca

not registered

Good Luck

Carol,

You'll have a better idea why surgeons aren't so interested in NA when you go back for the cast removal and talk to The Man. I'll guess he'll recommend against it. You can tell us why.

With the traditional surgery most doctors wait until you reach about 45 degrees of contraction, so I did. With NA it can be done much sooner, about 20 or so. I was a bit more than that. For me, the difference between the recovery time and final results are Night and Day. I expect recurrence however, so if someone like your surgeon LA would see the light on this we'd all be better off. I'd rather stay here than fly any time. Good Luck.

And, listen to Sean about recovery.

08/02/2005 23:39
Steve Abrams

not registered

08/02/2005 23:39
Steve Abrams

not registered

Thanks, Steve and sorry Carol

Observer -

On this website, if you post to a board, it comes to the top of the list. So, for example, if a board has 250 messages on it, but the last one was posted last year you won't see it anywhere near the top. But if 1 person posts to it, right now, it comes to the top of the list.

Steve

08/02/2005 23:05
Observer

not registered

08/02/2005 23:05
Observer

not registered

Thanks, Steve and sorry Carol

I was unaware that the topic was brought to the top and I owe Carol an apology.

08/02/2005 23:09
carol 
08/02/2005 23:09
carol 
to observer

apology accepted

08/06/2005 23:36
carol 
08/06/2005 23:36
carol 
11 days after surgery

THe doctor took my cast off. The pinky is very swollen and numb. He said that I might experience numbness for 2-6 months becuase my nodules were close to nerves and he had to "move the nerves around".
The wound looks gross, but he says it is not infected.
I am now soaking my hand 4x a day and trying to stretch the fingers to restore some mobility. He will remove the stitches this week and I will start pt after that.
I asked him about NA and he said that it is unproven and that it doesn't work in situations where you have nodules in the fingers.
Has anyone had NA with nodules in the fingers where it has worked?
Thanks, Carol

08/06/2005 23:36
Tolucca

not registered

08/06/2005 23:36
Tolucca

not registered

Gold Standard

carol,

Yes. I had nodules both above and below the PIP of my ring ringer. No problem. And interestingly, after the cord connecting these two nodules was snapped, the upper one shrank considerably. So your guy is mistaken, but unfortunately that's still pretty normal for most CHS at this point. And yes, some manifestations of the disease aren't well treated by NA and do require OS. But is that a good reason not to do NA on the vast majority of all cases that are good candidates?

Unproven? That depends on your requirement for "proof". If Proof in this context requires a number of controlled five year studies with follow up recurrence data........No, NA is still Unproven in that sense, and will not be for years. True, until something this revolutionary gets published in peer reviewed medical journals, CHS of the reputation and caliber of your surgeon can, and will, sit back and ignore it (Eaton's not gong to wait five years before he goes to the 2006 CHS convention with the data he now has). And fine, take the 40 years of French data off the table as far too informal by AMA standards. All that can be offered as "proof" is Eaton's (and others) 1,200+ hands, of which I am one.

What your guy wants is Gold Standard Proof. And he's entitled. However he'll just have to wait and be left behind as more and more CHS are willing to jump now and offer a level of care that has proven to many to be quite superior.

I hope the numbness in your pinkie will resolve and that you have a full and quick recovery. DRM did his part. Now it's your turn.

08/07/2005 23:14
Tolucca

not registered

08/07/2005 23:14
Tolucca

not registered

Frequent Filer Miles

carol,

See......

With all due respect to the Brightest and Best in the West......apparently Clueless in LA (only in regard to NA).......Nothing new.

(The above statement has not been evaluated by the FDA, the AMA or the AFL-CIO. Consult anyone who has done at least 10 successful NA's for verification. (You'll need an airplane for that.)

08/07/2005 23:09
Carol

not registered

08/07/2005 23:09
Carol

not registered

thank you and question

Thank you for all of the information and support.
I am relieved to hear that NA may be an option for me next time because my right hand is getting worse. After going through the surgery and now starting the pt, the thought of doing this again for the right hand is not very appealing.

Quick question for the group--I also have Renaud's syndrome in my hands-does anyone else have that? I was wondering if there might be a connection between this and DC.

Regards,
Carol

08/09/2005 23:16
Kristen 
08/09/2005 23:16
Kristen 
Response to Carol - Raynaud~sq~s

Carol - I also have Raynaud's syndrome - it appeared right before my Dupuytren's got really aggressive. Kristen

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