Dupuytren~sq~s Disease |
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02/10/2005 23:40
Name withheldnot registered
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02/10/2005 23:40
Name withheldnot registered
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Breath people breath
Woa....... This forum has been under attack since approximately last march by a troll. That person has had multiple nicknames (some times female), hyjacks other people's handles then posts nasty things to incite tempers; they often post about NA when NA was not even discussed in a thread etc....people who have been that posters victim have let the forum know to protect themselves and 'yes' at times it seems NA is the only topic - but that is not because of us, that is because our resident troll pops up and puts in an advertisement for his favorite doctor using NA as the excuse.
I think you must take that into consideration before you give anyone heck for their behaviour. Randy is one of the few who weathered many most difficult months of that posters nonsense. He did so with grace, skill and kindness and is an asset to this forum. His contributions are enormous and unwavering.
So onto my next point....unfortunately, attacks directed to ones personality are usually the work of our troll so Randy...if you are listening....have we been hoodwinked again? Remember a while back there was someone who said 'shame on us'? Could it be our same person again? Our troll? They usually post like this after one of us has scored a good point and/or revealed them for what they are. The technique is one of deflection.
Read it again buddy..... I think have you been 'Frances-ized'.
Name withheld
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02/10/2005 23:31
Ketih Denkler MDnot registered
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02/10/2005 23:31
Ketih Denkler MDnot registered
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Randy H
Thanks Randy H for your thoughtful points. As a surgeon who has cared for hundreds of patients with Dupuytren's, your thoughts are well said. This board is an "open" forum and a great place to discuss new ideas to be shared by all. By the time NA has "caught on" with hand surgeons, newer and better techniuqes may be available. I would love to have collagenase available for my patients, but it is still under study by the FDA and I don't know when I will be able to use it! Till then, there are multiple techniques that may be used for Dupuytren's. These range from NA to major excisions and skin grafts. I think NA is a significant advance, yet believe me, it will take years before it becomes popular among hand surgeons or plastic surgeons a group. Keith
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02/11/2005 23:55
Michaelnot registered
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02/11/2005 23:55
Michaelnot registered
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NA in the palm
I have an NA question:
1) When a dup's cord in a finger is snapped after NA, it results in the eventual dissolving way of the dup's tissue in the finger. Does it also result in the dissolving away of the cord tissue along the tendon in the palm that leads to that finger? In general, does NA offer any relief for palmar dup's, or is it only for the fingers?
Thanks, MML
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02/12/2005 23:43
Mr Candidnot registered
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02/12/2005 23:43
Mr Candidnot registered
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NA Issues
To my knowledge NA does not disolve anything, it only releases the cord. This fact was my surgeons biggest complaint with NA '...the disease is still in there...'. Yes, but my finger is straight so who cares...plus neither surgery nor NA halts the progression of DC so....the disease also remains with surgery. It's true that the doctor can scrape away the lumpiness, but, it does return.....it's only a matter of when.
Hope this clarifies things.
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02/12/2005 23:43
OldCdognot registered
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02/12/2005 23:43
OldCdognot registered
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NA Issues
"To my knowledge NA does not disolve anything, it only releases the cord. This fact was my surgeons biggest complaint with NA '...the disease is still in there...'."
Having been through NA twice now with Dr. Eaton, I can vouch for the fact that the cords grow back. Unfortunately, in my case, rather quickly. It still beats the invasive surgery procedure, but is not, for me at least, a long term solution. Hopefully someday there will in fact be a cure such as collagenase injection, perhaps in conjunction with NA, that permanently cures DP. Alan
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02/12/2005 23:17
No Namenot registered
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02/12/2005 23:17
No Namenot registered
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NA Issues
Alan,
Another problem rarely mentioned with NA is the possibility of cutting nerves or arteries. Although rare, it can happen. Not to mention that NA can accelerate dups. But, I've told by a hand surgeon that for some patients (particularly older ones), it may be the better option, although I felt comfortable with surgery. It will approach a year soon and so far, so good.
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02/12/2005 23:18
George Barbarownot registered
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02/12/2005 23:18
George Barbarownot registered
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Cord Regeneration or Growth
Fifteen months ago Dr. Eaton released the pinky and ring finger of my right hand ( see http://www.angelfire.com/rings/dupuytrens/ )
I have had a cord in the palm of my left hand for several years but it seems to be staying the same and is not yet ready for NA ( no contracture).
The right hand now has cords forming again or perhaps the old ones are enlarging; but,I would certainly go back to Dr. Eaton for NA if these cords cause finger contracture of more than about twenty-five degrees. Mine was quick easy and painless and Medicare paid the bill.
If I had to go back annually, I would do that rather than face the hideous old surgery.
I would have surgery only if Dr. Eaton suggested it as the better method.
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02/12/2005 23:23
No namenot registered
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02/12/2005 23:23
No namenot registered
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Long Term Solutions
It's my understanding that at the moment, NA and Surgery are *both* temporary ways of dealing with DC.
I think our best bet for a long term solution lies with Dr. Bing Siang Gan (see thread below with his name). The Collegenase study has been so intermitent and fragile that I don't know if it will ever get done. I hope it does but am not holding my breath.
No name
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02/12/2005 23:47
Michaelnot registered
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02/12/2005 23:47
Michaelnot registered
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The question
No, you guys missed the point of my question.
In NA, to release contracture, a dup's cord in a finger is severed. As I understand it, over time, the cord tissue is broken down and re-absorbed into the body (this isn't to say that new tissue won't grow back). But does the operation have any effect on dup's tissue along the palmar tendon that leads to that finger? Is NA ever used directly on palmar dup's?
- MML
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02/12/2005 23:44
Randy H. not registered
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02/12/2005 23:44
Randy H. not registered
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http://www.wstagner.com
Michael:
Yes, with NA the needle *can* be used on the palm if that is where a cord can be attacked and snapped. If you'd like to see a DVD, Walt Stagner taped his French procedure and can send you one. See for yourself! I think he charges $5 for his trouble. In fact, seeing this DVD is what helped get Eaton interested in NA.
http://www.wstagner.com
As far as the cord tissue being broken down and reabsorbed, I wish that it were so in all cases. Many testimonies her seem to indicate that's not always the case.
EATON: "<After Snapping,> the cord is softened and digested by the body's normal enzymes, and heals in a lengthened state. The cord is a normal structural layer which has become wider and shorter from the effects of Dupuytren's. It is not a tumor - it does not have to be removed, and when it is returned to it's proper length, it becomes hard to feel - just like it was before Dupuytren's affected it."
Though this sounds like wishful thinking, it probably *is* the case for those with non-aggressive cases. And unfortunately it appears to be the case that the aggressiveness of each of our own diseases has more to do with what can trigger it and reoccurrence rates. A long standing debate on this site has been whether or not surgery itself can trigger more Dups. I personally have a strong belief that *trauma* can trigger growth, so surgery would qualify. And so then too would *NA*. You have to pick your poison here, but personally I'll go with as little trauma as I can get.
I hope I answered your question (though a lot of it was *opinion*, and I have an *admitted* bias)
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1 .. 5 6 7 8 9
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