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Forum for Dupuytren's and Ledderhose 
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  • Forum Archive 2
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  • Success stories?
    • Success stories?
    		 1
     1
    03/30/2006 23:28
    Laura 
    03/30/2006 23:28
    Laura      		Success stories?

    I am a 35 year old (woman) with Ledderhose, no Dupuytran's symptoms. A podiatrist suggested that I look into the transdermal verapamil from PDL labs. Has anyone had successes with this or the topical version? I've had this for about 15 years but am getting to the point where the mass has taken over my whole arch and I don't want surgery. Any input would be much appreciated.

    03/30/2006 23:26
    ...

    not registered
    03/30/2006 23:26
    ...

    not registered

    		 Same experience

    I tried it for Peyronie's for several months. It did nothing. I've never heard a single credible report of success. My impression is that if it's not a total scam, it's something darn close.
    04/01/2006 23:58
    BobN 
    04/01/2006 23:58
    BobN      		Same experience

    I tried Topical verapimil for peyronies and for my hands. Nothing happened. At $350 for a small jar, I think I was scammed too.

    Bob
    04/01/2006 23:53
    Joe 
    04/01/2006 23:53
    Joe      		Plantarfibromatosis

    I used a full jar of Verapamil without noticable effect. I am hoping to try the Dornier ESWT off label.

    04/18/2006 23:19
    Joe 
    04/18/2006 23:19
    Joe      		Plantar Fibromatosis

    I've tried Verapamil and cold laser without apparent success. I recently visited an orthopedic surgeon who has the Dornier ESWT machine. His only recommendation is surgery that will remove much of the fascia.

    04/18/2006 23:40
    Tolucca

    not registered
    04/18/2006 23:40
    Tolucca

    not registered

    		 Of course that is what he would say.

    There are less than 10 hand surgeons in the US that will recommend anything else. That's one of the main problems of having this disease when a proven entry level noninvasive approach is also available.

    04/18/2006 23:10
    me

    not registered
    04/18/2006 23:10
    me

    not registered

    		 ledderhose

    Tolucca, personally I would not go to a hand surgeon for a problem with my foot. I'd love to hear of your experiences with NA & Ledderhose's.
    04/19/2006 23:44
    Wolfgang

    not registered
    04/19/2006 23:44
    Wolfgang

    not registered

    		 shock waves

    Joe, did you ever try the Dornier EWST? Though I have heard of a case where shock waves helped with Ledderhose, the general perception is that shock wave therapy is painful and does not help.

    Wolfgang

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    perception   Dupuytran   impression   personally   noninvasive   suggested   experience   appreciated   transdermal   orthopedic   available   Ledderhose   podiatrist   experiences   Fibromatosis   verapamil   Plantarfibromatosis   recommendation   noticable   Dornier