| Lost password
245 users onlineYou are not loggend in.  Login
Forum for Dupuytren's and Ledderhose 
  • Forum
    • › 
  • Forum Archive 2
    • › 
  • Anyone have any success with an alternative treatment?
    • Anyone have any success with an alternative treatment?
    		 1 2 3
     1 2 3
    11/17/2005 23:53
    Leah

    not registered
    11/17/2005 23:53
    Leah

    not registered

    		 Anyone have any success with an alternative treatment?

    Hi,
    My cousin has had surgery for Dupuytrens. The surgery hasn't been terribly successful, as she still can't straighten her fingers.
    She is watching it start in her other hand and hoping there may be something she can do, to halt or slow its progress.
    Has anyone had any luck with dietary changes or other therapies?

    Thanks for your help, Leah.
    11/18/2005 23:39
    Frances

    not registered
    11/18/2005 23:39
    Frances

    not registered

    		 alternatives

    Hi,

    There is lots in this forum.

    Frances
    11/19/2005 23:09
    Leah

    not registered
    11/19/2005 23:09
    Leah

    not registered

    		 alternatives

    Thanks Frances.
    11/19/2005 23:52
    Wolfgang Wach

    not registered
    11/19/2005 23:52
    Wolfgang Wach

    not registered

    		 alternatives

    I had surgery on my left hand about 3 years ago and quickly afterwards realized that the surgery probably triggered growth of several new nodules, also on the not operated hand. I was able to slow down the growth of some nodules and get rid of the rest by using radiation therapy (there is a thread on this therapy). I understand from this forum that radiation therapy for Dupuytren is not used in the US and probably not in Australia either. But should you happen to know someone who is into that kind of therapy in Australia, you might inquire about it.

    You can find more information about therapies also on our web site www.dupuytren-onine.info.

    All the best to you!

    Wolfgang
    11/20/2005 23:27
    Ellen 
    11/20/2005 23:27
    Ellen      		B6 - may have had an effect

    I have had duppy for about 10 years (I'm 57 now), and have had NA 3x from Drs. Eaton and Pess (very successfully I might add) - anyway,I recently had a nerve test to see if I had carpal (I didn't), and it was suggested that I take vitamin B6 daily to help with the carpal symptoms. Lo and behold, my duppy PIP joint seems to have gotten better, and the contracture actually lessened. I can't explain it - I'm just enjoying the change. It is the first time I've had a contracture get better without a procedure! I didn't even think it was possible - but it happened.
    11/22/2005 23:11
    Certified Hand Therapist

    not registered
    11/22/2005 23:11
    Certified Hand Therapist

    not registered

    		 Therapy for Dupuytren~sq~s should be reserved for post op.

    Therapy for Dupuytren's Disease is generally only of value after a medical procedure. Any benefit from conservative treatment of Dupuytren's Disease usually is lost almost immediately after conservative treatment is stopped. The success of surgery can be affected by how long the hand was contracted and whether or not the volar plate ligaments of the proximal interphalangeal joints have contracted also. Volar plate ligaments will contract as a result of the prolonged flexed position no matter what caused the flexed position. The success of surgery can also depend on the use of appropriate post op splints and whether or not the patient has therapy after the surgery.
    11/22/2005 23:42
    jimh 
    11/22/2005 23:42
    jimh      		conservative treatment

    Question for 'hand therapist': I know that stretching (except during reovery from surgery) is not recommended and is said not to work. However, I've never been totally convinced of that. I think it's very difficult to get people to stick with any sort of a routine so I wonder if the studies done on stretching involved a cross-section of people - many only making a token effort - or focused on those who would really stretch hard and long.

    I DO NOT recommend stretching to anyone. But, after 2 surgeries, I now have a thumb contracture that was slowly progressing and felt I had nothing to lose by trying something agressive. A couple times a day, I force the thumb back to the point where it starts to hurt and hold it there for several minutes. And I feel that I've been at least stopping further progression.

    11/23/2005 23:22
    maglyn

    not registered
    11/23/2005 23:22
    maglyn

    not registered

    		 Vitamin B6

    I am very interested in the effect of vitamin B6 on Dupuytrens. How much do you have to take daily?

    I have it in both hands .....
    11/23/2005 23:55
    Wolfgang Wach

    not registered
    11/23/2005 23:55
    Wolfgang Wach

    not registered

    		 stretching

    Jim, I guess this is another one of those trials where the result depends on the specific patient. For Ledderhose some patients report that regular exercises, like dancing or walking on sand, helped them to keep the disease under control. Other patients report that e.g. walking on sand is too painful and useless.

    The outcome might depend on the personal condition and on the stage of disease. For th time being the only advice might be to give it a try.

    Wolfgang
    11/30/2005 23:25
    ellen

    not registered
    11/30/2005 23:25
    ellen

    not registered

    		 B6

    One 200mg supplement a day
    		 1 2 3
     1 2 3
    aggressive   interventions   dupuytren-onine   dupuytren`s   therapy   contracture   conservative   acupuncturists   patients   stretching   July-discharged   recommended   surgery   Dupuytren~sq~s   alternatives   interphalangeal   acupuncture   treatment   procedure   physiotherapist