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Diagnosed today, can I still run?
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09/15/2011 18:22
jings999 
09/15/2011 18:22
jings999 
Diagnosed today, can I still run?

Hello, I've just found out what that annoying lump is on my right foot. Ledderhose. I've been reading and reading on this site to find out all I can.
Does anyone know if running makes the condition worse?
I've been really enjoying running, just getting up to 10k runs, getting the fittest I've ever been (I'm 40 yr old male from England)

I really want to keep running, but obviously not if it is going to make things worse for me.

I'd really, really appreciate any advice from anyone more experienced and knowledgeable ...... please!

09/15/2011 21:13
spanishbuddha 

Administrator

09/15/2011 21:13
spanishbuddha 

Administrator

Re: Diagnosed today, can I still run?

Welcome jings999.

I don't know the answer maybe other folks will chime in over the next few days. If you have not done so already put 'running' into the search box on this page and you will get lots of feedback. Most folks seem to continue albeit with some modifications to or different shoes.

Since you have diagnosed it early, if it does not stay dormant and increases or becomes a problem then you can see if radiotherapy is appropriate. There are some good experiences from that with Ledderhosen.

Other people have reported good results with massage using one of those spiky massage balls. I use one myself but only for plantar fasciitus not LD.

09/16/2011 06:32
wach 

Administrator

09/16/2011 06:32
wach 

Administrator

Re: Diagnosed today, can I still run?

Everyone is different, so you best try yourself. Some report that dancing or walking in the sand helped them to keep their Ledderhose under control, for others this is too painful. It might depend on where the nodule is located and whether it presses on a nerve. Doing nothing and keeping your foot at rest most likely will cause more trouble; excessive stress or damage to the sole might be bad as well. Find something in between. Maybe the best advice is to not let this disease spoil your life.

Wolfgang

Edited 09/16/11 09:34

10/02/2011 16:57
LubaM. 
10/02/2011 16:57
LubaM. 
Re: Diagnosed today, can I still run?

jings999:
Hello, I've just found out what that annoying lump is on my right foot. Ledderhose. I've been reading and reading on this site to find out all I can.
Does anyone know if running makes the condition worse?
I've been really enjoying running, just getting up to 10k runs, getting the fittest I've ever been (I'm 40 yr old male from England)

I really want to keep running, but obviously not if it is going to make things worse for me.

I'd really, really appreciate any advice from anyone more experienced and knowledgeable ...... please!
Hi jings999,

Cannot give you advice about continuing to run, since I am not a runner. But I had a hard, small size lump in my left foot, Ledderhose. I watched it carefully for a long while... I had lots of itching and burning at the site of the nodule...
the lump grew in size, it became about the size of a large marble, and when a second lump grew right next to it, I decided to treat it with radiation therapy in November 2009.

Its been almost two years and the two lumps are 90% gone. The itching and burning completely stopped. I considered the radiation therapy successful, so far. There were no side effects from the treatment.

10/04/2011 17:39
jings999 
10/04/2011 17:39
jings999 
Re: Diagnosed today, can I still run?

Thanks everyone for your support and comments. I carried on researching, what a tricky area, nobody really knows for sure what causes it, what accelerates it or what slows it down!
On the basis that one train of thought is that it is caused by trauma I think it would be sensible to stop running. By the way, lots of people have posted on running websites - I wonder if there is a link??
Time to buy a good bike and start cycling I think.

Radiotherapy seems to have decent results of all the options, I don't yet need a treatment but when I do this is a serious consideration.
Does anyone know what typical side effects there are?
Is the only place for treatment Germany?

thanks guys

10/04/2011 20:49
spanishbuddha 

Administrator

10/04/2011 20:49
spanishbuddha 

Administrator

Re: Diagnosed today, can I still run?

Short term side effects of RT include soreness, redness, tanning, dry skin, maybe a very very small risk of cancer.

Try contacting the UK clinics listed on this site under Treatment -> Radiotherapy -> Clinics and see if they will treat Ledderhose. Radiotherapy has not been aproved by NICE for Ledderhose, so not much chance of getting it done on the NHS?

RT is not useful if the condition is dormant.

Cycling - yes, but buy some good cycling gloves with well padded palms, or buy some ergonomic comfort handlebar grips.

Edited 10/04/11 23:51

10/07/2011 06:08
crt 
10/07/2011 06:08
crt 
Re: Diagnosed today, can I still run?

Hi Jings,

I've been a runner (almost) all my life (now 60yo). I developed LD in my right foot whilst in my 20's and had surgery at that time. The result was a transformation of a small uncomfortable lump to significant scar tissue over the whole area of surgery and subsequent development of more lumps - which made walking quite painful.

After that less than optimum start (I actually had some knuckles develop in my teens as well), I have been lucky enough to be able to 'manage' the problem by sculpturing inserts in my shoe to minimize points of contact. I have also been fortunate that the LD has not developed any further (or at least I have been able to accommodate the changes).

Whilst there may be reports of runners experiencing LD, I suspect that runners would be more highly motivated to seek a solution, and therefore be more visible. I had to stop running after one knee operation too many (I only had one when I found it wouldn't cope with a marathon). I have since spent more time on a bike, but after one broken leg and ankle after an altercation with a motor bike, being over optimistic in taking corners on a number of occasions and a couple of car door incidents I feel that the dangers of worsening the LD with running are probably somewhat less than the alternative of riding a bike!

I have had some RT for DD. I am very happy with the outcome, so far. You are somewhat younger, so I am not sure about the cancer risk for you, but if that is not an issue I would suggest that RT is worth considering.

10/10/2011 19:47
jings999 
10/10/2011 19:47
jings999 
Re: Diagnosed today, can I still run?

Thanks for sharing your experience CRT. Interesting that you have kept running, very impressive, doesn't sound like it has caused you an issue. What a shame that there is such a lack of data on the condition, we really should be able to work out if stress to the foot from running causes it to accelerate or have no effect.

Maybe if we have a few more shared experiences from people who have run without too much effect I'd feel more confident.

I'm more than a little nervous that I might agitate the condition, at the moment it is definitely manageable.

I chuckled about your comments on the risks of cycling - so true!

From what I've read so far when the time is right I'll consider RT, I'll avoid surgery if I can, and all other treatments seem to have little effect.

10/12/2011 12:18
jings999 
10/12/2011 12:18
jings999 
Re: Diagnosed today, can I still run?

Oh stuff it.
I just went out for a fast 6k run, and I feel much happier and better for it.

I'm going to carry on.

11/08/2011 19:47
tiger77 
11/08/2011 19:47
tiger77 
Re: Diagnosed today, can I still run?

I've had Ledderhose since I was 20 y.o., and I'm 34 now. I've never had any issues with running. I receive cortisone shots in the nodules in my arch as well as my large toe and they seem to shrink really well. I don't have to get an injection for a couple of years.

Edited 11/08/11 21:48

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