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Found NA in the USA
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09/28/03 02:53
jim h

not registered

09/28/03 02:53
jim h

not registered

HELLO EVERYONE

Sean,

I haven't had any recurrence in the 'cleared' areas years later. However, very soon after surgery, other areas of the hand suddenly became involved. So my statistically insignificant sample (2 surgeries) suggests that removing the bad tissue does prevent recurrence, but that the trauma of surgery tends to start the process in adjacent areas.

If that's the case, NA offers the converse - minimal trauma, but no removal of bad tissue. So I might expect more recurrence, but less provocation of the disease in adjacent areas.

It's possible that the recurrence statistics we've seen may be skewed to the extent that they only recognize recurrence in the actual area of the sugery.

All just speculation, of course. I suspect there's plenty of misinformation in circulation, and the hard statistical data we're looking for - an unbiased long term followup study on a significant number of randomly selected patients - doesn't exist yet.

09/28/03 02:08
Betsy

not registered

09/28/03 02:08
Betsy

not registered

HELLO EVERYONE

This is the first time I have visited this site since I posted more than a week ago. I am so shocked by what I read.

Here is the bottom line.............

My doctor did not use a knife. My hand is straightened. I was not in pain. I was not inconvenienced much by the procedure. I have no idea if it will reoccur or not. It sure beats everything I have heard from those that have had the invasive surgery. I was thrilled.

I posted and have taken my time to answer every email I have received because I care about people, because I know the agony I went through trying the find the right decision FOR ME. I want to respond to those who are in distress as I was, not to defend the procedure my doctor did or the merits of any procedure. I just want to offer my experience.

I suggest those who do not believe, dismiss. Anyone who is looking for hope, please feel free to email and I will respond as soon as possible.

Betsy

09/28/03 02:41
Sean 
09/28/03 02:41
Sean 
NA

Betsy,
I think it is terrific that you had a good experience. Your surgeon has the very best of credentials and obviously knows what he is doing. Will you have follow-up appointments with him? How about physical therapy?
Good luck,
Sean

09/28/03 02:45
Sean 
09/28/03 02:45
Sean 
DC

Jim h,
Your experience just shows how difficult it is to pinpoint causes of DC. I think that is what can feed disagreements about DC. It is just an unpredictable disease that takes different directions with different people.
Sean

09/29/03 02:59
Eddie 
09/29/03 02:59
Eddie 
NA in USA

@Sean :

Even though I don't always agree with everything you say, I have to admire you for still participating in this forum, you being bickered at all the time by so many peope :)

About 'removing all the bad tissue' :
the only 'relevant' thing I read ( I think ) was in the study of Dr Moermans ( end of par 6.5 ) :
".... that fascia deliberately taken by the surgeon at the farthest distance from clearly involved Dupuytren's tissue and representing specimens indistinguishable clinically and histologically from normal palmar fascia, in all cases showed all the biochemical changes seen in Dupuytren's collagen. Even at the ultrastructural level, there was no discernible pathology in the collagen or in the morphology of the cells. The chemical changes were present whether or not myofibroblasts were visible and they occur before the fibroblasts are morphologically modified or replaced by myofibroblasts. This clearly demonstrates that it is unthinkable to surgically remove all the fascia involved by Dupuytren's disease."

@Jim h :
Quoting from your posting :
"All just speculation, of course. I suspect there's plenty of misinformation in circulation, and the hard statistical data we're looking for - an unbiased long term followup study on a significant number of randomly selected patients - doesn't exist yet. "
You couldn't be more right !

@Betsy :
Great !

@all :
When are the personal attacks, by anyone on anyone, are going to stop ???
Asking people to ignore a particular poster ? Censoring ?
Geeezzz, people, we are all in the same boat !

09/29/03 02:58
Crayton

not registered

09/29/03 02:58
Crayton

not registered

NA in USA

I left Dr Eaton a message today via email including pics of my severe situation. Has or is anyone else considering him versus a trip to Europe.

09/29/03 02:11
Nat

not registered

09/29/03 02:11
Nat

not registered

Question for Eddie and the Gary/Sean Collective

Yes: I did and he only performs SURGERY. The one thing that troubles me about Betsy's procedure is that she really has no idea what was done to her hand? I suggest she question the good Doc as to his utilized method.

09/29/03 02:50
toM

not registered

09/29/03 02:50
toM

not registered

Question for Eddie and the Gary/Sean Collective

Eddie, do you think it is harassment to ask somebody for documentation when they make claims?

Or do you think it is ok to make assertions, claiming that the assertions are from reputable sources, and never provide that source and to ignore anybody that asks for it?

Gary/Sean, what is your reason for not giving the sources of your information? Is it because it has been so thoroughly discredited in the past? Or because they don't exist??

09/29/03 02:38
Mike K

not registered

09/29/03 02:38
Mike K

not registered

I have a question for Betsy......

having read your posts, it seems to me that you are not telling the whole story of your experience with Dr. Eaton. If Dr. Eaton did not use a knife, what exactly *did* he use. I have examined Dr. Eaton's web site thoroughly, and nowhere does he mention the use of NA. He only mentions surgical procedures as his means of treatment for Dupuytren's contracture. I would caution you in future to be more complete in your explanation of the exact procedure performed on your hand, so as to not raise false hope for a lot of people that read this board. Additionally, if you are trying to help people by "offering your experience", instead of asking interested persons to email you, it would be much more convenient for all concerned if you would just post the information on this forum.

Michael Kempf DDS

09/30/03 02:11
Gary 
09/30/03 02:11
Gary 
Dr Eaton...

I sent Dr Eaton digital pictures of my hand and he responded indicating I would be a good candidate for a "Needle Aponeurotomy" (not "Needle Aponovrotomy"). Anybody care to hazard a guess at what "Needle Aponeurotomy" means? He said I could come for a consult and schedule "surgery" the following day.

I decided to go to Paris for the procedure...

By the way... I saw my hand surgeon yesterday and he was very interested in the NA performed by the French docs. He took before pictures of my hand and wants me to come back after I have my hand done in Paris in October. He took quite a while examining my finger. He said he could see no reason why there would be much danger and thinks it is a great alternative -- if it works...

BTW: I had surgery on my little finger ten years ago -- and I am NOT going through that again...

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