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New to Ledderhose. Should I limit walking ?
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07/17/2023 13:00
AlfonsoMijas 
07/17/2023 13:00
AlfonsoMijas 
Re: New to Ledderhose. Should I limit walking ?

Thais a lot for your answer, I’ll try. Although I suppose the nodules should hurt, which is not my case for now, or would it be better to do it now that it dose’s hurt? I have to have an operation to take the metal away from my ankle ( the one with no nodules) in octubre.

07/17/2023 15:49
spanishbuddha 

Administrator

07/17/2023 15:49
spanishbuddha 

Administrator

Re: New to Ledderhose. Should I limit walking ?

AlfonsoMijas:
Thais a lot for your answer, I’ll try. Although I suppose the nodules should hurt, which is not my case for now, or would it be better to do it now that it dose’s hurt? I have to have an operation to take the metal away from my ankle ( the one with no nodules) in octubre.
My own personal opinion is that if the nodules are not causing you problems at the moment, in the activities that you do, and can be managed 'conservatively' then hold off on seeking RT. However you could have this discussion perhaps via an online email or video consultation with an experienced RT consultant such as someone like Professor Seegenschmiedt.

07/17/2023 16:43
wach 

Administrator

07/17/2023 16:43
wach 

Administrator

Re: New to Ledderhose. Should I limit walking ?

My opinion, and it is not more worth than Spanish Buddhas, is that an early RT can possibly stop or slow down further growth. The earlier you catch a nodule with RT the more efficient is RT. So why not do it now - provided the nodule is active, i.e. growing? If it is stable/dormant, then why treat it?

I myself had all my Dupuytren's nodules (7 alltogether) treated with RT and it worked for all, except 1. I am happy I had RT.

Wolfgang

02/17/2024 17:55
cvilleroby 
02/17/2024 17:55
cvilleroby 
Re: New to Ledderhose. Should I limit walking ?

I've read all the provided links about running/exercise and disease activity. I believe there is an absolute correlation between it and increased physical activity.

I'm 64, female and developed LH about 2 years ago following two events. First was the taking of BHRT (bioidentical hormone replacement therapy) post-menopause, and the second was spending about two years during the pandemic establishing a vegetable and regular garden where I was on my feet for 6-8 hours a day. It kept me sane. Two small lumps on the right arch started out with minimal pain, grew to larger lumps and a chord. I was treated with verapamil for about 6 months, which did nothing, then had a steroid injection which relieved the pain. Nodules continued to grow and I had 3 shots of vitraise over a 6 month period, all while using verapamil. I got some relief although nodule size remained the same to me, but the podiatrist says they have shrunk. After the 4th series this January, the pain continues post procedure (for the first time) and chord has grown larger. I also happened to have increased my walking to about 3 miles a day because I was feeling good enough, do lunges and squats, lift low weights and continue to garden. I have cut holes in my shoes and wear only sneakers now, nevertheless, whether walking or resting, I have active or residual pain. Sometimes I'm woken at at night. I now have a nodule growing in my left foot. Can't feel it yet, but can feel the pain when walking.

If this disease is inflammatory in nature, I'll not be surprised. I have hashimotos, sjogrens syndrome and myasthenia graves as well as chronic Lyme disease and 3 brain stents for an aneurysm made of nickel. How can that be without side effects? With all these health concerns, I have to say LD has brought me down the most because it forces you to not do things and the chronic pain is debilitating.

At this point I believe RT is the only option, I just hope I'm not too late and can persuade my podiatrist. Yes, there are cancer concerns, but at my age in life, I think the trade off between no activity and a small risk of cancer, may be worth it.

02/17/2024 19:10
Lumpzzz 
02/17/2024 19:10
Lumpzzz 

Re: New to Ledderhose. Should I limit walking ?

i Just wear shoes with good arches and soft inner soles. I also wear spring shoes. They take the pressure off nodes and improve Walking gate. I have had nodes in both feet for years and I just leave them alone. There is really no way I would ever accept any surgery on the arches of my feet. No evidence that any treatment works. I use hot wax treatment on feet and duyptrens in hands. Always walk and stretching is important. I am active and garden have horses and also understand my limitations and adjust accordingly. Stay active…

02/18/2024 07:16
markharr 
02/18/2024 07:16
markharr 
Re: New to Ledderhose. Should I limit walking ?

