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04/11/2006 23:01
1234

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04/11/2006 23:01
1234

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3 Choices

Randy, yes...you guessed correctly...the contraction started after i had trigger finger surgery on my thumb and index finger. honestly though, i felt a small cord for about 2 years before the surgery, but when i brought that up to the hand surgeons, they didn't say much about it.

04/11/2006 23:11
1234

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04/11/2006 23:11
1234

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3 Choices

Steve, it looks like you are in the same boat that I am in......I too hope the NA works on this area. Mine is very painful. Supposedly,from what I have heard and read that DC is not painful, but let me tell you it is very painful. I too, have been losing strength there and I totally know what you mean about holding a heavy plate...almost impossible at this point for me.

For everyone else, with the NA..I've read that no therapy is needed...is this true? I went through 2 full months of therapy for my trigger finger.

04/11/2006 23:02
Randy H.

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04/11/2006 23:02
Randy H.

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3 Choices

My guess was simply form knowing that trauma to the hand can trigger rapid growth of Dups tissue. Surgery is Trauma. When you undergo full Open Surgery for Dups, the goal is to remove 100% of the diseased tissue. The reason being is that the trauma from the surgery removing the contraction is enough to aggravate any remaining tissue and set it motion. Therefore, it *all* has to go. It's an all or nothing proposition.

Unfortunately, because of the above, when you had the trigger finger surgery you were put you at risk. I say "risk" because Dups is unpredictable and there was no way to know for certain that you would have this reaction. And I'm not saying the surgeon did anything improper. Dups tissue is always left along by CHS until it begin to cause dysfunction. You had the unfortunate combination of having fairly benign Dups tissue present on the same hand that needed for Open Surgery for something unrelated.

That's just one of the reasons many of us feel strongly that the first attempt at treating Dups is the least traumatic, least invasive intervention possible. Right now, NA is it. I strongly suggest you educate yourself on Eaton's web site:

http://www.handcenter.org/newfile16.htm

As I see it, you have three choices. 1) Do nothing 2) Undergo full Open Surgery to remove not only the contraction but all the diseased tissue that may be in your hand. 3) Try NA.

I've done *all* three of the above. I think it's clear where I would head. And I'd do it ASAP.

04/11/2006 23:21
1234

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04/11/2006 23:21
1234

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1234

Randy, thanks for your insight. It is comforting to find someone with more or less the same theory that I have. I have reviewed dr. eaton's website pretty thoroughly. it is hard to find information though on the thumb web space index finger condition. i haven't seen anything on dr. eaton's site about that. again, thanks for your insight....i am only 37 years old and shudder to think about what is coming down the road. i have been in contact with dr. eaton's office though and am going to send in some pictures, although he still might have a difficult time making a firm diagnosis. Also, may I ask you....is dupuytrens the same as palmar fibromatosis? one dr. said I had DC and the other one said it was PF....the DC dr. said it was the same thing as PF....the PF dr. said it was a cousin of DC but not exactly the same thing....I hope you can follow all that, my hands get tired from the typing.

04/11/2006 23:47
Randy H.

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04/11/2006 23:47
Randy H.

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1234

1234

Ask Eaton. He 'Da Man. :-)

04/12/2006 23:37
Steve

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04/12/2006 23:37
Steve

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1234

Have you tried taking anything like Acetyl L Carnitine? I have posted a lot about that in another topic you might want to check out. Its helped with the pain and slowed my progression along with colchicine which Eaton prescribed for me.

04/12/2006 23:28
jim h

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04/12/2006 23:28
jim h

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Physicians the Initially Pioneered NA in the States

I think it would be correct to say that DC is 'a' palmar fibrosis - there might be other conditions that trigger similar tissue changes, although the contracting bands are unique to DC.

As far as surgery triggering accelleration of the disease, many people suspect that to be true but it can't be proven. Consider that we typically decide to have surgery because the problem has recently gotten a lot worse - meaning we're in a period of time when the disease is progressing, for whatever reason. That progession might continue for a while after the surgery too, in other locations, without really being caused by the surgery.

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