Sentinella:

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I have had twitchy feet at night for about 10 years. Sometimes so bad I can't sleep or I wake my wife up because my feet and legs violently jerk for no reason.

The nodules in my feet don't hurt as often, only 3 or 4 times a day I get sharp pains that last 5 minutes or so. A huge improvement.

Just curious if anyone else had this symptom? I also have another weird anomaly, I can't sleep with covers over my feet. Even on cold nights camping when it is 20 degrees outside. My feet get very hot and feel like they are burning up.

Terry Sentinella

Yep! The new friends as a result of this disease is true! Really, really nice, caring, compassionate people who understand this weird disease. That helps as we muddle through our decisions.

Again and again, thanks, Wolfgang, for this wonderful site.

I agree as well, Thanks Wolfgang.
Terry

Sentinella:

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Yes I have heard of Restless Leg Syndrome (RLS). I figured I had it until I found out I have Ledderhose. Since the radiation treatments my feet don't twitch very much at night. I wonder if the two are connected?? I know there is medication for RLS but I really am against taking any medication, unless it is a necessity. My twitching feet was bothersome at times but not enough for me to resort to taking a daily pill. One thing that did help me was taking Succeed (Electrolyte capsule) a few times a week and during endurance events.

News on my Dup's and Ledderhose. The nodule in my left hand looks like it's the same, maybe a little smaller, but not much. The cord that had started to develop is gone. The nodules in my feet have shrunk in 1/2 and I don't even notice they are there. My feet and hands do not ache at all. I think the disease has stopped progressing for the meantime. I had my final treatment at the beginning on October 2010, so it has been 3 months.

Even better, one of the Radiation Technologists that did my treatments is now running with my running group, and she ran in the last 2 running events I put on. Kind of cool though all of this I have meet some very cool people and new friends.

Sentinella:

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Update on my Ledderhose and Dupuytrens, the nodules in my feet are almost 100% gone. I finished my radiation in early October of 2010, so 5.5 months ago. I really didn't stay off my feet during the treatments, but I did slow down my running for a month or so. Thanksgiving weekend I ran 2 50k's and a marathon in 3 days to kick start my training. My feet have been getting better and better all the time even with a demanding running schedule. So YES radiation works, and for me it didn't matter if I took it easy on my feet.

I applied for the Badwater 135 Ultramarathon a few weeks ago, and they accepted my application, so I will be a competitor in the Badwater 135 Ultramarathon held on 7/11/2011. This has been a long term goal for several years. To be able to qualify, and then have them select me is just amazing. Now for the planning and training.

Thanks for all the advise I received on this forum. It helped me out so much to read and learn from all of you. Last year my feet ached all the time, at the end of my 100 milers they killed me. To have the pain and achy feeling gone is a gift. You all are awesome.
Terry Sentinella