This is the first time I've heard about vitraise. I knew about Xiaflex (collagenase) but not this (which is hyaluronidase).
Googling suggests that it's not widely used, but those who do, say it works well.
I wonder why it's not more well known ?
Since I started this thread 18 months ago, my DD has progressed both in terms of contraction, and also the number of new nodes, the latter being clearly correlated with careless mistakes that result in overstraining my hands. Most recently I thoughtlessly hacked at a piece of ice whilst otherwise carefully shovelling snow, and within a few days I had a new node, at the base of my right thumb.
I have spent a fortune on gloves, trying to find ones that protect me against different types of work, so I have heavy leather ski gloves for gardening, and have recently discovered anti-vibration gloves, of the sort used by jack-hammar workers. They are great for cycling (protecting the new thumb injury) and working with light items that have sharp edges.
On the other hand my LD has been rather stable. The lump has not grown much, but the plantar fasciitis has gotten a little worse. I keep walking around 6 miles a day, with double memory foam insoles, and silicone gel metatarsal pads (which are wonderful).

Edited 02/18/2024 07:17

02/18/2024 07:26
spanishbuddha 

Administrator

02/18/2024 07:26
spanishbuddha 

Administrator

Re: New to Ledderhose. Should I limit walking ?

markharr:
This is the first time I've heard about vitraise. I knew about Xiaflex (collagenase) but not this (which is hyaluronidase).
Googling suggests that it's not widely used, but those who do, say it works well.
I wonder why it's not more well known ?
Since I started this thread 18 months ago, my DD has progressed both in terms of contraction, and also the number of new nodes, the latter being clearly correlated with careless mistakes that result in overstraining my hands. Most recently I thoughtlessly hacked at a piece of ice whilst otherwise carefully shovelling snow, and within a few days I had a new node, at the base of my right thumb.
I have spent a fortune on gloves, trying to find ones that protect me against different types of work, so I have heavy leather ski gloves for gardening, and have recently discovered anti-vibration gloves, of the sort used by jack-hammar workers. They are great for cycling (protecting the new thumb injury) and working with light items that have sharp edges.
On the other hand my LD has been rather stable. The lump has not grown much, but the plantar fasciitis has gotten a little worse. I keep walking around 6 miles a day, with double memory foam insoles, and silicone gel metatarsal pads (which are wonderful).
There's a group on FB run by the Dr who promotes tx for LD with hyaluronidase (and verapamil) which is well subscribed to. It has popped up on this forum a few times. It is not an approved treatment afaik by any of the regulating agencies, and some patients say it works well for them and other say not at all.

Edited 02/18/2024 07:28

02/18/2024 14:34
floridagal 
02/18/2024 14:34
floridagal 
Re: New to Ledderhose. Should I limit walking ?

There are exercises you can do to help with the plantar fasciitis.

02/20/2024 17:13
Lumpzzz 
02/20/2024 17:13
Lumpzzz 

Re: New to Ledderhose. Should I limit walking ?

The only exercise that has helped my planter fasciitis is streching, ice,rest and spring shoes. PF can turn into nodes on the arch . This is what has happened in my case over time these lil nodes small micro bleeds from injuries turn into nodes . As they get larger and larger called Ledderhose. No injections or other treatments has given any relief other than techniques I have mentioned above to manage Ledderhose. Now have been Managing this issue over 30years. Still very active within and understanding my limitations.

Edited 02/20/2024 17:17

02/21/2024 02:07
wach 

Administrator

02/21/2024 02:07
wach 

Administrator

Re: New to Ledderhose. Should I limit walking ?

Well done or better doing well! With this disease unfotunately everyone has to find his own way to deal with it. I was lucky that my LD nodules started growing but then stopped at a toleratable level.

Wolfgang

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dupuytren-online   anti-vibration   thoughtlessly   post-menopause   contraction   important   sesamoidititis   started   nodules   semifunctional   Ledderhose   Seegenschmiedt   AlfonsoMijas   walking   understanding   hyaluronidase   overstraining   conservatively   treatment   overstressing