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The Site is a Scam
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02/16/2005 23:35
dean

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02/16/2005 23:35
dean

not registered

www.ignoreRandy.com

thanks for info about the fingers being straight

i 'll keep going to therapy


good luck

02/16/2005 23:03
All of us serious DD patients

not registered

02/16/2005 23:03
All of us serious DD patients

not registered

www.ignoreRandy.com

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02/16/2005 23:49
tom

not registered

02/16/2005 23:49
tom

not registered

All of us serious DD patients

Hey Randy, enjoy your posts, even the satirical ones. I can see, though, that some (or one anyway) of the surgical proponents haven't the wit or intelligence to appreciate your sarcasm.

The 'troll' definitely needs to up it's meds. Hey Troll, how about being brave enough to put up an email address????

Coward!

02/16/2005 23:49
Randy H.

not registered

02/16/2005 23:49
Randy H.

not registered

Tom

Thanks Tom,

No, it's *a lot* harder to "get" satire when the point being made is not according to one's politics. However, other than the fanciful description of surgical outcomes, all the other statements that were made were right out of the play book (plus rhetorical license) from things we've been hearing over and over again around here. I suppose it's OK with those who would attack me when they hear others say the vary same things.

The only thing I do regret is the momentary confusion I may have caused Dean. Dean, my apologies. As the one with No Name (and apparently little humor) recommended, don't lighten up, don't skimp on your exercises at home. Push yourself for full range of motion. A little warm water will "soften" up your joints and tendons before you start. As I was admonished by my surgeon, "your final outcome is now up to *you*". You should be fine.

02/16/2005 23:54
No Name

not registered

02/16/2005 23:54
No Name

not registered

Tom

Tom,

??? Where is your email address. Certainly not hotmail.com. Nothing is spineless so much as hiding behind shadows.

You first and a real email address. Are you game? Don't bother with the hotmail.

Randy, your email was immature and is inexcusable. Is that what this forum has come to? Posting false statements and making fun of others? We share a rare disease and apparently, all we can do is fight each other. As for you, I think you're a fake and are likely posting under multiple names. I know someone has been submitting postings under my login name, "no name". Honesty time now - who has been doing that?

Tom. Give me a real email address. If you won't, well we know what you really are.

02/17/2005 23:09
Anon

not registered

02/17/2005 23:09
Anon

not registered

Troll

Go back under your bridge troll.

02/17/2005 23:26
Jan

not registered

02/17/2005 23:26
Jan

not registered

post surgery

In response to Deans questions:

After hoping for several years for this collagenase treatment coming on the market I had to have surgery.
My surgery (open palm fasciectomy)for two crooked fingers in left hand one year ago was by far not as bad as I had feared. On an outpatient basis it lasted only one hour with local anesthetic (left arm block which I prefer over general anesthetic. Some of my relatives had general anesthetics which keeps you longer in the hospital which I personally don't care for)from 9:00 AM until 10:00 AM. AT 11:00 AM I was eating breakfast at Perkins with my arm in a sling. Never took a single pain killer afterwards.Three small incisions in two fingers and 2 in hand palm.
Next about 8 weeks of hand therapy (once a week or so, Don't remember exactly: Hot whirlpools, ultra sound massage and daily exercises at home. The fingers were almost but not quite straight initially. Strangely the unaffected finger knuckles were very stiff initially but this improved after a few months. A short time with a splint during the day. A bit longer during the night (few weeks?. No big deal I thought. I found just using the hand was the best therapy. What was unanticipated and for me a bit frustrating, was the extreme temperature (cold) sensitivity of the palm of the hand that lasted for about 6 months. I solved that by just wearing a thin glove on my left hand when holding metal utensils, forks, knives etc. A year later the scars are basically invisible to my surprise as the day after it looked scary. Only I know where they are. The hand is 100% functional today and no numbness left. Before the surgery I very rarely had some pain of very short duration. Not enough to bother me. However the two crooked fingers started impeding with the functionality of the hand and I was concerned that over time it only would get worse.
So overall I am very happy I had it taken care of. The cost (About $12,000 total) gave me sticker shock of course even though insurance paid most of it. Since every case of Dupuytren's is different, if there are other and less expensive methods, more power to you. Thought some of you might like to hear just one experience. Greetings.

02/17/2005 23:20
Steve Abrams

not registered

02/17/2005 23:20
Steve Abrams

not registered

It sure worked for me

I had NA done by Dr. Eaton 3 weeks ago, and so far I am happy with the result. However, we do need some moderation here. Dr. Eaton is a hand surgeon; he will tell you that the main benefits of NA are the very short recovery time with NA compared with surgery, and the ability to repeat the procedure. Recurrence rates are similar as is nerve damage.

Steve

02/18/2005 23:04
Silversmith

not registered

02/18/2005 23:04
Silversmith

not registered

It sure worked for me

I had NA in Paris 2 1/2 years ago. Dr. Lermusieux did a wonderful job of straightening out left pinkie and ring finger. (Plus it was wonderful to get back to Paris) After approximately 2 years the DC had returned enough that I saw Dr. Eaton. (Oct '04) This was a good experience, with a significant improvement. Because both the metacarpal and PIP joint were involved, there is still some bending of my pinkie. I knew that the PIP was more difficult to treat, and did not expect full correction of that joint. I am, however, pleased with the result and if future treatment is necesary, I would not hesitate to have NA again. The biggest decision I will have to make is whether to have it done in Florida or Paris. I feel confident that NA has worked well for me, and I would be very reluctant to consider "traditional" (invasive??) surgery.

02/19/2005 23:21
Jan

not registered

02/19/2005 23:21
Jan

not registered

Recurrence of Dupuytren~sq~s

Never to old to learn something new ;-) I must admit that I did not know what NA was and had to look it up. Interesting that others share their experience here.
I read/hear a lot about recurrence of the problem and had asked myself as well as my surgeon the same question.
FYI Apparently Dupuytren's develops much slower with age according to my surgeon. And as I have to good (or bad, depending how you look at it) fortune to be older the surgeon estimated maybe 20 years in my case. I tend to agree with him as it took about ten years to get to the point of surgery. About six years ago I also noticed the beginning of Dupuytren's in the palm of my right hand. But this is developing so slow. And as it does not interfere with anything and the hand is still perfectly straight I doubt whether I will ever need any treatment in my life time. I undertsnd in younger people it may develop much faster.. Would be interesting to hear other's experiences about recurrences
Does anyone know where BioSpecifics Collagenase stands?? Their web site has not been updated in years it seems.
Keep sharing your information about alternatives. I may want to go to Paris too the next time :-)). It has been 45 years (too long)
Jan

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