Hi Tinkerbell

The doctor in Boston comes with good credentials and is certified. He seems very even extra ordnarly nice careing and so far I feel comfortable. He told me I had a severed neve in my ring finger I kind of thought so but was waiting for feeling to return from last surgen. He also said whe he first examined me just a few years ago he would not have touched me as two other surgens the last being a Plastic surgen had made what didn't look to good so much scarring and I totally lost my grip and not just the mental type.
He said he felt empathy for me as it is such a humbeling disease and most of all as he put it (I was between a rock and a hard place) Tomorrow my cast comes off after 12 days. I will be so happy to be able to take a normal shower and get sleeves on. I also ave 17 stitches on my groin kinda hip area to be removed. That has been painful but the incission is so neat it would probably be a perfect tummy tuck for my cat. I know that probly sounds strange but it is a very tidy stitch job.
I have been so trustinng in the past it is hard to feel completely at ease about any surgen. I just don't want to get to jaded as I have been so depressed in the past year or two. That rally makes things worse.
This doctor is from the New England Baptist I have only found good thigs about the hospital in Boston. I guess I will see. He did say I am beyond repair as far as useing the two fingers they are not functioning at all. I even opted for amputaion as they hurt and were just in the way and look so ugly! He said very last resort. The doctor even calls me at home and ofered me to come in to just talk before he could do anymore. I so hope he is all he seems. I can except my lack of use if the pain is resolved.
My primary care doctor has been a rather useless person, when I first asked about going to Boston, before I had any surgery He said it would be a waste of time because I would only be told what I didn't have not what I did have. I listened to him and went to near by R.I. and got in over my head. I cant't even go see my Primary for a B/P check now without him first saying (I don't know anything about hands) I don't know what to make of him I thought he cared and would atleast want to be a part of helping me find help that was quality. Guess I need to smell the coffee and find a new Primary Care. I'm also tired of being angry at him I know he's just a man I wanted to believe I guess he was Super Doctor the caring about patient person that pobably doesn't exist. I still think those doctors are out there I know any job I ever had involving peoples needs I sure never tried to just get by them.
Hope ou are alright not in pain and able to take care of you'r needs. I feel a bit guilty going on about my problems when I know you and others are probably having difficult and worst tmes than myself. I have seen that some have not even been able to collect and that is scarey when a person can't work and always did only to be denied when they can't. Health is worth more than money but no-one can get by without an income. I didn' work for a year and only part time for a couple of years before. I never felt so lost with no income. Without my husband I'd bea homeless person thats a frightning thought. I hope people are avoiding that.
Talk later, Again thanks for being you.
Linda

Hi Tinkerbell,

Thanks for being so nice. I just got home from Boston.
My doctor removed the cast and all my stitches OUCH!
It was however amazing all the grafts took. They look good, lots of healing to go but I was elated just to see his wnderful work. He pretty much let me know there is no way to point a fnger at another surgen I'm fine with that. I expect somewhat less than I would have in the beginning but this disease is with its own fate. I'm happy to lose the scarring and horrible pain. My new doctor right now is saint in my eyes. He also has not made false promises or been anything but kind and gone step by step in each procedure he has done.
So much for me I'm atleast what seems in a good direction.
Are things going alright in you'r life?
You don't say or share much of you'r self. You just send a atleast to me a calming effect. That is priceless and I appreciate it.
Sincerly,
Linda

Tinkerbell,
Thanks for quick rsponse I will have the regular hand massage no mention of therapy probably because the fingers do little, I will also need a splint. The Doctor said I could probably use the one from previous surgery. I was to embarrased to tell him I had a melt down a month or two ago and threw it away, that and lots of things I should have kept. That was when I was at my whits end and literaly loseing my grip in every area. Can't do that again I guess I'll just suck it up and pay for a new one. My insurance doesn't cover anthing like that. Will cover for feet if a person has diabetias (spelt wrong I'm sure) I guess I'm happy not to have that disease also. There seems to be a few other factors being looked at. I think some other than family history looks to be the flavor of the month thing. I just am not sure what to believe lots of gains of salt I guess.
Again,
Linda