Good news in Alabama! (2) | Dupuytren Disease | Forum for Dupuytren's and Ledderhose

David26 · 2010-05-11T22:29:42+00:00

First, thanks for all the wonderful help on this board. Especially to Lori and Dr. Crimaldi in Charlotte for taking the time to help me arrange RT. After I talked with Dr. C, he didn’t want me to have to travel so far so he contacted UAB (University of Alabama at Birmingham) and talked with their radiation oncology staff. Apparently he reached the right person. Today I met with Dr. Ruby Meredith and her resident. Both doctors were unbelievably caring and most interested in my situation. Before my appointment they had researched DC and radiation therapy. They were familiar with Dr. Seegenschmiedt and had prints of his articles. They also knew of Dr. T at Scripps and were planning to follow up with him on his protocol. They conducted a thorough examination and history with me. I knew UAB had a great reputation as a teaching hospital but I was prepared to have a disappointing visit on my attempt to seek RT for DC where it had not been done before. I go back for a scan tomorrow. I do have to make a decision about whether to try and release the mild contracture in my right pinkie "before" the RT. I'm not sure the hand surgeon will touch it at this point. But if I have the RT treatment I am unsure how that would impact the mild contracture. If I need NA to release it at a later point I wonder if the surgical trauma might induce more problems after the RT. I'm hopeful the RT will help as my case seems very aggressive. In 6 weeks time I've got 2 large and very tender nodules, other smaller nodules I can feel, the contracture mentioned above, burning in both palms and both soles, and a tightness for about 4 weeks in my R shoulder.

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Good news in Alabama!

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05/13/2010 13:52 lori
05/13/2010 13:52 lori	Re: Good news in Alabama! David, I am so pleased for you. I did not have contracture, but had the beginnings of it with the drawing and puckering. I know the RT softened my nodule and cord and gave me my flexability back. If your doctors are interested please ask them to place their contact information on this site. I did that with Dr. Crimaldi and that is how his name and contact information came to be on this site. Keep us posted as to how the RT goes and what you are going to do first, RT or NA. Good luck and I hope all goes well for you, Lori
05/13/2010 13:52 lori	Quote

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