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Anyone have any success with an alternative treatment?
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12/04/2005 23:42
phil 
12/04/2005 23:42
phil 
acupuncture and diet

I am a 54 year old musician in the UK diagnosed with dupuytren`s and peyronie`s last april 05.The dupuytren`s was at an early stage-in the first joint of the little finger- left hand.I embarked on dietary changes-no dairy no wheat and no food from the fridge and no alchohol!!I took lecethin, vit B6 and plenty of tomatoes as recommended by this forum and Vit E,Paba etc as recommended by The Peyronie`s Institute.But my main therapy has been acupuncture.I have had 30plus treatments twice a week.The result has been to drive the dupuytren`s back to the point where the hand surgeon who recommended an operation in July-discharged me for 12 months in November saying there was not enough dups left to justify an operation!I have also had 4 ultrasound treatments administered by a physiotherapist.This radical lifestyle change isn`t for everyone-but as a profesional musician,I wish to prolong my gigging career as long as posibble.In the UK acupuncture costs £32 a session.All this has been a big commitment in time and money-but well worth it if the progress my hand has made continues.

03/16/2006 23:19
Dilly

not registered

03/16/2006 23:19
Dilly

not registered

yoga

I practice yoga and I have DD. We do our yoga in a vwey warm room. The streching helps my semi bent fingers, much as warm water might. It helps the pain and my fingers are improvered for a few days until I do yoga again.

03/21/2006 23:22
Randy H.

not registered

03/21/2006 23:22
Randy H.

not registered

Don~sq~t Let It go to 50.

Damien,

I'm glad your finger is out of pain. However, you probably don't have to live with a 40 degrees contraction on you ringer *either*. In fact, the sooner you deal with this the better, especially if the contracted joint is the PIP, which is the second from the palm. It can be corrected without traditional invasive surgery using NA.


We all forced to make personal decisions abut how best to deal with our common disease. But the best decisions are fully *informed* decisions. This site is a great place to be for that.

03/22/2006 23:22
Damien

not registered

03/22/2006 23:22
Damien

not registered

NA

Hey Randy,

Thanks for your post. I have also found your previous posts interesting and informative. Yes bend is in the PIP joint. I have been reading up on NA since discovering it on this forum. A few days ago a rang Dr Hunter Smith's surgery in Mornington. The staff were helpful and informed me they have two staff performing NA and advised they are performing this technique regularly. They also suggested they were sure someone in Sydney, where I live, would also perform the procedure. I have currently contacted about 15 hand surgeons, only one of whose staff had heard of NA. Yesterday I had a surgeon in Sydney call me back to tell me NA did not work as the scar tissue simply joined the cord together again. He was verging on aggressive with this opinion stating anyone that said otherwise was an idiot. (Maybe this should have been posted in the forum on NA in Australia)

I have since found a scientific journal article from France regarding the success of NA. While generally stating the procedure is on par in terms of success with surgery (with the benefit of reduced healing time etc), they do suggest it might not be appropriare for younger patients. As I am 32 I am relatively young to have dupuytrens. I wonder if you have any comments regarding this. I am concerned I may have a more aggressive form and almost want to delay any procedure as long as possible in case it comes back more aggresively or in different hand, fingers etc. One patient in France had 42 visits in 2 years.

After stating all that I am probably going to book an appointment with Dr Hunter Smith in a couple of months.

Sorry this was rather long winded everyone.

03/22/2006 23:41
Randy H.

not registered

03/22/2006 23:41
Randy H.

not registered

My Advice

Damien,

No apologies needed Mate :)

The one downside of NA is an assumed higher rates of recurrence. That's what the surgeon with the high opinion of his opinion was alluding to. And, to be sure, it is a real issue for some people. And it *is* the people with the more aggressive cases. (Eaton has refused to continue NA treatment with some patients because of this and has recommend they try OS.) Further, the younger you are when you develop the disease, the more aggressive your case is likely to be.

*However*.....the vast majority of patients posting here and in Eaton's data have found NA a perfectly valid substitute for full OS. The only way you can know how *your* particular diseased biology will react to NA is to try it. And that's exactly what is done in all forms of treatment that have a "ladder" from the most benign to the most aggressive and draconian. You start at the bottom and work your way up until something works. Generally you go through a lot of treatments before succumbing to Open Heart Surgery.

With Dups we *finally* have a real first step, whereas before we only had different forms of OS. The majority of hand surgeons are still in the dark that this new form of "fasciotomy" is safe and *effective*. It is just assumed that without removing all the diseased tissue it will simply return almost immediately. As that assumption has proved to be quite invalid there will be some docs with egg on their face. Furthermore, OS has high rates of recurrence itself and is limited in the number of times it can be repeated.

Bottom Line: Exhaust NA's usefulness before moving up the ladder.

03/22/2006 23:23
jim h

not registered

03/22/2006 23:23
jim h

not registered

Well said, Jim H

Larry is correct, that surgeon is totally off base. I haven't had NA myself, yet, but I will in the future, as the results of literally dozens of posters here speak for themselves.

I have had 2 surgeries, in my 40s, and I will not have another. Surgery does its own damage, creates its own problems, and makes future treatements vastly more difficult and less likely to succeed. Recovery is long and tedious at best, and is typically understated during the run-up to surgery. There is absolutely no reason not to try NA, possibly even several times if necessary, before resorting to surgery.

The severed cord does NOT simply re-connect. While some posters here have had NA repeated over the years, I'd be happy to undergo it every year for the rest of my life rather than have another surgery.

03/23/2006 23:24
Graeme

not registered

03/23/2006 23:24
Graeme

not registered

Well said, Jim H

To Jim H

what a great post. Very well said.

Graeme

03/23/2006 23:03
Kristen 
03/23/2006 23:03
Kristen 
Well said, Jim H

Jim- You know exactly what you're talking about when you say you'd rather have NA every year than have surgery again. I have aggressive DC in both hands. I have been having NA every six months for 5 years now. 2 years ago, I abandoned NA on my left pinky due to a frozen PIP joint. I had open surgery 3 weeks ago. I'd rather have NA once a month than surgery ever again. NA vs. surgery is like comparing a haircut to brain surgery. Kristen

04/02/2006 23:09
Tolucca

not registered

04/02/2006 23:09
Tolucca

not registered

A Complete No Brainer

Nick,

They say Paris in the Spring is wonderful.

04/03/2006 23:44
marjorie 
04/03/2006 23:44
marjorie 
NA in UK

Hi Nick,
There is no-one in the UK doing the NA procedure. This is official from the British Society for Surgery of the Hand. Surgery should be your last thought. Give NA a try on your right hand. NA does not work so well after surgery because of the scar tissue surgery forms. It is easy to pop over to Paris for treatment. Some people have been known to fly over, have the treatment and fly back on the same day. Depends where you live of course.
Have you looked at the web page www.handcenter.org ? there is a lot of info there including all the european practitioners of NA.
Need anymore help, just ask

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