Jan,

I believe you.

Looking carefully at your original post, and No Name's reply, I believe my friend may have miss read the part about your surgeon's recommendation about post op hand therapy. What you wrote was that your surgeon *wanted* for you to concentrate on your continued hand therapy, as No Name and know to be exactly correct.

But yes, you should be concerned about rapid growth of Dups on a recently operated hand, if that is what in fact you are reporting. The whole idea of full Open Surgery is to minimize that. If what you report is true, your surgeon may need a little catsup to go with the egg on his face. That's not supposed to happen.

On the other hand, many people who have posted here believe that the invasive nature of open surgery itself can trigger more of the disease *if*, and to me this is a very big if, you have a predisposition toward trauma induced growth. Didn't happen to me. 2 years post op I am Dups free.

Did you injure your hand previous to the onset of Dups? Think!

frankly a two year period between onset and surgery is not a candidate for the record books. I have you beat at 18 months.

If your disease is as aggressive as you indicate, you may be facing another decision within a year or so. More surgery, or NA. That's it for now...all you have. Did you see the original "Matrix" and the Blue and the Red Pill? Read up girl. While I believe a minor such paradigm shift is badly needed in the medical community...(The Matrix must be experienced to believe and understand) it is *you* alone who must choose. Again, read up

Randy H.

I do not remember ever injuring my hand a least not as an adult. My job is in business not industry an I am healthy other than the DC.. I do run a lot and coach track ( but that would be more damaging on my feet). I do not believe the lumps in my hand was there in Feb when I had the surgery. My hand are very thin, and trust me since the diagnosis I check them many time a day!! My ring finger was even straight in Feb. I noticed the lumps 3rd week of March. And as far as the injections I'm not sure where to go..No one in Indiana does them.. Do you know of a place close to me I could try?? I'm willing to travel in order to research this . I want to make my quality of life the best I can, and pray it never reaches my feet. Running is my rock and therapist... Thanks for your understanding..
J Ann

Linda,

Your and my experience is *not* the norm traditional Open Surgery......*but*, it does happen to far too many. I too regret not finding this site before my first (hopefully last) OS. Now, having had one OS on the left and one NA on the right, I have become even more adamant that OS should be reserved until after NA is at least considered. If deemed inappropriate, or it fails to do the trick, then OS *must* be done, no question. However, the only CHS who I would trust to render that opinion are those who actually *do* NA, There are only Five in the US currently.

J Ann,

There are no *injections* available at this time. Zip. Nada. Zilch. Your *only* current alternative to additional surgery is Needle Aponeurotomy (NA). Personally, I choose the surgeon with the following web site. Check it Out. Continue to read here.

http://www.handcenter.org/newfile16.htm


Yaaa Volt. :-)

Where did you have the surgery Steve? I'm 33 and had it develop, contract, and had 2 NA procedures last summer that didn't work fully. Once I started on colchicine prescribed by Dr Eaton everything halted though - hard to say if it was a coincidence or not...but for me it worked. I also have been taking 2g of Acetyl-L-Carnitine that has been shown in a study to help Peyronies disease which is related to our condition. Hope you hand heals well...I fear one day that full surgery may be my fate as well.

my liver problems weren't due to DC, but too large a dose of colchicine which when reduced has let the liver go back to normal