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06/24/2013 00:03
Rocket88 
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06/24/2013 00:03
Rocket88
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Re: What to do
Seph:
Rocket88, I would be very cautious about letting someone dig around in your foot. If it is LD the risk of spreading the disease is very high.
My understanding is that the best option is to do nothing, if you can. If it continues to cause difficulty with walking you might like to consider cortisone injections. The cortisone can soften and shrink the lumps. A more aggressive option is a combination of NA and cortisone. The last doctor that saw my feet in Paris (a rheumatologist) said that she works with surgeons when treating hands but not with feet. I took that to mean - try everything before surgery when dealing with LD.
Thank you. Yes, that is what I thought too. I just didn't know if the nodules could be that high up, under my toe, or if its something else. The Podiatrist says he thinks its the fibromatosis, but I am not sure.
I have them in both hands and both feet. But I really don't want anybody fooling with the nodules for the reasons stated. Perhaps I will try to get someone to do the cortisone injection on the one under my toes, if that's what it is.
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06/24/2013 22:48
LubaM. 
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06/24/2013 22:48
LubaM.
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Re: What to do
Seph:
Rocket88, I would be very cautious about letting someone dig around in your foot. If it is LD the risk of spreading the disease is very high.
My understanding is that the best option is to do nothing, if you can. If it continues to cause difficulty with walking you might like to consider cortisone injections. The cortisone can soften and shrink the lumps. A more aggressive option is a combination of NA and cortisone. The last doctor that saw my feet in Paris (a rheumatologist) said that she works with surgeons when treating hands but not with feet. I took that to mean - try everything before surgery when dealing with LD.
I would go with the "do nothing, if you can" option... or "cortisone to shrink the lumps"...at most. I have not read about NA being used on LD of the feet, since NA specifically targets cords which I believe occur only in Dupuytren's.
I had RT for two hard, marble size nodules in 2009 and the RT shrunk the nodules, it is 90% gone and what remains is very small and soft. The nodules never bothered me for walking, but they were growing and the bottom of my foot was constantly itching and burning, all that is gone too. The RT stopped the progression of the disease in my foot, for now.
Since I have plantar fasciitis in addition to LD, it also helps me to always wear comfortable shoes, preferable sneakers or sandals with a very thick and supportive bottom, such as ECCO.
Edited 06/25/13 01:52
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