Visit and treatment by Dr.Eaton Jupiter Florida |
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09/07/2005 23:53
Randy H. not registered
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09/07/2005 23:53
Randy H. not registered
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Dup after surgery
Carol,
I think Susi may have been referring to NA as "surgery". If so, the answer is that pain & recovery for NA is about 5% of what you (and I some months back) are going through. OS recovery 'aint no picnic. NA recovery is a non-issue.
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09/12/2005 23:03
Wolfgang Wachnot registered
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09/12/2005 23:03
Wolfgang Wachnot registered
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Dup after surgery
Carol, I had the same experience as you had: after surgery I developed seven new nodules, also on the not operated hand. Unfortunately I have to say that their growth was rather agressive, much faster than that of the removed cord. I think some people react on surgery by developing new nodules and in that case I view surgery with some doubt. I will not undergo surgery again.
Should your nodules continue to grow after six months, don't dispare. NA is available and by then there might also be a possibility for radiation therapy.
Good luck!
Wolfgang
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09/12/2005 23:54
Randy H. not registered
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09/12/2005 23:54
Randy H. not registered
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One Two Punch
Wolfgang,
Count me in as well in having the disease spread to the other hand just *months* after OS. It seemed to me to be connected, but I can't find anything published in the medical community that would indicate this. It could be said that it was simply a coincidence, and that the rapid spread of the disease would have happened just the same way had I not hand OS on the other hand.
A *flare* or recurrence on the *same* hand is common, though some CHS deny the relationship.
If the connection can be shown to exist to the *other* hand, this would be yet *another* in a long long list of reasons to try NA before submitting to OS.
We North Americans are inspecting our nodules with envy as we hear about your radiation treatment. Only an extended stay in Germany would do the trick for us and that's out of the question for most. It sounds like a combo of Radiation and NA could virtually eliminate the need for OS. That might render the disease as just a minor nuisance for 95% of cases.
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09/12/2005 23:47
Carolnot registered
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09/12/2005 23:47
Carolnot registered
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Wolfgang
Hello Wolfgang, Thank you for the encouraging words. If and when my fingers with the new nodules begin to contract, I am willing to try anything to avoid surgery again. Please keep us informed about the progress with radiation as an option for treatment. Carol
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09/17/2005 23:18
Wolfgang Wachnot registered
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09/17/2005 23:18
Wolfgang Wachnot registered
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OP triggered Dupuytren
Randy, I am very sorry to hear that you experienced the same triggering of Dupuytren after surgery! I myself developed 3 new cords on the operated hand and 4 on the not operated hand. 6 of them started within about 1 month after surgery and all are in areas that had no symptoms whatsoever before the surgery.
Literature occasionaly documents triggering of Dupuytren by a hand accident. I was told that the healing process is responsible for creating a flood of new cells that might trigger MD, if someone already has the tendency to develop it. It does take not much brain to view surgery as a major accident to the hand and to realize that people who had surgery on Dupuytren have a tenency to develop Dupuytren. It is actually amazing that no one so far looked into that. So much to do.
I agree with you that we alreay could have a three stage therapy with radiation to treat the initial mini-nodules (with a chance to do away with them), NA to treat cords or nodules that already became a nuisance, and hand surgery as a last resort. We will get there (hopefully before we die ...) and eventually someone might even understand the root causes and develop a less symptom oriented therapy.
Wolfgang
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09/20/2005 23:56
Terrynot registered
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09/20/2005 23:56
Terrynot registered
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Both Hands a success
Just a quick note as I am leaving for the airport back to Australia in 30 mins.
Had both hands NA'd by Dr Eaton Thursday and Friday last week, so not quite a week ago. 55 degrees and 35 degrees are now straight and I am having no issues. Some minor bruising and cracking of skin when fingers straightened, more on the 55 degree than the 35 degree (Don't leave it too late folks) other than that the procedure is only a bit uncomfortable. We touched a nerve during the release of the 55 degree but it was very obvious he was on a nerve and hence immediately stopped and reviewed the strategy, no worse than a tooth nerve being touched. To one and all who can get NA I can assure you it is not painful, provides immediate gratification and is soul lifting. I will post another reply in say a week to provide some notice about progress.
Back to Australia, report to my medical insurer and hopefully get some Australin Doctors interested through the insurer.
To all who have contributed to the forum and shared their experiences, a heartfelt thank you.
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09/21/2005 23:45
Francesnot registered
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09/21/2005 23:45
Francesnot registered
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Woo Hoo!
Dear Terry,
You've nailed the feeling right on the head when you call it 'soul lifting'. I'm thrilled to hear your procedure went well.....Nowwww...Go get'em in Australia! :-) We're all here cheering you on. If there is anything you need please feel free to ask.
Frances
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09/21/2005 23:06
miriam
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09/21/2005 23:06
miriam
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dups fast track
Hi carol & kristen seems we have in common that our DD is on the fast track. I have contacted Dr Eaton to have NA a THIRD NA on my left hand and he told me- thru his nurse- to consult with a local hand surgeon !!!! I am shocked and dismayed now- Apparently the good doctor feels I have problems way to fast and he can no longer help me (?) Last surgery was in March 2005 on left hand only.Right hand is holding well one year after NA.
I will contact Dr Denkler in CA as he is cloe to me - I live in Seattle- but I'm sure disappointed. How many of you out there have had NA with Dr Denkler? apprecaite any and all comments/suggestions. I need feedback please- thanks .
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09/22/2005 23:00
jeynot registered
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09/22/2005 23:00
jeynot registered
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Dr. Denkler
Hi Miriam: I am also from the Seattle area and recently; 6 weeks ago; had NA performed on both my hands by Dr. Denkler, was quite satisfied then and still am. I think he may be in Europe now seeing the France Dr's on their NA technique. See also, post under this forum topics "treatment by Dr. Denkler", last post 9-20-2005. Best to you, Jey.
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09/29/2005 23:10
Alannot registered
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09/29/2005 23:10
Alannot registered
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NA Treatment
I have had Dupuytrens in my small finger for a number of years. I journeyed down to Dr. Eaton last year and was treated with NA for the contraction that was greater than 145 degrees. Subsequently, I have had to return for two more treatments and my finger has never even approached being flat after the NA treatments. Unfortunately, in my case each treatment yields less of a release each procedure and the chords grow back quite rapidly and the contraction resumes with vengeance. This points out well to me that Dupuytrens is in fact a disease, from which at present there is no known cure. This is not written to discourage NA treatment as it is such a better and humane treatment than the open-hand surgery. It does,however, point out that NA is not always a complete success. Hopefully there will someday be a cure. I suspect, in my case that I will never see that day since I am in my late 60's. I also suspect that Charlie Eaton will also reject me as a patient again based on my individual case results. Alan
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1 .. 14 .. 25 26 27 28 29 30
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