| Lost password
459 users onlineYou are not loggend in.  Login
Dupytrens and Peyronies
 1 2 3 4
 1 2 3 4
12/22/1999 23:26
James Jones

not registered

12/22/1999 23:26
James Jones

not registered

Dupytrens and Peyronies

I had surgery for Dupytrens in Nov. and have had symptons of Peyronies Desease for a couple of years. Is there a connection and is surgery the only answer?

01/04/2000 23:55
Bill Poole

not registered

01/04/2000 23:55
Bill Poole

not registered

Dupuytrens and Peyronies


Ihave both and have wondered if their contacted. I'm going to France in March to get my handdone with needle aponevrotomy. Any information on peyronies and the needle aponevrotomy please let me hear from you.


Bill Poole

01/21/2000 23:46
Ralph Harris

not registered

01/21/2000 23:46
Ralph Harris

not registered

Dupytrens

Is Dupytrens connected to Peyronies disease ?

01/30/2000 23:30
Gary Acquaviva

not registered

01/30/2000 23:30
Gary Acquaviva

not registered

a connection

Bill
Please keep me posted on your trip to France. From what I read there is a relationship
between the two maladies,as dupuytrens can affect all extremities including the feet. Surgery on some sounds like medieval torture. I found references
to orallly taking vitamine e three times a day, vitamine e cream, collagenase injections
and more. Please keep me abreast. I am trying to organize a group interested to more
efficiently do research.
Gary

06/13/2000 23:05
D Beason

not registered

06/13/2000 23:05
D Beason

not registered

Non-Surgical Cure ?

Hope you can help!

I’m new to the Dupuytren's Forum, but not to Dupuytren's that showed up about 10 years ago. Had surgery on my left hand 2 years ago but Dupuytren's is now back in the L hand worse than ever. So I know from experience surgery is only a stopgap.

I know about the French Needle so I am very interested in info about non-surgical cures. Question:

1) Are there any legit non-surgical cures? Who and where?
2) Is the SUNY Stony Brook cure near going public? Any info on the status?
3) Are there any doctors (or anyone else) doing injections? Who and where?

Please help with any info you have. I don’t want any more surgery!

Thanks Very Much!

11/19/2000 23:05
bob 
11/19/2000 23:05
bob 
dupuytrens and peyronies

It's been well known by my doctors that there is a relationship between Dupuytrens and peyronies. It is also related to plantar fibroma (dupuytrens of the foot) and Garrod's nodes (knuckle pads). I've had the dupuytrens syndrome in all five documented places. The peyronies subsided to only a mild plaque and curvature, but the Feet and hands are growing rapidly. I had surgury on one foot, but it returned in the adjacent areas. Knuckle pads hurt especially when I bang them or knock on a door.
Again, as far as my research has taken me, they are all related. Collagenase sounds too good to be true if and when it becomes available. Soon I hope.

01/02/2001 23:03
Louise O~sq~Regan Clark

not registered

01/02/2001 23:03
Louise O~sq~Regan Clark

not registered

Desperately seeking information

My husband has just been diagnosed with Dupuytrens disease. He is a carpenter by trade and is against having surgery done because he's afraid he'll never be able to pick up a hammer again. We are desperately trying to find out more information and if there are any non-surgical cures available. Are there any doctors (or anyone else) doing injections? And what is the SUNY Stony Brook cure? Please any kind of information would be greatly appreciated. Thanks a million.

01/04/2001 23:58
lilly

not registered

01/04/2001 23:58
lilly

not registered

Research, research, research

I've posted several times. You have to wade through the messages and read. I had the operation in August, I cannot tell you that it was successful. Try everything else first. Read the posts. If you have no alternative then do the operation. I know this may not be helpful but the operation is no guarantee of success.

01/13/2001 23:01
Danielle Battut

not registered

01/13/2001 23:01
Danielle Battut

not registered

D.C. and its cure

I am female 53 years old, my mother is from Northern Europe which is from where I believe I got the desease.
I have had 6 surgeries on both of my hands in the last 6 years. I have D.C. underneath my right foot too.
My suregeries have been done at UCLA (Los Angeles)

I recently read about needle treatement in France and about the reseach done at StonyBrook.
Has anyone received needle treatement. I would like to have it done too.

Danielle

01/15/2001 23:26
Alain lenoir

not registered

01/15/2001 23:26
Alain lenoir

not registered

Non surgical treatment for peyronie exist

I have been treated for my peyronies disease and now it's ok.

it's the french treatment.

For more information, i think you can send an email to peyronie@dupuytren.org. I am not sure of the adress but you can try.

Send a reply in this forum if the email is ok

 1 2 3 4
 1 2 3 4
relationships   condition   surgery   schwanomatosis   Non-Surgical   diagnosed   Dupuytrens   treatment   research   collagenase   Dupuytren   information   aponevrotomy   practitioner   operation   disease   peyroniesassoc   peyronie   Dupytrens   Peyronies