| RT , Shockwave or leave it be?! |
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01/10/2014 22:48
prezzacc 
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01/10/2014 22:48
prezzacc
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RT , Shockwave or leave it be?!
Hi all.
The above pretty much asks the question! Which one should i do?! Little bit about me.
Had small lump on right foot painful and now protudes through skin so when foot is relaxed it looks like a little pea stuck to my foot. Left foot always had pain but only in last few months 2 nodules are starting to poke through this causes some pain after hours of walking and they grow big. But once i rest foot the nodules reduce and pain eases. Obviously they are still permanently there.
Which of the three could people recommend?! RT i like the sound of the only problem is its a trip to Germany money time and a small risk of cancer as im still young ish!
Shockwave is easier to access cheaper and there is (as far as i can see) no risks or aggrevation to nodules. However lack of evidence etc and research is hard!
Last option...leave them alone. My pea size lump has settled down for quite some time and doesn't really cause any problems now so maybe my others will settle down? Or they could come back to haunt me. Father has had lumps for many years with no pain at all.
Such a harsh choice and harsh disease!
Thanks for listening all.
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01/11/2014 08:06
spanishbuddha  Administrator
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01/11/2014 08:06
spanishbuddha Administrator
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Re: RT , Shockwave or leave it be?!
Welcome prezzacc
What do you men by shockwave, high intensity ultrasound? AFAIK this treatment has some success for plantar fasciitus but not for LD. Usual courses of treatment for LD and DD start with minimal, either leave it alone and wait, or conservative forms such as orthotics, footwear, lifestyle, moving on to more active treatment such as steroid injections, before considering RT or for DD things like RT and NA, and so forth. There is another thread where someone is managing pain with acupuncture. Best not to start disturbing things if pain is tolerable and you can pursue normal life activities. What advice does your doctor or podiatrist give you?
SB
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01/11/2014 17:42
prezzacc
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01/11/2014 17:42
prezzacc
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Re: RT , Shockwave or leave it be?!
Hi there.
Thanks for taking the time to reply. I have seen a podiatrist and will be getting orthotics shortly. Im afraid as with my doc surgeon and other medical people very few know what to do and podiatrist answer was...just leave it it will be ok we can just manage the pain. While i understand that and leaving is best i think they are growing and would like to look at other options.
I have had these for nearly two years now so i have done some waiting i know i should leave where possible but when is enough ?!
Decisions decisions
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01/12/2014 05:41
GaryBall 
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01/12/2014 05:41
GaryBall
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Re: RT , Shockwave or leave it be?!
prezzacc:
Hi there.
Thanks for taking the time to reply. I have seen a podiatrist and will be getting orthotics shortly. Im afraid as with my doc surgeon and other medical people very few know what to do and podiatrist answer was...just leave it it will be ok we can just manage the pain. While i understand that and leaving is best i think they are growing and would like to look at other options.
I have had these for nearly two years now so i have done some waiting i know i should leave where possible but when is enough ?!
Decisions decisions
Hi,
My situation was similar to yours 3 years ago.....I read the forum and took the prof S. option.....I flew to Germany from NZ....at the time I was 46..... I had a very thorough consultation and examination and ended up having RT...
The treatment was not entirely successful but I have no regrets of going....I learnt an awful lot about my personal situation that I would otherwise been ignorant about.....no matter what the future holds.. I know that I made a decision to see the Dr. who had the experience and the knowledge to treat this condition.....had I elected to not go and my condition became worse.....I would have major regrets...
My advice would be to get on the plane.....
Good luck
Gazza
Edited 01/12/14 10:34
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01/12/2014 16:28
Tamarakruse
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01/12/2014 16:28
Tamarakruse
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Re: RT , Shockwave or leave it be?!
This seems a very sensible answer. I would agree. I am having doubts about the doctor in San Diego that I chose. good answer.
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01/13/2014 16:37
prezzacc
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01/13/2014 16:37
prezzacc
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Re: RT , Shockwave or leave it be?!
Hi both,
Thanks for the info. Its interesting to hear from others in a similar position.
Can i ask why you say it wasnt completly successful? Like you say you dont regret it, but as you know its not cheap and easy to go for this.
Many thanks
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01/14/2014 00:12
GaryBall
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01/14/2014 00:12
GaryBall
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Re: RT , Shockwave or leave it be?!
prezzacc:
Hi both,
Thanks for the info. Its interesting to hear from others in a similar position.
Can i ask why you say it wasnt completly successful? Like you say you dont regret it, but as you know its not cheap and easy to go for this.
Many thanks
Hi prezzacc
I guess this comes down to expectations .....from memory......the data accumulated by Prof S. over 13 years showed around 90 percent of patients treated with RT avoided a surgical intervention.....Checkout dupuytrensymposium on you tube for his presentation.....many showed no progession.....and many more showed reduced symptoms.....many of the testimonials are on this forum....outstanding numbers considering how difficult the disease is to treat.....
As an active and otherwise healthy person I expected the best outcome.....in my case the LD that was active was stopped in its tracks on both feet.....but one year on 2 new nodules have developed and they have continued to grow at a slow pace....it is now 2 years since RT.... My feet are not significantly better or worse than before the treatment.....I am active and do nt suffer significant pain....
The spectrum for patients is sooooooo broad......some have had this for decades and seemingly ignore it and treat it with the contempt it deserves and get on with their lives...... And some are crippled by it......it seems to me..... In general .....the second group tend to come from the people that have been exposed to the more invasive treatments...
So......even though my hopes of regression have not been met .....and there is after 2 years new but not at this stage significant growth.....I have no regret......I have had a excellent consultation with a Doctor who REALLY knows this disease and he has treated me to the best of his ability......If I had just sat on this and waited.....and then the condition progressed further....I would always have questioned what would have happened had I made the trip....The cost of the trip is of course a pain.....but for me a healthy lifestyle is priority...
With regards to seeking treatment locally.....I did pursue this avenue for a while.....I had consultations with a number of practitioners but sadly most were well behind the game....
Wishing you the best
Gazza
Edited 01/14/14 02:27
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01/15/2014 20:03
prezzacc
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01/15/2014 20:03
prezzacc
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Re: RT , Shockwave or leave it be?!
Hi Gary
That's a great piece of info and its an interesting story.
I can see your a positive guy and im sure that helps. I like you plan to live as best i can and don't plan on letting the LD cripple me. I have a mountain climb planned later this year, a trip on a walking holiday etc etc. I can but hope with some ortotics and rest as needed i can continue my life and hobbies until i can afford, finish researching and make time for a trip to see prof S!
The Rt sounds good with those stats and i assume like you say it can't work for everyone or can't say you won't get new growths after its finished. I just might email prof S and get a little background info to help me.
I have been offered the shockwave treatment but at a cost and with not much evidence....but some it seems a pricey risk!
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