Early treatment? |
|
1
|
1
|
02/18/2006 23:45
JudySnot registered
|
02/18/2006 23:45
JudySnot registered
|
Early treatment?
I had a dual-surgery on my user (left) hand six weeks ago. Carpal tunnel and a titanium screw inserted into tip joint of middle finger. (made a mess of the joint playing softball 1.5 years ago) A few days ago I discovered a hardness in my palm. Surgeon says it's Dupuytrens and was probably unmasked by trauma of surgery. I swear the lump is growing by the hour but my fingers are not affected so far. Is there any justification for early treatment?
|
|
|
02/18/2006 23:32
Wolfgangnot registered
|
02/18/2006 23:32
Wolfgangnot registered
|
early treatment
Judy, I had a similar experience after my hand surgery. I felt I could watch the nodules growing. With radiotherapy I was able to slow down growth and in part even eliminate the smaller nodules (you might have a look at the "radiotherapy" thread on this forum). If your are located in the US radiation therapy seems to be difficult to find, if you are in the UK you could travel to Germany or the Netherlands.
Wolfgang
|
|
|
02/18/2006 23:34
Wolfgangnot registered
|
02/18/2006 23:34
Wolfgangnot registered
|
timing
Aadditional comment: I would not have radiotherapy immediately after surgery but rather let the wound heal first and have radiotherapy 4 - 6 month after surgery.
Wolfgang
|
|
|
02/24/2006 23:32
Wolfgangnot registered
|
02/24/2006 23:32
Wolfgangnot registered
|
To: David
David, just noticed that you had addressed your question to me. Sorry for the delay!
It is not uncommon to make pictures of your hand and e-mail them to the respective expert together with a description (e.g. how old you are, how long you have those nodules, are they definitely Dupuytren nodules (there are other reasons for nodules as well), do your fingers already contract and if so how much, is there a family history, do the nodules hurt, how quickly are they growing). When taking the pictures make sure that size and height of the nodules are recognizable, smaller ones you might e.g. mark with a pen.
No doctor will do a real diagnosis via e-mail but if your nodules have been diagnosed already he might be able to tell you whether he thinks a closer inspection or a therapy make sense or not.
I can't guarantee that you always get a reasonable response but it is a fairly common procedure for people living far away.
Wolfgang
|
|
|
02/26/2006 23:24
Davidnot registered
|
02/26/2006 23:24
Davidnot registered
|
To: Wolfgang
Thank you for the response Wolfgang. I will follow your advice and see where it gets me.
Interestingly you make mention that the nodules on my palms are not necessarily Dupuytrens - As yet I have not had it verified, but the GP's I have seen have not suggested any alternatives to what it might be?
I am young(30) and therefore I'd like to be as proactive as possible, if or before, it develops further...
|
|
|
02/26/2006 23:19
Wolfgangnot registered
|
02/26/2006 23:19
Wolfgangnot registered
|
other causes
David, sometimes e.g. ganglion cysts can result in nodules but a remote diagnosis is really impossible. There are several web sites that describe other potential causes, e.g. if you go to our web site www.dupuytren-online.info, select "the disease : Dupuytren" and then scroll down until you hit "First exclude other causes!" you can find a little list, though I have no idea whether it is complete. But your doctor should know!
Wolfgang
|
|
|
02/27/2006 23:40
Davidnot registered
|
02/27/2006 23:40
Davidnot registered
|
To: Wolfgang
once again 'thanks' for the informative reply Wolfgang. I'll take you advice and do some more research...
|
|
|
|
1
|
1
|