| Lost password
400 users onlineYou are not loggend in.  Login
Radiation after surgery ** Questions.
 1 2 3
 1 2 3
12/27/2010 20:51
Cyclist 
12/27/2010 20:51
Cyclist 

Re: Radiation after surgery ** Questions.

You can have effective treatment only ONCE, a second chance is difficult! I am happy that I made my decision to be
treated in Germany ...


Hi Moloto
Good to read about your experiences with German radiation treatment. I'm just curious about why you say you can only have effective treatment once? Is a pattern evident that the next round of treatment not as effective?
Thanks
Di

12/29/2010 03:12
newman 
12/29/2010 03:12
newman 

Re: Radiation after surgery ** Questions.

Hi Blue Australia Calling.
I had Radiotherapy done by Prof. Seegenschmiedt in 07 on both hands and feet. I had the RT. on a repeat surgery on my right hand which had developed two keloids on my thumb and forefinger. The RT. is not a problem to an area of surgery and infact in the case of keloids is done immediately after surgery . The Rt. will certainly soften the scar tissue. I would not have the whole area of the feet irradiated. Some times the greater time between treatment is an advantage. I waited 3 months between treatments to fit in with my travel plans. On my 1st return to Germany we found another nodule on one foot outside the treatment area and the oncologist increased the target area. Obviously the smaller the nodule and the earlier the treatment the better.

12/30/2010 01:56
jery 
12/30/2010 01:56
jery 
Re: Radiation after surgery ** Questions.

Does anybody know what the next step would be if the radiated tumours kept growing? I see that having radiation a second time is not useful, but what now? Very confused. My whole leg hurts from walking on the side of my foot. I finished radiation the begining of October and they said I have to wait 6 months before another MRI. I had radiation for 5 weeks 5 days a week and they did have to enlarge the area 2 weeks in as another tumor formed outside the area. Then a month after I had an MRI and they said they shrunk a little bit, but found another one. Ughhhhh. What to do. Thanks

12/30/2010 11:52
newman 
12/30/2010 11:52
newman 

Re: Radiation after surgery ** Questions.

Australia Calling, Hi Jery. In your post you say you had radiation for 5 weeks 5 days a week. What was the total GY. in the treatment. I have never heard of being treated for 5 weeks 5 days a week .

Edited 12/30/10 13:53

12/30/2010 12:07
Cyclist 
12/30/2010 12:07
Cyclist 

Re: Radiation after surgery ** Questions.

Hey Newman
Great to hear from someone with this condition as I'm looking at my treatment options (RT) locally versus internationally.

I am also tempted to travel to Germany to get the RT from the renowned prof

Since no-one seems to know much about this condition, I see a tedious road ahead gathering the required information.

Di

Edited 11/09/11 11:45

12/31/2010 02:45
newman 
12/31/2010 02:45
newman 

Re: Radiation after surgery ** Questions.

Australia Calling. Hi Di. The fact is I visited the Royal Adelaide Hospital on 07 and it was clear that the Oncology Dept. then were only treating Cancer Patients and a few keloids after surgery. They advised they could administer the treatment, but I did not wish to be the bunny . On the completion of my treatment in Germany,I made contact with Dr. Borg in Adelaide . I found via the internet, that he was interested in the treatment of Non Malignant Disorders. Whilst in Germany I purchased the Book Radiotherapy for Non Malignant Disorders writtten by the Prof. and others and when I met with Dr. Borg, he was very interested and I left the book with him. He had been incontact with Prof. Seegenschmiedt. in the treatment of Heel Spur and was aware of his work .He advised me that he had treated Ledderhose over previous years with RT. with good results. He then made a decision to list on the Dupuytren Web Site. For Interest sake In Germany alone they treat over 40,000 patients annually for 29 Non Malignant Disorders.
I did also make Contact with Dr Greg Wheeler in April 08 at PeterMac Hospital(Victoria) who is the head of the Oncology, he had treated patients with Dupuytrens. His email was [ greg.wheeler@peterman.org ] You might try Chris Wratten at Newcastle Mater Hospital (Warratah)Phone 02 4921 1211 email[ chris.wralten@mater.health.nsw.gov.au] Finally Prof. Kearlesly at St.George Publice Phone 02 9113 1111 emai l[john.kearsley@sesiahs.health.nsw.gov.au ] This will give you something to work on.

Edited 12/31/10 06:39

12/31/2010 02:58
Cyclist 
12/31/2010 02:58
Cyclist 

Re: Radiation after surgery ** Questions.

Hi Neuman
Thank you so much for going to the trouble of pulling all this information together, which will help me on my way - I really appreciate the local referrals. Did you actually see any of the other specialists here in NSW?

Thanks and regards
Di

12/31/2010 03:19
newman 
12/31/2010 03:19
newman 

Re: Radiation after surgery ** Questions.

Quick Answer No. You will need to do your homework and be as informed as the Medicos. Have you read the protocol for RT on this site. A little tip might help with relief try using Euederm cream contains 10% Urea.(over the counter) Use it for a week to 10 days.When you get up in the morning sit on the side of the bed and using a tennis ball in the arch of the foot move it back and forth from the heel to the ball of the foot. If it feels ok put on a bit more pressure and stand up doing the same exercise for a few minutes. It is Not good idea to walk around bare feet . Prior to the RT. I wore Orthodics and found great difficulties even to walk over the beach, stepping on a small shell brought me to my knees. It is now over 3 years /no orthodics and no problem going to the beach. Regards

Edited 12/31/10 05:22

12/31/2010 03:37
Cyclist 
12/31/2010 03:37
Cyclist 

Re: Radiation after surgery ** Questions.

Thanks again Newman.

Do the contacts you gave me have a particular interest in this condition do you know? Or were you just being extremely generous with getting my search underway?

Just curious in how to structure my plan of action

Happy New Year!
Di

12/31/2010 04:15
newman 
12/31/2010 04:15
newman 

Re: Radiation after surgery ** Questions.

Hi Again , I have personally made contact with Greg Wheeler and he responded back in 08 . Other posts have mentioned Chris Wratten in Newcastle. I did phone his secretary to obtain his details. Unfortunately the user on our forum never posted on the results .I did phone John Kearsley's secretarty to find out if they offered RT for the treatment of Dupuytrens . I obtained the contact information and because I have been in and out of Australia for long periods I never had time to follow through. I had good intentions so that the info would be available. I would suggest sending an email along with the literature. on the protocol .Regards.

Edited 01/01/11 01:54

 1 2 3
 1 2 3
radiotherapy   treatment   Germany   disadvantage   treating   professionals   complications   surgery   internationally   Radiation   Australia   stabilization   inconvenient   Questions   treated   disease   experienced   Seegenschmiedt   comfortable   Ledderhose