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Dupuytren Surgery
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07/15/2005 23:13
C.L

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07/15/2005 23:13
C.L

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Assertion that D.C. is incurable

That assertion is 100% wrong in 50% of DC cases. If one undergoes needle aponevrotomy (uh-pon-ev-rot-omee) and follows a special regimen of Colchicine for 3 months, then, if there is improvement, another 9 months of the same protocol eliminates DC in 50% of the cases, per my dr., the great Jean Luc Lermusiaux (the creator of Needle Aponevrotomy).

10/25/2005 23:41
Keith Kirby, N Yorkshire, England

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10/25/2005 23:41
Keith Kirby, N Yorkshire, England

not registered

Dupuytrens

Hello everyone, its took me ages to find this site. Just to let you know ive had 3 operations, 2 Ops on the same finger within 2 years of each other, my index finger was bent right down to my palm with a lump on the inside of the knuckle, the Doc removed lump, with no stitches & put my finger in splint for 2 weeks but this never worked properly. Last year had Op on little finger with lumps on back & front of knuckle,this time had stitches but lumps are back already. Just had 2nd Op on index finger again 6 weeks ago, same as last time, had lump removed then had a splint on for 6 weeks, a week after the Op the wound got infected and i had to go back to the surgeon & he put me on antibiotics just in time to save my finger.Just stopped wearing splint 24/7 but now have to wear it at night time until Dec 05.My finger is still not straight & still throbs like hell & is numb from knuckle upwards.I now have lumps in my other hand in my palm. The Doc said it was caused by drinking 2 much or using your hands alot, well im a chef & have been for 23 years & yes I like a drink.

10/25/2005 23:56
Wolfgang Wach

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10/25/2005 23:56
Wolfgang Wach

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Drinking ...

Keith, you will find many comments in this forum on drinking as potential cause for Dupuytren. It's not likely, there is a loose connection at the most. Much more likely is that the healing process after the surgery triggered your new nodules. While the medical community generally accepts that hand injury can cause Dupuytren, it is less known that surgery, being a major injury, can trigger Dupuytren.

I guess you have experienced enough surgery to look for other therapies. From the UK you might visit France and have NA if your fingers are already bent or, if the new nodules are still in an initial stage, you might visit Germany and have radiation therapy (radiotherapy). After you finally found this forum you might also look at www.dupuytren-online.info for an overview of therapies. This site is even more difficult to find but with URL it's a piece of cake.

In this forum you will find lots and lots of information and you will probably soon know more about Morbus Dupuytren than your doctor. Maybe you can educate him.

Good luck!

Wolfgang

10/25/2005 23:50
Stephen

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10/25/2005 23:50
Stephen

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wait before having surgury?

I was recently diagnosed with DC. Surgery is scheduled in about 2 weeks. Only the 'pinky' on my left hand is bent, and not far. The PIP joint is involved. The surgeon did not mention NA. He did say the farthur the condition progresses, the harder it will be to correct. The condition is really almost no problem to me currently. I wonder if I should wait before having the surgery. I can place the hand flat on a table top with only the pinky slightly bent.

10/25/2005 23:05
Randy H.

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10/25/2005 23:05
Randy H.

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PIP joint

Most hand surgeons wait until the PIP is bent to 45 degrees before surgery. To do so earlier is fairly aggressive because, as you pointed out, it doesn't really effect functionality. And the recovery time and chance of side effects from Open Surgery are to be avoided until absolutely necessary. Most Certified Hand Surgeons put that point at 45 degrees.

No, I wouldn't expect your doc to mention NA or even recommend it. It is very new to the US (only 2 years) and only a handful (5) of CHS are doing it. The rest, assuming they know what it is, still look upon it with a high degree of skepticism. They need undeniable clinical proof that NA is safe and effective. That proof is now abut 9 months away, to be presented at the next convention of American CHS by Dr. Charles Eaton. He was the first to bring the procedure to the US from France where it has been done for over 30 years. I'd guess he now has about 1,300 NA procedure under his belt. I was close to being #1,000 about 6 months ago.

While you may do fine with Open Surgery, you would do well to educate yourself about the newer much less invasive option, NA. I've had them both. For me, no comparison.

See: http://www.handcenter.org/newfile16.htm

10/27/2005 23:12
Tommy

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10/27/2005 23:12
Tommy

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PIP joint

Randy,

I respect your opinion so let me ask you this. If you were going to have NA on the PIP joint of the pinky within the next 6 months, would you head back to Florida or up Hwy 101 across the Golden Gate?

10/27/2005 23:27
Randy H.

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10/27/2005 23:27
Randy H.

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Rocket Surgery

Boy tommy, you really know how to put a guy on the spot! For one thing you've left out Door Number Three: Dr. Benhaim who works out of UCLA. He's the latest CHS to throw his skilled hands into the ring, and who Denkler helped train. A short trip down the 405 seems *realy* attractive.

If it were a MCP I'd definitely go local. The PIP is a bugger however, and Eaton did a splendid job on my ring PIP in spite of the fact that waited to just over 30 degrees (don't do that!). The problem is, you are asking me to calculate variables I can't measure. Experience counts for a lot and Eaton is still The Man. At the same time, if Denkler has been to France, one could assume he's on the same track as Eaton. He has made the grade as a CHS, though has focused more on plastic surgery in his particular practice. His before and after shots are just as impressive and he's obviously confident in what he is doing. Six months from now he should be an Ace.

No two bent PIPs are alike. How on earth could I be qualified to look at mine and judge the degree of difficulty? In fact, the best of the best really can't predict their outcome until they pull back on the finger and get that great little snap. If they don't know how well they will do in each case, how can I predict with any certainty when it's time to fly to Paris and seek Out Lermusiaux?

So, since my next NA will probably be a pinkie MCP, I prefer to wiggle out of the question on the grounds that I don't have to think about it. :-) (However when the time comes for the MCP, I've got to consider Benhaim just to get under the skin of my famous (and previous), UCLA surgeon who told me NA was *usless*. Now *that* would be hard to resist.

Denkler should be fine. NA isn't "Rocket Surgery".

10/27/2005 23:44
Tommy

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10/27/2005 23:44
Tommy

not registered

PIP

Randy,

I knew even before you responded that all of your points would be well taken and indeed they are. But don't worry! I'm not going to base my decision on your take alone.

I saw my local CHS in the Valley last week. Eaton recommended him to inject the nodules that never shrunk in size after my NA procedure in February. My local guy first injected them in August and they didn't decrease in size at all. The other day he didn't see the point in doing it again which was fine with me. (Me no like pain).

He estimated the PIP joint in the pinky was over 30 degrees and said that it was time to have it done. He's miles ahead of many other CHSs that are mentioned on this forum. He seems impressed with the results of my NA though he's still skeptical about nerve damage. He's very interested to see what Eaton presents in 06.

I guess if money was not an issue I'd book my flight for Florida. Driving over the UCLA is tempting but I want more NA experience especially with the PIP. Perhaps the next logical step is a phone call to Dr. Denkler to see how many he's done so far.

Thanks for your input, Randy.

10/27/2005 23:31
Randy H.

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10/27/2005 23:31
Randy H.

not registered

Got For It.

tommie,

Remember our Governor in The Terminator. He has a message for you in his German accent:

"Do It Now". (whatever you decide)

I think there are going to be a lot of good doctors who just need to see the concrete stuff Eaton will bring. Hopefully after that we'll all need someplace else to go and say controversial things. :-) There *will* no controversy left here.

No!............I almost forgot. Then we'll need to gently persuade the guys with the right Radiation equipment to make it available without trying to balance the Federal Deficit from the obscene profits.

If Wolfgang is right, then these poor CHS won't even have many NA patients on which to ply their new trick! :-(

10/28/2005 23:52
Tommy

not registered

10/28/2005 23:52
Tommy

not registered

PIP joint

Randy,

What can I say? You are da man! Thanks for your input and encouraging words. I'll take the advice of California Governor Botox and do it now, or soon.

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